Mastodawn

Tom Kindlon Mar 10

News Release 9-Mar-2026

Telemedicine remains popular, but who uses it varies widely

https://www.eurekalert.org/news-releases/1119321

“Telemedicine is no longer just a pandemic workaround—it has become a routine part of care delivery,”

#chronicillness #Spoonie #ChronicallyIll #ChronicIllnesses #Spoonies

Tom Kindlon Mar 7

Years of scapegoating rhetoric has led to ‘envy & resentment’ of those with blue badges, research finds

Note: blue badge = UK name for disabled parking permit

https://www.disabilitynewsservice.com/years-of-scapegoating-rhetoric-has-led-to-envy-and-resentment-of-those-with-blue-badges-research-finds/

Screenshot from AMMES March 2026 Newsletter

#Disabled #Disability #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots

Dining and Cooking Mar 4

Scientists Find a Deficiency in This Vitamin Increases Inflammation

Study: Low Vitamin D May Increase Inflammation Elena Noviello – Getty Images Low vitamin D levels may contribute to chronic inflammation, according to a s…
#dining #cooking #diet #food #Nutrition ##inflammation #chronicillnesses #chronicinflammation #Jackienewgent #nutrition #vitamind #VitaminDdeficiency #vitaminDlevels
https://www.diningandcooking.com/2540588/scientists-find-a-deficiency-in-this-vitamin-increases-inflammation/

FJ Brodie Mar 2

"What do you do?", "had a busy day?" And similar questions are those I dread. I rarely have to meet acquaintances now, thankfully.

But even the grocery drivers can ask that. It's friendly, it's conversational, it's shallow (in an appropriate way, not derogatory).

Even "how are you?" Is a greeting, not a question people want an honest answer to.

This writer thinks "what do you live for?" would be better.

#chronicpain #ChronicIllnesses #chronicillness
https://whatapain.co.uk/what-do-you-do

What Do You Do? (The Dreaded Question) | What a Pain

When you can't work because of chronic illness, "what do you do?' is a tough question. What if we started asking people what we live to do instead?

What a Pain

Bowie Mar 2

Chronic illness be like...

#chronicillness #chronicillnesses #chronicallyill #disability #disabled #chronicillnesshumor

Tom Kindlon Feb 28

"Rather than holding onto the idea that the only life worth living is one without disease, consider expanding your definition of hope to include connection, purpose, & meaning under any circumstances"

From:
Recap: Support group: Coping with Depression & Emotional Overload
https://batemanhornecenter.org/wp-content/uploads/2026/02/20260217-Support-Group-Recap.pdf

#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

Tom Kindlon Feb 28

🧵
"The Quiet Art of Extending a Life: Notes on Assistive Tools, Capacity, and the Dignity of Support"

https://onelifelivedwell.substack.com/p/the-quiet-art-of-extending-a-life

Another thoughtful post from this OT who specialises in ME/CFS & long Covid

She calls such devices "capacity extenders".

#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots
#Disabled
#Disability

Tom Kindlon Feb 28

🧵
Another thoughtful blog post from this blogger:

"Some people feel validated by an FND diagnosis; we should treat these people with respect, understanding and compassion (even if we think they're wrong). It’s complicated!" by K. Johnstone

https://mecfs.substack.com/p/some-people-feel-validated-by-an

#neisvoid
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

Tom Kindlon Feb 14

🧵
"Somatic symptom disorder: Why your doctor doesn't believe you're really sick: SSD is a mainly-female condition which medicine treats as real and common, but which has no solid scientific basis"

https://mecfs.substack.com/p/somatic-symptom-disorder-why-your

I have been impressed by this blogger.

#neisvoid
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll