Be sure to check out the new Ehlers-Danlos syndromes news and zebra resource newsletter and page:

EDS S.H.A.R.E

Started by Christie Cox this year, it's loaded with great news, tips and info:

https://www.edsshare.com/

#Hypermobility #EhlersDanlosSyndromes #EDS #Fibromyalgia #NEISvoid #MedEd

Stimpunks is a DIY humanizing rebellion.
Stimpunks’ work is expansive, beautiful, liberating.
Stimpunks is a treasure trove of everything important to the neurodivergent and disabled community.
Stimpunks is the best autism resource on the planet.
Stimpunks has a great, up-to-date glossary that reflects the breadth and richness of this global neurodivergent community.
I honestly don’t think I’ve learned more from anyone else.

https://stimpunks.org/about/testimonials/

There's a tracker app designed for people with chronic health problems who'd like help with pacing!

I just heard about it from a blogger I follow on Tumblr, and thought I'd spread the word.

Blog entry: https://thebibliosphere.tumblr.com/post/774126670579908608/visible-activity-tracking-for-illness-not

App website: https://www.makevisible.com/

#chronicIllness #MECFS #fibromyalgia #POTS, #EDS

I have to keep reminding myself that I'm allowed to rest even when crazy shit is going on around me. The movement will go on, and when I am able to come back, someone else can take a break.

But right now I have bronchitis, so I need to sit the fuck down and shut the fuck up.

#chronicillness #eds #ehlersdanlossyndrome

Doctor: It seems your weight has increased since your last visit...

Patient: Ah, yes. Since my last visit, I've continued eating healthy and started working out regularly, so it's likely that any difference on the scale is related to an increase in muscle mass rather than an increase in fat, so let me know once you've converted your condescension to congratulations and we can continue this conversation.

New here? Struggling with Long Covid or think you might have Long Covid?

I’ve written a series of guides about two of the most common and difficult to diagnose comorbids: POTS and MCAS.

If you’re newly diagnosed or undiagnosed, if you’ve been told it’s “all in your head”… read on! 🧵

#LongCOVID #covidisairborne #covidisnotover #chronicillness #spoonie #pots #mcas #mecfs #Dysautonomia #eds #disability #ableism

New research from EDS Chiari Center!

#EDS linked to multiple disabling syndromes like Chiari Malformation, Tethered Cord, #POTS and Dysautonomia, Mast Cell Activation Disorder #MCAD, Styloid Hypertrophy, Myalgic Encephalomyelitis-Chronic Fatigue Syndrome #MECFS

https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2024.1484504/full