“People have no idea what Severe ME is like” – Nevra, Pakistan

Unfortunately, Nevra's condition keeps getting worse. If you can, please support her GoFundMe campaign.
Thanks!

🩵 https://gofund.me/919653851

Articles about Nevra:

December 2025
https://thesicktimes.org/2025/12/15/medically-neglected-and-structurally-erased-international-network-appeals-for-me-advocate-nevra-elis/

November 2024
https://www.thecanary.co/global/world-analysis/2024/11/07/nevra-mecfs-pakistan/

April 2024
https://worldmealliance.org/2024/04/people-have-no-idea-what-severe-me-is-like-nevra-pakistan/

#GlobalVoiceForME
#Pakistan
#SevereME
#MECFS
#disability
#POTS
#MCAS
#PMDD
#OCD
#Hypermobility
#endometriosis
#TMJdisorder
#CCI
#domesticviolence

Gerade entdeckt:

Alltagshilfe bei ME/CFS

Wenige Fragen – fertige PDFs für Behörden, Krankenkassen und Ärzt*innen.

Alles lokal im Browser, keine Daten verlassen dein Gerät. (Sagt die Website über sich)

https://mecfs-help.de/

#mecfs
#severeME
#pflege
#gdb
#schwerbehinderung

A well-written account of someone with #SevereME and some of the issues she has to deal with. #pwME #MyalgicEncephalomyelitis

https://virology.ws/2026/01/27/trial-by-error-an-essay-on-living-with-severe-me/

It’s Easter Weekend🐣

Please help fund a new life free of abuse & neglect. Details in fund.

I don’t want to die here. Even my doctor can see my steep decline and it’s inevitable if I’m trapped here.

Thanks❤️

💸Fund: https://chuffed.org/project/161937-help-anna-escape
☕️BMaC: https://buymeacoffee.com/Halcionandon
🎁Amazon: https://www.amazon.com.au/hz/wishlist/ls/1B9A74NSROTQZ
ᯓ➤Beem:@halcionandon

#MutualAid #chronicillness #fediAid
#LongCovid #PWLC #Disability
#MECFS #PWME #SevereME #ChronicPain

@mecfs
@mutualaid
@[email protected]

It’s Easter Weekend🐣

Please help fund new life free of abuse & neglect. Details in fund.

I don’t want to die.

Thanks❤️

💸Fund: https://chuffed.org/project/161937-help-anna-escape
☕️BMaC: https://buymeacoffee.com/Halcionandon
🎁Amazon: https://www.amazon.com.au/hz/wishlist/ls/1B9A74NSROTQZ
ᯓ➤Beem:@halcionandon

#MutualAid #chronicillness #fediAid
#LongCovid #PWLC #Disability
#MECFS #PWME #SevereME #ChronicPain

@mecfs
@mutualaid
@[email protected]

ME Research UK:

A team of researchers have published a study investigating lived experiences of people with ME/CFS using data from posts made on social media.

Read more: https://tinyurl.com/mj2p8c24

#mecfs #cfs #pwme #severeme #severemecfs @mecfs

BBC Wales covers ME/CFS with text and radio pieces

https://www.bbc.com/news/articles/cpv8e71p3evo

https://www.youtube.com/watch?v=r1S2NMf8-uY

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #SevereME #SevereMECFS @mecfs

The UK Department of Health and Social Care now expect that work will begin in April 2027 to start the process of commissioning a service for those with very severe ME/CFS

https://ugc.production.linktr.ee/8dd80874-c0a0-4b5b-8694-c68c15541ef0_ThereForME-Briefing-Delays-to-establishing-NHS-care-for-very-severe-ME-March-2026.pdf

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #SevereME @mecfs

Anyone can get ME/CFS.

And I want to emphasize that folks who were healthy & active before ME/CFS are no more deserving of our empathy than those folks who were not!

But I hope this story helps people understand no one is "too healthy" to get this disabling illness. FYI, COVID infection can trigger ME/CFS.

"Our son loved the outdoors - invisible illness means he now can't walk or talk"

https://www.bbc.com/news/articles/cpv8e71p3evo

@mecfs

#MEcfs #SevereME #LongCovid #PostCovid #CovidIsNotOver #ChronicIllness

“The 126th edition of the Research Digest brings together clinical, biological, and lived-experience perspectives to strengthen our understanding of long COVID and its overlap with ME/CFS.”

https://emerge.org.au/researchdigest/research-digest-issue-126/

#MEcfs #LongCovid #PwME #SevereME @mecfs