#DreiGuteDingeDesTages

✳️ Einigermaßen von gestern erholt 🙏🏻
✳️ Umgeben von geliebten Menschen 🥰
✳️ Spaziergang und Spielplatz mit meinem Enkelkind 😍

#GuteNacht ✨🌙

🦋

#LebenMitAutismus #LebenMitHochbegabung #SpoonieLife #HerzensMenschen

Fuck, was I frustrated earlier! And now I've come down from that spike, I just... don't know quite what to do with my day.

Yesterday, I strimmed a tiny area of grass and weeds outside my back door. Today, I'm paying for it with increased pain and limited mobility. I thought the frustration was less about the limits on my capacity (background noise), and more about the lack of help and support from friends and neighbours.

No, it's not a rant: I know that people have good intentions, but also their own lives, their own chores. But that doesn't stop the feelings of disappointment, isolation, and frustration. I mean, take yesterday's task. OK, it wasn't life or death stuff, and I had actually asked a friend to strim my plot for me, and she'd said yes. So why did I attempt it? Several reasons.

First of all, not life or death, but weighing on my mind enough to make it difficult to relax and do other, more manageable things (the area that I tackled being constantly visible from inside my home). And I'm grateful my friend said she'd do it, but I can't start demanding it be done now, ASAP, today... yet that's what I needed. So I did it myself, and paid the price.

When I sat down with that frustration/understanding about my friends and neighbours, I realised that the frustration at my own lack of capacity was louder than I'd realised, too. But extending that same level of understanding to myself is harder, somehow. Actually, not "somehow": it's really only in recent years that I've learned to have any kind of compassion for myself. And what a game changer that is!

So I guess I'll have to learn to hold that frustration/understanding axis about my own physical capacity, too.

Great, more 'work'!

#RheumatoidArthritis #ChronicIllness #AutoimmuneDisease
#LivingWithRA #SpoonieLife #HealingInProgress #SupportingMyBody
#RheumatoidRevolution
#ChronicIllnessWarrior #SelfCare #mentalhealth

It’s taken me two days to sit down and write since the hospital visit. Not because the appointment itself was so awful (though I did just collapse into bed the moment I got home), but because that’s how long it’s taken me to get my head around it.

Sorry — BEGIN to get my head around it.

Because, you see, I mentioned previously that I was both relieved and upset about the upcoming appointment… Well, my upset was to do with a core distrust of big pharma and the medical system, and I had worked really hard to stay outside of it.

Now, don’t get me wrong: there are wonderful things about modern medicine. I mean, if I got in a serious car crash, for example, I want an ambulance, not a homeopath, thank you! But I’ve also seen people, especially those with chronic illness, get really fucked over by the medical system. I don’t want to over-egg it; I know there are plenty of positive cases too, but I certainly didn’t want to be part of it. But then I also didn’t want a chronic illness!

Nonetheless, I’ve had to find some acceptance around meds, at least for now, because I simply couldn’t function in the state I’ve been in for several months. I have to hang on to the belief — the light at the end of the tunnel — that the body is an amazing organism and that it is possible to heal. Not in a magical sense, but by working with my body and giving it every support possible to do its thing.

And for now, that support seems to include medication to get this disease under control.

So be it.

#RheumatoidArthritis #ChronicIllness #AutoimmuneDisease
#LivingWithRA #SpoonieLife
#BodyListening #HealingInProgress #SupportingMyBody
#IntegrativeHealth #rheumatoidrevolution #chronicillnesswarrior #selfcare

#DreiGuteDingeDesTages ☀️

✳️ Linux-Upgrade erfolgreich aufgespielt, thank you brother! 💕
✳️ eine Menge Papierkram bearbeitet 💪🏻😄
✳️ endlich geschafft, mal wieder Staub zu saugen 😅
✳️ Blogtext ist fertig 🙃🙂

#SchoenenAbend und #GuteNacht liebe Fedis ✨🌙

🦋

#LebenMitAutismus #LebenMitHochbegabung #SpoonieLife

Ich habe mir mal wieder ein bisschen was von der Seele geschrieben 😉

https://neurospektral.blogda.ch/autismus-und-routinen/

🦋

#Autismus #Routinen #LebenMitAutismus #LebenMitHochbegabung #SpoonieLife

#DreiGuteDingeDesTages

✳️ Winter ist beendet. Ich habe heute Wolldecke, -pullover, -schals, -mützen und -handschuhe gewaschen. 😅
✳️ Mit meinen Reisevorbereitungen gut vorangekommen.
✳️ Anruf von meinem Lieblingsmenschen.

#GuteNacht ✨🌙

🦋

#LebenMitAutismus #LebenMitHochbegabung #SpoonieLife

Ich bin zwar glücklicherweise nicht von Long Covid betroffen, aber die Auswirkungen eines autistischen Burnouts und die von ME/CFS können in der Symptomatik (Erschöpfung/geringe Belastbarkeit) ähnlich sein.

Ich habe daher diesen Fragebogen für eine erste Selbsteinschätzung sehr hilfreich gefunden:

https://sgme.ch/funcap/

#AutistischerBurnout #mecfs #Autismus
#LebenMitAutismus #LebenMitHochbegabung #SpoonieLife #unsichtbareBehinderung #InvisibleDisability #autisticBurnout

edit: #

#DreiGuteDingeDesTages

✳️ langes Telefonat mit einer lieben Freundin 🥰🙏🏻
✳️ Überraschungsanruf von meinem kleinen Bruder 💕
✳️ sehr ruhiger Dekompressionstag 😌

#GuteNacht ✨🌙

🦋

#LebenMitAutismus #LebenMitHochbegabung #SpoonieLife

#rheumatoidarthritis #spoonielife #chronicillness #nutrition #acupuncture #chronicillnesswarrior #selfcare

Woke up so angry at 4am. Initially I was aiming at the wrong target, but suddenly realised the real elephant in the room was my recent diagnosis of rheumatoid arthritis. It feels like such a punch in the face after all the things I've worked on and overcome in the last few years (but more about that in a future post!).

Why now?...

... That’s one of the questions that’s been plaguing me. In fact, one I’ve been trying to ‘work out’ — as if that were possible! But really, the question is a cry of: "this is not fucking fair!" And my unexpected 4am anger allowed me to feel that and release it much more effectively than my endless analytical thinking.

(1/2)