OhTWIST

@ohtwist@disabled.social
170 Followers
73 Following
214 Posts
Oh That's Why I'm So Tired! Hypermobile Ehlers-Danlos syndrome Survivor and Writer. Co-author EDS Toolkit for Doctors 2018
https://ohtwist.com

Sorry for my temporary absence again. It's hard to keep all the #SoMe plates spinning these days!

I did manage to squeeze in an amazing short vacation to the Oregon beach from which I spent two weeks recovering in August, cuz, EDS, lol.

Here's one photo:

BTW July is Disability Pride Month.

More important now than ever.

However, I dearly hope more start honoring mental health and neurodivergent needs more.

Photo of our blooming dracunculus for attention.

Reminder, as my city (Portland, Oregon) slowly digs out from an unexpected heavy snow dump yesterday (10"), that cold is also a mast cell trigger.

We won't thaw for another 36 hours, so I'm keeping some Benadryl on board or handy at all times when out.

I learned this the hard way years ago, sigh.

Good luck everyone, everywhere this week. #MCAS #EDS #HSD #hEDS #fibro #NEISvoid

Guess who landed in Facebook jail for her first time? Yup. This tweep. (What are we here, in the fediverse, tooters? Still feeling that out!)

All because I joked about kidnapping my housebound friend David tomorrow to go recycle styrofoam. 🙄

Oh well. I'd rather be AI bycatch, than know bad actors were prevailing I guess. And it's just for 24 hours. Still...!

Okay, just saw a tweet from John Marlowe go by suggesting that Kurt Cobain may have had #EDS and now I can't stop thinking about it, it makes so much sense! #NEISvoid

I also *may* know someone who can find out, but not real soon. It's been a tough year for DG.