#POTS_Syndrome #PEM_PostExertionalMalaise
I WANTED NONE OF THESE BUT I’VE GOT THEM ALL AND MORE #FML https://mastodon.social/@effinbirds/112893984967426766
Episode 2.6 is up on YouTube today. Erin Alladin’s new e-book “Gentle Gardening: A Guide for Uncooperative Bodies” is transformative, specifically covering the issues of gardening with chronic fatigue and the other complex disabilities that can accompany it, and reframing gardening as an accessible and fun activity. Ariel talks to Erin in this episode about her journey with gardening to where she is now, the book, a bit about gardening on Turtle Island as a settler, and tackling the gardener’s mindset and impostor syndrome that may come with it.
#GentleGardening #Spoonie #Spoonies #GardeningWithDisabilities #solarpunk #SolarpunkPresentsPodcast #pots_syndrome #gardening #disability #Crafting #DIY #community
Constantly hoping and praying for one day without all the pain and fatigue from hell. Hasn’t happened yet.😩😮💨 Someone send me a couple large bags of morphine and a couple ugly, but really good at their job, nurses. #chronicillness #chronicpain #cfsme #POTS_Syndrome etc https://mastodon.social/@effinbirds/112286949914109214
Constantly hoping and praying for one day without all the pain and fatigue from hell. Hasn’t happened yet.😩😮💨
Someone send me a couple large bags of morphine and a couple ugly, but really good at their job, nurses.
#chronicillness #chronicpain #cfsme #POTS_Syndrome etc https://mastodon.social/@effinbirds/112286949914109214
Yeah 🙁🤕 because
#chronicillness sucks and it’s Thursday and…
#LongCovid #chronicpain #CFSME #ME_CFS #ChronicFatigue #POTS_Syndrome #mercuryretrograde #MercuryInRetrograde https://mastodon.social/@effinbirds/111576329986687500
My partner struggles daily with #pots_syndrome. She takes diphenhydramine (Benadryl) for her #gastroparesis, but that makes her BP jump. She has meds that can keep them down, but lately it seems like her BP is either spiking or tanking. It's gotten so bad that she can barely sit up in bed without having an emergency. Is there anyone who can recommend some non-chemical ways to help with POTS or GP?
#chronicillness
#caregiver
#PosturalOrthostaticTachycardiaSyndrome
What are your lowest spoon ways to celebrate #Halloween & #Samhain? 🎃👻
I love this time of year but don't have a lot of energy right now. Specific ideas & references are hugely appreciated, I can come up with vagueness like "candle? tarot? spooky soundscapes?" but cognitive is hard with specifics 🍁🕯️
Every fvcking day for years...
#ChronicFatigueSyndrome #ChronicPain
#NervePain #LongCovid #MECFS #POTS_Syndrome
Over it, hate it, need to find treatments or a cure or send me to the other side of this black hole. https://mastodon.social/@effinbirds/111086540086224697