Ashley HalliwellFeb 20, 2025

What’s this? Another prompt I want to actually take somewhat seriously?

Who are your favorite people to be around?

People who are straightforward, honest, and the only bullshit they give me is the joking kind. Preferably, they can see shit about me that I can’t, and can do shit that I can’t without making me feel like shit for it. They don’t talk my ear off constantly about meaningless shit and believe that words have as much power as actions and use both in tandem.

I’m very picky about the people I surround myself with, and it’s a high bar because I have made peace with solitude most days, being mostly housebound and all, to the point where if I prefer being alone more than I enjoy spending time with a person, I simply won’t engage with them if I don’t have to. I am too tired and have too much shit to do (as well as people I actually like) to pay the people I dislike much mind. My energy is precious and I don’t have much of it. So I do my best to use it wisely. My favorite people get that and go to great lengths to help me protect the little energy I have.

I’m not proud of a lot of the way my life has gone, and there’s a lot that happened that’s entirely outside of my control. However, I’m damn proud of the fact that I picked great people.

-Allēna

#charisma #chronicfatigue #chronicillness #community #CripplePunk #dailyprompt #dailyprompt1854 #Disabled #eepy #friends #hopeposting #housebound #jointhypermobility #jointpain #MECFS #NEISvoid #neurodivergence #partners #queer #socialtime #Spoonie #strokesurvivor #winning

Mark MartinoMar 21, 2024

Conclusions: Individuals with GJH were approximately 30% more likely not to have recovered fully from COVID-19 infection…More generally, greater awareness of GJH and its extra-articular associations is needed for effective patient stratification and implementation of personalized medicine. #EhlersDanlos #JointHypermobility #LongCOVID

https://bmjpublichealth.bmj.com/content/2/1/e000478

Is joint hypermobility linked to self-reported non-recovery from COVID-19? Case–control evidence from the British COVID Symptom Study Biobank

Objectives This study sought to explore whether generalised joint hypermobility (GJH, a common marker of variant connective tissue) was a risk factor for self-reported non-recovery from COVID-19 infection.Design Prospective observational study.Setting COVID Symptom Study Biobank ( https://cssbiobank.com/) UKParticipants Participants were surveyed in August 2022. 3064 (81.4%) reported at least one infection with COVID-19. These individuals self-reported on recovery and completed a self-report questionnaire to detect GJH (Hakim and Grahame 5-part questionnaire, 5PQ).Main outcome measures The primary outcome was the presence of self-reported non-recovery from COVID-19 infection at the time of the survey. Additional outcomes included scores on 5PQ and self-reported fatigue level (Chalder Fatigue Scale).Results The presence of GJH was not specifically associated with reported COVID-19 infection risk per se. However, it was significantly associated with non-recovery from COVID-19 (OR 1.43 (95% CI 1.20 to 1.70)). This association remained after sequential models adjusting for age, sex, ethnic group, education level and index of multiple deprivation (OR 1.33 (95% CI 1.10 to 1.61)) and further adjustment for vaccination status and number of vaccinations (OR 1.33 (95% CI 1.10 to 1.60)). Additionally, including in a model adjusting for all covariates, hypermobility significantly predicted higher fatigue levels (B=0.95, SE=0.25, t=3.77, SE, p=0.002). Fatigue levels mediated the link between GJH and non-recovery from COVID-19 (estimate of indirect effect=0.18, 95% bootstrapped CI 0.08 to 0.29).Conclusions Individuals with GJH were approximately 30% more likely not to have recovered fully from COVID-19 infection at the time of the questionnaire, and this predicted the fatigue level. This observation is clinically important through its potential impact for understanding and identifying sub-phenotypes of long COVID for screening and personalised targeted interventions. More generally, greater awareness of GJH and its extra-articular associations is needed for effective patient stratification and implementation of personalised medicine.

BMJ Public Health
Corrosive DreamDec 28, 2022

Support #science!

#LongCovid sufferers can fill out a survey questionnaire here for a chance to win a £30 vouchers.

#PostCovid #Study #EDS #JointHypermobility

https://tinyurl.com/LongCovid19study

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