Irish ME/CFS AssociationWe were involved in helping to organise this interview.
We think it is likely in the Donegal Democrat newspaper this week as Aoife works for them
https://www.donegallive.ie/news/milford-md/there-is-always-light-at-the-end-of-the-tunnel-8646991
Tom Kindlon4/
“On the theme of personal burden and quality of life, another stated, ““She said, “My life has become an inhumane existence.” She left a husband and two teenaged children whom she referred to when she said, “I believe they have lost their mother to ME.””
@mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME #millionsmissing
kit lecter 🦇👹def paying for yesterday, it's hitting me hard today, completely knackered.
something new though: my eyes started hurting. like, my eyeballs, as if they were strained? no idea what the heck that's about, since I barely looked at a screen. today still really uncomfy, even with eyes closed.
not happy about this development, nor the sometimes blurry vision. /grumbles 
#MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #ChronicIllness #PostExertionMalaise #PostExertionalMalaise #TheConsesOfMyQuences
something new though: my eyes started hurting. like, my eyeballs, as if they were strained? no idea what the heck that's about, since I barely looked at a screen. today still really uncomfy, even with eyes closed.
not happy about this development, nor the sometimes blurry vision. /grumbles
#MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #ChronicIllness #PostExertionMalaise #PostExertionalMalaise #TheConsesOfMyQuences
one of the (many) downsides of having a chronic illness and in particular experiencing post-exertion malaise, is that you need to decide which activities are worth it or not.
I'd purposefully kept myself on mostly bed rest the last few days, to avoid a potential flare-up since I was having somewhat not good days, in preparation of going out to see my friend today.
now, my pain and fatigue levels are approaching critical, and I feel like shite, and I expect to be paying for it for at least the next week.
but mental health wise, it was so fucking worth it. I had a great time.
but fuck if I don't hate the conses of my quences.
#MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #ChronicIllness #PostExertionMalaise #PostExertionalMalaise #TheConsesOfMyQuences
I'd purposefully kept myself on mostly bed rest the last few days, to avoid a potential flare-up since I was having somewhat not good days, in preparation of going out to see my friend today.
now, my pain and fatigue levels are approaching critical, and I feel like shite, and I expect to be paying for it for at least the next week.
but mental health wise, it was so fucking worth it. I had a great time.
but fuck if I don't hate the conses of my quences.
#MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #ChronicIllness #PostExertionMalaise #PostExertionalMalaise #TheConsesOfMyQuences
back from my afternoon out with D!
D and I always have lunch at the garden centre (they do really good gf food for my coeliac arse), and also: plants!
I got a spider plant, a Moroccan mint (for mint tea!) and string of pearls.
It also means Floki got his favourite treats: doggy mini cupcakes. He hounded me for them, as soon as I came through the door. Look at this cuties! (also got myself a treat, the best gf brownie I know that I can only ever get there)
the rollator was also a success, if somewhat cumbersome to get in and out of the boot. I am now gonna not move at all and rest while cuddling with the pup to try and avoid a flare-up since this is the 1st time I've been out since November and I'd rather play it safe. 
#TheFlokiPup #DogsOfMastodon #DogsOfSharkey #DogsOfFedi #DogsOfFediverse #DailyDoggo #AdoptDontShop #FediDogs #Doggos #MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #MobilityAid #Rollator #MobilityAidUser
D and I always have lunch at the garden centre (they do really good gf food for my coeliac arse), and also: plants!
I got a spider plant, a Moroccan mint (for mint tea!) and string of pearls.
It also means Floki got his favourite treats: doggy mini cupcakes. He hounded me for them, as soon as I came through the door. Look at this cuties! (also got myself a treat, the best gf brownie I know that I can only ever get there)
the rollator was also a success, if somewhat cumbersome to get in and out of the boot. I am now gonna not move at all and rest while cuddling with the pup to try and avoid a flare-up since this is the 1st time I've been out since November and I'd rather play it safe.
#TheFlokiPup #DogsOfMastodon #DogsOfSharkey #DogsOfFedi #DogsOfFediverse #DailyDoggo #AdoptDontShop #FediDogs #Doggos #MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #MobilityAid #Rollator #MobilityAidUser
and having cuddles with the pup before I start getting ready. I'm also going to give the rollator a spin instead of using my cane. It'll be much easier on me re pain if I can sit instead of stand still. also, balance, can't forget better balance!
#MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #MobilityAid #Rollator #MobilityAidUser
#MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #MobilityAid #Rollator #MobilityAidUser
not a good day today. not yet a really bad one, but fatigue and pain are higher than 'comfortable'. I shouldn't be surprised. I've had nearly a full week of good day streak, my body was bound to say “well, enough of thaf, can't have you forgetting,” sooner or later. no appetite and extra brain fog doesn't help matters. at least floki is keeping me company while I rest. here's hoping it doesn't devolve into a full blown flare-up and I'm well enough to socialise outside Saturday.
#MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #BrainFog #BrainFogSucks #FlareUps
#MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #BrainFog #BrainFogSucks #FlareUps
and just remembered that it's not the metaphorical eggs that are spilled..... 'tis the beans or the tea..... 
yeah, nope, tonight is not good 
#BrainFogSucks #BrainFog #SpoonieLife #Spoonie #ChronicFatigue #ChronicPain #CFSME #MECFS
yeah, nope, tonight is not good
#BrainFogSucks #BrainFog #SpoonieLife #Spoonie #ChronicFatigue #ChronicPain #CFSME #MECFS
you know the brain fog and cognitive functions are not good, when you literally spill the eggs all over the counter, not only once, but twice, while trying to make yourself an easy dinner you've made lots of time and have it down to a spoons saving science.....
#MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #BrainFog #BrainFogSucks #HandEyeCoordination
#MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #BrainFog #BrainFogSucks #HandEyeCoordination
(US)
Tell Congress: Fund ME/CFS Research Now
Deadline is April 15 I believe
https://solvecfs.quorum.us/campaign/157943/
Image is from the AMMES April 2026 newsletter
#MEcfs #PwME #ME #MyalgicE
@mecfs
#CFSME #MEeps #CFIDS #SEID #NeuroME #CFS #MyE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
