Why does normal life start to feel overwhelming when you’re chronically ill? Light feels brighter. Sound feels louder. Pain feels worse and stress hits harder. When microglia stay activated, the brain can get stuck in a low-grade alarm state. The problem is not that you’re weak. The problem may be that your system has become over-alert.

Following along as I break this down step by step.

Get my book here: https://a.co/d/0flq8eEa

#chronicillness
#lymedisease
#moldillness
#chronicfatigue

Today in #ChronicFatigue : I hit a week of exercising every day, without skipping any. And given it has been 15 months since I stopped work, and this is the first time, I feel the need to celebrate that. In this state it is so easy to do too much and knock yourself out for the day(s) after.

It does feel a bit strange to celebrate though, because exercise in this context is 10 minutes at 4.5 km/h on a treadmill. For those of you not used to metric measures, this is a ludicrously minimal amount of exertion; I normally walk at around 6 km/h and ten minutes is, well, ten minutes. And if I try and do this twice too close together (like walking to get an ice cream, sitting for half an hour, and walking back) I wreck my energy levels and sleep for the following several days. #PostViralFatigue #LongCovid

Hi there,

I just wanted to surface a Reddit post here on the fediverse. A very severe/extreme ME/CFS sufferer is currently in a precarious situation and needing financial support.

Her name is Ali and you can read more about her situation on Reddit here:

https://www.reddit.com/r/cfs/comments/1t11zip/fundraiser_for_ali_veryextremely_severe_me/

Thanks.

#MECFS #MyalgicEncephalomyelitis #CFS #MyalgicE #ChronicIllness #ChronicFatigue #ChronicFatigueSyndrome #spoonie #spoonies

xoxo.zone/users/Ashedryden/s...

Oof. This. The combination of #adhd and #chronicfatigue is a life of constant war between "you should rest immediately when you need to" and "here is your reminder of critical thing that if you don't do it right now it will drop into a black hole for ever"

I have washing up’d! (Raised the plates? Levitated the dishes? Why do we wash ‘up’ anyway?)

English be weird. And yes, it may seem strange to some of you that having done the washing up is worth celebrating but sometimes it most definitely is: blog.mavnn.eu/2022/10/14/adh... #adhd #chronicfatigue