Show threadkit lecter 🦇👹2d ago
not a good day today. not yet a really bad one, but fatigue and pain are higher than 'comfortable'. I shouldn't be surprised. I've had nearly a full week of good day streak, my body was bound to say “well, enough of thaf, can't have you forgetting,” sooner or later. no appetite and extra brain fog doesn't help matters. at least floki is keeping me company while I rest. here's hoping it doesn't devolve into a full blown flare-up and I'm well enough to socialise outside Saturday.

#MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #BrainFog #BrainFogSucks #FlareUps
Show threadkit lecter 🦇👹3d ago
and just remembered that it's not the metaphorical eggs that are spilled..... 'tis the beans or the tea..... ​​

yeah, nope, tonight is not good ​​​​

#BrainFogSucks #BrainFog #SpoonieLife #Spoonie #ChronicFatigue #ChronicPain #CFSME #MECFS
kit lecter 🦇👹3d ago
you know the brain fog and cognitive functions are not good, when you literally spill the eggs all over the counter, not only once, but twice, while trying to make yourself an easy dinner you've made lots of time and have it down to a spoons saving science..... ​​

#MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #BrainFog #BrainFogSucks #HandEyeCoordination
Aileen224d ago

#cfs/me
#cfsme
#mecfs

Raum Osnabrück

Eine Freundin sucht im Raum Osnabrück eine/n NeurologIn, der/die CFS PatientInnen aufnimmt und sich auskennt bzw. diese Erkrankung überhaupt ernst nimmt. (Ihre Worte, aber leider teilweise realistisch.)

Ist dringend. 🚨

Tom Kindlon6d ago

(US)
Tell Congress: Fund ME/CFS Research Now

Deadline is April 15 I believe

https://solvecfs.quorum.us/campaign/157943/

Image is from the AMMES April 2026 newsletter

#MEcfs #PwME #ME #MyalgicE
@mecfs
#CFSME #MEeps #CFIDS #SEID #NeuroME #CFS #MyE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

Brain Stew (Idris)Apr 9

Good news, my safe foods I’d been reacting to these last few weeks has gone back to lower reaction. It’s my last lot of antibiotics tomorrow, so looks like being ill made everything worse, which makes sense.

When I went to the drs last week, they were surprised I didn’t know I had strep throat. I said I’m just used to feeling really ill and being told it’s fibromyalgia, or just something I have to deal with, I hadn’t even gone about my sore throat snd earache 😂 This was a sympathetic locum, who said it shouldn’t be like this.

#ChronicIllness #Fibromyalgia #Fibro #ME #CFSME #ChronicPain #MCAS #Anxiety #Perimenopause #Depression #Agoraphobia #ADHD #AuDHD #Autistic #Palpatations probably more

kit lecter 🦇👹Apr 8
#WritersCoffeeClub Apr. 08 — Do you do warm-ups before or cool-downs after a writing session?

No, to either. Unless re-reading what I last wrote counts as a warm-up? No idea what a cool-down from writing would look like. Actually, does gently rotating and fisting then stretching my aching hands count? It is mandatory if I don't want the joints pains to get worse, and I tend to get pins and needles after a while, so it helps set things back to normal (or what's normal for me, anyway).

#LowSpoonsWriter #MECFS #CFSME #ChronicPain #ChronicFatigue #SpoonieLife
kit lecter 🦇👹Apr 8
today is cold and grey again. so kinda meh. but the pain and fatigue aren't too bad, considering yesterday's excesses. touch wood it stays like that. mostly rest today though.

I hate how my mood and symptoms are linked to the weather though.
I need to be sent to the sunny seaside for my health, like a Victorian invalid. ​​

#CFSME #MECFS #ChronicFatigue #ChronicPain #Spoonie #SpoonieLife #PostExertionMalaise
kit lecter 🦇👹Apr 7
I was feeling so well this morning that I decided it was high time to have a wash and change the bedlinens. yay for the accomplishment! the unexpected counter cleaning (including moving the bloody heavy microwave), not so much.
I am now paying for the exertion. pain is not so good. but I have clean linens and am wearing clean indoor clothes instead of PJs, so it is fine. I don't plan on doing anything else physically. now let's just hope the fatigue doesn't hit too and it let's me get some non moving stuff done.

#CFSME #MECFS #ChronicFatigue #ChronicPain #Spoonie #SpoonieLife #PostExertionMalaise
Show threadkit lecter 🦇👹Apr 2
was extra tired this morning, as I was distracted out of going to bed at a reasonable time, but basking in the sun while Floki was in the garden helped charge some batteries, even if not the spoons drawer.

#CFSME #MECFS #ChronicFatigue #ChronicPain #Spoonie #SpoonieLife