Jean-Marc AutexierDie Grenzen der Autonomie - Wie Post-Covid und ME/CFS das Leben verändern https://www.deutschlandfunk.de/wie-postcovid-und-me-cfs-das-leben-veraendern-100.html #me_CFS #postCovid
Thế Giới Trong Tầm TayNghiên cứu mới ở Úc chỉ ra rằng hội chứng mệt mỏi mãn tính (ME/CFS) có dấu ấn sinh học, không chỉ là vấn đề tâm lý. Những phát hiện này mở ra cơ hội cho chẩn đoán nhanh hơn và phương pháp điều trị hiệu quả hơn. Tìm hiểu thêm về cuộc nghiên cứu này! #ME_CFS #NghiênCứu #YHọc #SứcKhỏe https://ift.tt/RILK3q0 https://ift.tt/RILK3q0
Nghiên cứu của Úc phát hiện dấu ấn sinh học trong hội chứng mệt mỏi mãn tính - Thế Giới Trong Tầm Tay
Nghiên cứu mới ở Úc tiết lộ bất thường trong hệ năng lượng và miễn dịch ở hội chứng mệt mỏi mãn tính (ME/CFS), mang lại hy vọng cho việc chẩn đoán nhanh hơn và chăm sóc bệnh nhân tốt hơn.
Lilly HunterI wonder if this new mitochondria technology would help cure people with #me_cfs? https://www.pnas.org/doi/10.1073/pnas.2505237122
Norbert_R 🐘
🦣#Synapsen – ein Wissenschaftspodcast:
#LongCovid: Wo stehen wir?
Auch in Jahr sechs nach Beginn der #Corona-Pandemie leiden Hunderttausende an Long Covid. Welche Erklärungen und Therapien gibt es mittlerweile?
1,5 Millionen Menschen in Deutschland leiden einer Schätzung der #ME_CFS Foundation zufolge an schwerem Long Covid oder ME/CFS. Doch noch immer mangelt es an wirksamen Therapien und Versorgung.
Webseite der Episode: https://www.ndr.de/nachrichten/info/139-long-covid-wo-stehen-wir,audio-347486.html
Mediendatei: https://ndr-podcast.ard-mcdn.de/progressive/2025/1203/AU-20251203-1832-1500.mp3
talkshow
Die Versprechen gebrochen
Gesundheitsministerin Ni#na #Warken und Forschungsministerin #DorotheeBär lesen in einem Video Briefe von #ME_CFS-Betroffenen vor. Jetzt #kürzt die Regierung bei der #Erforschung der Erkrankung. Deshalb erhalten sie hier noch einen Brief
Von Frédéric #Valin
https://www.taz.de/!6120168
Fiona CraigDavid Tuller's annual crowdfunding campaign to fund his work at the University of Berkely debunking bad science.
Ten years ago this month, David Tuller launched Trial By Error with a 15,000-word investigation of the fraudulent PACE trial for ME/CFS.
Since then, it's turned into a 10 year odyssey unpicking nonsense research as it's published.
Much more information about David's work and the funding link are here:
https://crowdfund.berkeley.edu/project/47768
El, out of spoons errorMy therapist says things like, "When you're climbing a mountain, sometimes you have to climb down to find a safer way up."
I know this. I know that having to start over again doesn't undo previous wins.
But it's like those Brain and Heart comics – knowing and feeling can be very different things.
So, I know I've made progress while feeling like I have not.
And I'm tired of it.
I managed 3 hours total downstairs yesterday, including 15 minutes of rereading a physical book (Persepolis by Marjane Satrapi), and 2 x 15 minutes of spinning (using a drop spindle and a static hold.) And I also managed to shower without help, though I couldn't wash my hair (overdue to be buzzed.)
I still get frustrated sometimes at how different my life is to how it was. These small wins seem so very small at those times.
They are still wins. Must remember that.
Ivi Choc#FYI #me #cfs #me_cfs #postcovid #longcovid #fatigue #fatiguesyndrome #medicine #science
Why you can't move in fatigue syndrome.
Microglia inflammation in the brain completely depletes the brain of serotonin, which is mandatory to even TRY to move.
(Immobility has a good reason, the underlying infections/eg. viruses like EBV, SARS-CoV2 can severely disturb energy transport on cellular level in the body, so never force activity, that would backfire badly!)
