@mutualaid everything hurts, especially my head and hips. I feel so weak and exhausted and I worry about sleep tonight because this will be the second night in a row of being unmedicated. I wasn’t able to do much of anything today because of the pain and brain fog and I’m just really hoping something good happens.
I’m especially upset knowing even if we somehow raise enough overnight to get our meds in the morning, we’ll spend the next two days in pain and using what we can get to try recovering from today and yesterday, which will leave us running out again in a few days.
#chronicPain #DisabledMutualAid #DisabilityMutualAid #DisabledCrowdfund #DisabilityCrowdfund
By the time the gummy kicked in, I'd already forgotten that I took it and why. I'm like, oh I just want to lie here with my eyes closed, wonder why. Oh yeah. I woke up and chose indica, because I've been overdoing it and needed some chemical restraint to keep me from doing more damage. That's the ticket. So it's not a worse state of PEM. It's a deliberate choice that I made in the cold light of sobriety. Cool. #mecfs #pem #memory #thcpainkiller #gummy #chronicillness #chronicpain

Postdoctoral scholar Neuroimmunology/Pain
Michigan State University

Excited to recruit a Postdoctoral scholar to join the Laumet Lab www.laumetpainlab.com
We study Neuroimmunology of pain in mice and human samples.

See the full job description on jobRxiv: https://jobrxiv.org/job/michigan-state-university-27778-postdoctoral-scholar-neuroimmunology-pain/

#chronicpain #genomics #i...
https://jobrxiv.org/job/michigan-state-university-27778-postdoctoral-scholar-neuroimmunology-pain/?fsp_sid=10545

Postdoctoral scholar Neuroimmunology/Pain

Post a job in 3min, or find thousands of job offers like this one at jobRxiv!

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Equine-Assisted Therapy: But What Do the Horses Think? - JSTOR Daily

An emerging critique examines the moral and cultural assumptions behind horse-based interventions.

JSTOR Daily
night not very restful, still. but didn't wake up with a flare up, so it's a win.
pain levels, however, are higher than I'd like, thanks to yesterday's shenanigans. today will be a strictly minimum activity day.
ah well. we can't win them all.

#CFSME #MECFS #ChronicFatigue #ChronicPain

If you deal with #chronicpain, you know:

Baseline doesn’t mean you’re ok.

Flare ups aren’t “just bad days.”

Been one of my biggest struggles for 5 years.

So I built a tool inside @3mpwrApp to track it, understand it, & take back some control.

Built from lived experience.

I got a little floor scrubbing machine. It came with 2 rechargable power tool batteries and several kinds of scrubbing disks, including 2 power brushes. It has a long, adjustable handle, and a water tank that squirts the floor at a button push. Where has this been all my life?! I can sit on a rolling chair and clean up the cat mess stains without bending down and causing agony. I only managed to do about 6 sq ft, but #disability teaches us patience. #assistivetech #chronicpain
Trying to figure out if being in this much pain the day BEFORE the pressure drop means tomorrow is going to be better or worse?
#ChronicPain #NEISvoid

I'm really struggling with chronic pain due to my genetic disorders, am not able to afford meds, & I'm *not* okay.

If anyone can help, that would be so appreciated, but no one has to! I'm sorry I'm even asking. I need $70. I hate asking for help, I feel like a jerk, but I don't have another option.

PayPal paypal.me/motleychick
Cashapp $izzi6
Venmo @egdirbretla

#NEISvoid #hEDS #EDS #MECFS #chronicpain #chronicillness #spoonie #spooniechat #longcovid #marfansyndrome #POTS #disabled