Mastodawn

def paying for yesterday, it's hitting me hard today, completely knackered.
something new though: my eyes started hurting. like, my eyeballs, as if they were strained? no idea what the heck that's about, since I barely looked at a screen. today still really uncomfy, even with eyes closed.
not happy about this development, nor the sometimes blurry vision. /grumbles

#MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #ChronicIllness #PostExertionMalaise #PostExertionalMalaise #TheConsesOfMyQuences

kit lecter 🦇👹4d ago

one of the (many) downsides of having a chronic illness and in particular experiencing post-exertion malaise, is that you need to decide which activities are worth it or not.
I'd purposefully kept myself on mostly bed rest the last few days, to avoid a potential flare-up since I was having somewhat not good days, in preparation of going out to see my friend today.
now, my pain and fatigue levels are approaching critical, and I feel like shite, and I expect to be paying for it for at least the next week.
but mental health wise, it was so fucking worth it. I had a great time.
but fuck if I don't hate the conses of my quences.

#MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #ChronicIllness #PostExertionMalaise #PostExertionalMalaise #TheConsesOfMyQuences

kit lecter 🦇👹4d ago

back from my afternoon out with D!
D and I always have lunch at the garden centre (they do really good gf food for my coeliac arse), and also: plants!
I got a spider plant, a Moroccan mint (for mint tea!) and string of pearls.
It also means Floki got his favourite treats: doggy mini cupcakes. He hounded me for them, as soon as I came through the door. Look at this cuties! (also got myself a treat, the best gf brownie I know that I can only ever get there)
the rollator was also a success, if somewhat cumbersome to get in and out of the boot. I am now gonna not move at all and rest while cuddling with the pup to try and avoid a flare-up since this is the 1st time I've been out since November and I'd rather play it safe.

#TheFlokiPup #DogsOfMastodon #DogsOfSharkey #DogsOfFedi #DogsOfFediverse #DailyDoggo #AdoptDontShop #FediDogs #Doggos #MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #MobilityAid #Rollator #MobilityAidUser

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kit lecter 🦇👹4d ago

and having cuddles with the pup before I start getting ready. I'm also going to give the rollator a spin instead of using my cane. It'll be much easier on me re pain if I can sit instead of stand still. also, balance, can't forget better balance!

#MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #MobilityAid #Rollator #MobilityAidUser

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kit lecter 🦇👹Apr 15

not a good day today. not yet a really bad one, but fatigue and pain are higher than 'comfortable'. I shouldn't be surprised. I've had nearly a full week of good day streak, my body was bound to say “well, enough of thaf, can't have you forgetting,” sooner or later. no appetite and extra brain fog doesn't help matters. at least floki is keeping me company while I rest. here's hoping it doesn't devolve into a full blown flare-up and I'm well enough to socialise outside Saturday.

#MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #BrainFog #BrainFogSucks #FlareUps

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kit lecter 🦇👹Apr 14

and just remembered that it's not the metaphorical eggs that are spilled..... 'tis the beans or the tea.....

yeah, nope, tonight is not good

#BrainFogSucks #BrainFog #SpoonieLife #Spoonie #ChronicFatigue #ChronicPain #CFSME #MECFS

kit lecter 🦇👹Apr 14

you know the brain fog and cognitive functions are not good, when you literally spill the eggs all over the counter, not only once, but twice, while trying to make yourself an easy dinner you've made lots of time and have it down to a spoons saving science.....

#MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #BrainFog #BrainFogSucks #HandEyeCoordination

Tom Kindlon Apr 12

(US)
Tell Congress: Fund ME/CFS Research Now

Deadline is April 15 I believe

https://solvecfs.quorum.us/campaign/157943/

Image is from the AMMES April 2026 newsletter

#MEcfs #PwME #ME #MyalgicE
@mecfs
#CFSME #MEeps #CFIDS #SEID #NeuroME #CFS #MyE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

Brain Stew Apr 9

Good news, my safe foods I’d been reacting to these last few weeks has gone back to lower reaction. It’s my last lot of antibiotics tomorrow, so looks like being ill made everything worse, which makes sense.

When I went to the drs last week, they were surprised I didn’t know I had strep throat. I said I’m just used to feeling really ill and being told it’s fibromyalgia, or just something I have to deal with, I hadn’t even gone about my sore throat snd earache 😂 This was a sympathetic locum, who said it shouldn’t be like this.

#ChronicIllness #Fibromyalgia #Fibro #ME #CFSME #ChronicPain #MCAS #Anxiety #Perimenopause #Depression #Agoraphobia #ADHD #AuDHD #Autistic #Palpatations probably more

kit lecter 🦇👹Apr 8

#WritersCoffeeClub Apr. 08 — Do you do warm-ups before or cool-downs after a writing session?

No, to either. Unless re-reading what I last wrote counts as a warm-up? No idea what a cool-down from writing would look like. Actually, does gently rotating and fisting then stretching my aching hands count? It is mandatory if I don't want the joints pains to get worse, and I tend to get pins and needles after a while, so it helps set things back to normal (or what's normal for me, anyway).

#LowSpoonsWriter #MECFS #CFSME #ChronicPain #ChronicFatigue #SpoonieLife