Marion 🦋☀️✳️ Winter ist beendet. Ich habe heute Wolldecke, -pullover, -schals, -mützen und -handschuhe gewaschen. 😅
✳️ Mit meinen Reisevorbereitungen gut vorangekommen.
✳️ Anruf von meinem Lieblingsmenschen.
#GuteNacht ✨🌙
🦋
Ich bin zwar glücklicherweise nicht von Long Covid betroffen, aber die Auswirkungen eines autistischen Burnouts und die von ME/CFS können in der Symptomatik (Erschöpfung/geringe Belastbarkeit) ähnlich sein.
Ich habe daher diesen Fragebogen für eine erste Selbsteinschätzung sehr hilfreich gefunden:
#AutistischerBurnout #mecfs #Autismus
#LebenMitAutismus #LebenMitHochbegabung #SpoonieLife #unsichtbareBehinderung #InvisibleDisability #autisticBurnout
edit: #
✳️ langes Telefonat mit einer lieben Freundin 🥰🙏🏻
✳️ Überraschungsanruf von meinem kleinen Bruder 💕
✳️ sehr ruhiger Dekompressionstag 😌
#GuteNacht ✨🌙
🦋
kit lecter 🦇👹def paying for yesterday, it's hitting me hard today, completely knackered.
something new though: my eyes started hurting. like, my eyeballs, as if they were strained? no idea what the heck that's about, since I barely looked at a screen. today still really uncomfy, even with eyes closed.
not happy about this development, nor the sometimes blurry vision. /grumbles 
#MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #ChronicIllness #PostExertionMalaise #PostExertionalMalaise #TheConsesOfMyQuences
something new though: my eyes started hurting. like, my eyeballs, as if they were strained? no idea what the heck that's about, since I barely looked at a screen. today still really uncomfy, even with eyes closed.
not happy about this development, nor the sometimes blurry vision. /grumbles
#MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #ChronicIllness #PostExertionMalaise #PostExertionalMalaise #TheConsesOfMyQuences
✳️ PC fährt wieder hoch, thanks brother 🙏🏻🥰
✳️ wunderschönen Nachmittag mit einer lieben Freundin und ihrer Familie gehabt
✳️ Längere Autofahrt gut geschafft. 💪🏻
#GuteNacht ✨🌙
🦋
one of the (many) downsides of having a chronic illness and in particular experiencing post-exertion malaise, is that you need to decide which activities are worth it or not.
I'd purposefully kept myself on mostly bed rest the last few days, to avoid a potential flare-up since I was having somewhat not good days, in preparation of going out to see my friend today.
now, my pain and fatigue levels are approaching critical, and I feel like shite, and I expect to be paying for it for at least the next week.
but mental health wise, it was so fucking worth it. I had a great time.
but fuck if I don't hate the conses of my quences.
#MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #ChronicIllness #PostExertionMalaise #PostExertionalMalaise #TheConsesOfMyQuences
I'd purposefully kept myself on mostly bed rest the last few days, to avoid a potential flare-up since I was having somewhat not good days, in preparation of going out to see my friend today.
now, my pain and fatigue levels are approaching critical, and I feel like shite, and I expect to be paying for it for at least the next week.
but mental health wise, it was so fucking worth it. I had a great time.
but fuck if I don't hate the conses of my quences.
#MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #ChronicIllness #PostExertionMalaise #PostExertionalMalaise #TheConsesOfMyQuences
back from my afternoon out with D!
D and I always have lunch at the garden centre (they do really good gf food for my coeliac arse), and also: plants!
I got a spider plant, a Moroccan mint (for mint tea!) and string of pearls.
It also means Floki got his favourite treats: doggy mini cupcakes. He hounded me for them, as soon as I came through the door. Look at this cuties! (also got myself a treat, the best gf brownie I know that I can only ever get there)
the rollator was also a success, if somewhat cumbersome to get in and out of the boot. I am now gonna not move at all and rest while cuddling with the pup to try and avoid a flare-up since this is the 1st time I've been out since November and I'd rather play it safe. 
#TheFlokiPup #DogsOfMastodon #DogsOfSharkey #DogsOfFedi #DogsOfFediverse #DailyDoggo #AdoptDontShop #FediDogs #Doggos #MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #MobilityAid #Rollator #MobilityAidUser
D and I always have lunch at the garden centre (they do really good gf food for my coeliac arse), and also: plants!
I got a spider plant, a Moroccan mint (for mint tea!) and string of pearls.
It also means Floki got his favourite treats: doggy mini cupcakes. He hounded me for them, as soon as I came through the door. Look at this cuties! (also got myself a treat, the best gf brownie I know that I can only ever get there)
the rollator was also a success, if somewhat cumbersome to get in and out of the boot. I am now gonna not move at all and rest while cuddling with the pup to try and avoid a flare-up since this is the 1st time I've been out since November and I'd rather play it safe.
#TheFlokiPup #DogsOfMastodon #DogsOfSharkey #DogsOfFedi #DogsOfFediverse #DailyDoggo #AdoptDontShop #FediDogs #Doggos #MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #MobilityAid #Rollator #MobilityAidUser
and having cuddles with the pup before I start getting ready. I'm also going to give the rollator a spin instead of using my cane. It'll be much easier on me re pain if I can sit instead of stand still. also, balance, can't forget better balance!
#MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #MobilityAid #Rollator #MobilityAidUser
#MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #MobilityAid #Rollator #MobilityAidUser
Tag 44
5 Minuten, Stufe 4/8, 123 Schläge, 0,68 km
Guten Morgen ☀️🚣🏻♀️
Nach gut 14 Tagen mit Erkältung usw. geht es endlich weiter, erstmal sachte... 🙏🏻
Schönes Wochende, liebe Fedis ☀️
🦋
#GutenMorgen #Rudern #Ergometer #Sport #Autismus #LebenMitAutismus #LebenMitHochbegabung #SpoonieLife
✳️ meinen Balkon vom Grünspan befreit
✳️ der erste wärmere Tag des Jahres
✳️ die Meisen sind wieder da 🥰
#GuteNacht ✨🌙
🦋
