A well-written account of someone with #SevereME and some of the issues she has to deal with. #pwME #MyalgicEncephalomyelitis

https://virology.ws/2026/01/27/trial-by-error-an-essay-on-living-with-severe-me/

It’s Easter Weekend🐣

Please help fund a new life free of abuse & neglect. Details in fund.

I don’t want to die here. Even my doctor can see my steep decline and it’s inevitable if I’m trapped here.

Thanks❤️

💸Fund: https://chuffed.org/project/161937-help-anna-escape
☕️BMaC: https://buymeacoffee.com/Halcionandon
🎁Amazon: https://www.amazon.com.au/hz/wishlist/ls/1B9A74NSROTQZ
ᯓ➤Beem:@halcionandon

#MutualAid #chronicillness #fediAid
#LongCovid #PWLC #Disability
#MECFS #PWME #SevereME #ChronicPain

@mecfs
@mutualaid
@[email protected]

It’s Easter Weekend🐣

Please help fund new life free of abuse & neglect. Details in fund.

I don’t want to die.

Thanks❤️

💸Fund: https://chuffed.org/project/161937-help-anna-escape
☕️BMaC: https://buymeacoffee.com/Halcionandon
🎁Amazon: https://www.amazon.com.au/hz/wishlist/ls/1B9A74NSROTQZ
ᯓ➤Beem:@halcionandon

#MutualAid #chronicillness #fediAid
#LongCovid #PWLC #Disability
#MECFS #PWME #SevereME #ChronicPain

@mecfs
@mutualaid
@[email protected]

ME Research UK:

A team of researchers have published a study investigating lived experiences of people with ME/CFS using data from posts made on social media.

Read more: https://tinyurl.com/mj2p8c24

#mecfs #cfs #pwme #severeme #severemecfs @mecfs

BBC Wales covers ME/CFS with text and radio pieces

https://www.bbc.com/news/articles/cpv8e71p3evo

https://www.youtube.com/watch?v=r1S2NMf8-uY

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #SevereME #SevereMECFS @mecfs

The UK Department of Health and Social Care now expect that work will begin in April 2027 to start the process of commissioning a service for those with very severe ME/CFS

https://ugc.production.linktr.ee/8dd80874-c0a0-4b5b-8694-c68c15541ef0_ThereForME-Briefing-Delays-to-establishing-NHS-care-for-very-severe-ME-March-2026.pdf

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #SevereME @mecfs

Anyone can get ME/CFS.

And I want to emphasize that folks who were healthy & active before ME/CFS are no more deserving of our empathy than those folks who were not!

But I hope this story helps people understand no one is "too healthy" to get this disabling illness. FYI, COVID infection can trigger ME/CFS.

"Our son loved the outdoors - invisible illness means he now can't walk or talk"

https://www.bbc.com/news/articles/cpv8e71p3evo

@mecfs

#MEcfs #SevereME #LongCovid #PostCovid #CovidIsNotOver #ChronicIllness

“The 126th edition of the Research Digest brings together clinical, biological, and lived-experience perspectives to strengthen our understanding of long COVID and its overlap with ME/CFS.”

https://emerge.org.au/researchdigest/research-digest-issue-126/

#MEcfs #LongCovid #PwME #SevereME @mecfs

If you have #SevereME, like me, you are valuable however and whenever you can show up

I’ve hosted monthly support group meetings for Iowa #dysautonomia and #EDS patients for years, it takes a lot, can’t always do it, but everyone is grateful for these spaces no one else provides

UK NHS England releases e-learning module “Supporting people with severe ME/CFS”

https://learninghub.nhs.uk/Resource/79376/Item

Screenshot from latest Science for ME weekly update

#SevereME #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs