Riiiight, I hate tracing patterns to fabric on the floor because POTS. I get so light-headed when I stand up after leaning over the fabric.

Anyways, lunch is electrolyte water+salty buttered pasta+dino nuggets, with veggies on the side.
#pots_syndrome

Episode 2.6 is up on YouTube today. Erin Alladin’s new e-book “Gentle Gardening: A Guide for Uncooperative Bodies” is transformative, specifically covering the issues of gardening with chronic fatigue and the other complex disabilities that can accompany it, and reframing gardening as an accessible and fun activity. Ariel talks to Erin in this episode about her journey with gardening to where she is now, the book, a bit about gardening on Turtle Island as a settler, and tackling the gardener’s mindset and impostor syndrome that may come with it.

https://youtu.be/Qeb3gXemWIM

#GentleGardening #Spoonie #Spoonies #GardeningWithDisabilities #solarpunk #SolarpunkPresentsPodcast #pots_syndrome #gardening #disability #Crafting #DIY #community

Gentle Gardening on Limited Spoons with Erin Alladin

YouTube
I almost went had first into the kitchen counter a little while ago. I got up from bed, closed the window blinds, and headed to the kitchen about 15 feet away. As I rounded the corner I suddenly felt my head get lighter and my legs started acting like I had just left a bar at 2am on a Saturday when I was in college. 🥴😵‍💫😧🙀🤦🏻‍♂️
It was all I could do just to hold myself up leaning on the counter and yelp for my caretaker to help me. It wasn’t much better holding onto her and trying to wobble back to bed. SHEESH
#LongCovid #LongCovidSupport #LongCovidSucks #POTS_Syndrome #PEM_PostExertionalMalaise
#LongCovidSucksAndYouDoNotWantIt
#StillSick #MillionsMissing #CovidIsNotOver #MaskUpUSA #MaskUp

https://sfba.social/@CrankyCyborg/112313037551357124
Matt Pritchett 📷♿️ (@[email protected])

Constantly hoping and praying for one day without all the pain and fatigue from hell. Hasn’t happened yet.😩😮‍💨 Someone send me a couple large bags of morphine and a couple ugly, but really good at their job, nurses. #chronicillness #chronicpain #cfsme #POTS_Syndrome etc https://mastodon.social/@effinbirds/112286949914109214

SFBA.social

Constantly hoping and praying for one day without all the pain and fatigue from hell. Hasn’t happened yet.😩😮‍💨
Someone send me a couple large bags of morphine and a couple ugly, but really good at their job, nurses.

#chronicillness #chronicpain #cfsme #POTS_Syndrome etc https://mastodon.social/@effinbirds/112286949914109214

My partner struggles daily with #pots_syndrome. She takes diphenhydramine (Benadryl) for her #gastroparesis, but that makes her BP jump. She has meds that can keep them down, but lately it seems like her BP is either spiking or tanking. It's gotten so bad that she can barely sit up in bed without having an emergency. Is there anyone who can recommend some non-chemical ways to help with POTS or GP?

#chronicillness
#caregiver
#PosturalOrthostaticTachycardiaSyndrome

What are your lowest spoon ways to celebrate #Halloween & #Samhain? 🎃👻

I love this time of year but don't have a lot of energy right now. Specific ideas & references are hugely appreciated, I can come up with vagueness like "candle? tarot? spooky soundscapes?" but cognitive is hard with specifics 🍁🕯️

/ #spoonie #longcovid #mecfs #pots_syndrome #mcas

Every fvcking day for years...
#ChronicFatigueSyndrome #ChronicPain
#NervePain #LongCovid #MECFS #POTS_Syndrome

Over it, hate it, need to find treatments or a cure or send me to the other side of this black hole. https://mastodon.social/@effinbirds/111086540086224697