Seeing a lot of love for this
The Atlantic
What if your body forced you to stop?
People suffering from #longCOVID, ME/#CFS, & other energy-limiting chronic illnesses, experience #fatigue that is different from everyday tiredness—& they’re often treated not just with disbelief but with contempt. *Ed Yong* speaks with Hanna Rosin on why so many experience indifference to a debilitating condition
Podcast & transcript
https://shorturl.at/hxSTW
@longcovid @mecfs #mecfs
#spoonie
2/
“All the people I know who have #LongCovid and ME and who are also health-care professionals tell me that they never learned about these conditions when they were going through their training and were completely shocked to see for themselves that a body could lack energy in these profound ways”
#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
#PwME #MyE #postcovid #MedMastodon #postcovid19 #postcovidsyndrome #pasc #pwlc
3/
“You might see someone who has PEM [post-exertional malaise] on a good day when they are trying to have a normal life. You’re not going to see them 2 days later when they're crashed & unable to move...that’s 1 of the forces that... hides the reality & scope of these conditions from public understanding."
@longcovid @mecfs #LongCovid #pwlc #pem #pese #pene #PostCovid #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
#PwME
4/
"A woman named Mary Dimmock, who’s been a longtime #MECFS advocate, told me she only understood what her son Matthew, who has ME, goes through when she watched him just melt in front of her eyes because he had a PEM crash ...she talked about her son, his color changing, his posture changing—like he just seemed to lose energy in front of her eyes, going from someone who was sitting upright at a dinner table to someone who couldn’t even manage that."
5/
"People who have #longCOVID and ME/ #CFS are very often told by doctors that they just need to push through it. That they need to exercise, that they need to, you know, show some grit, get off the bed, work out, that sort of thing. "This is in part understandable because for most health problems, exercise is a good thing. If you have PEM, it very much is not. In fact, it’s the opposite."
@longcovid @mecfs #PostCovid #MEcfs #MyalgicE #MyalgicEncephalomyelitis #PwME #MyE
6/
"One of the people I spoke to said to me: 'Fatigue is profoundly anti-capitalistic.' It means that people cannot do the thing that we expect a lot of people to do, which is to push through, to keep at it, to show grit, and so on."
#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
#PwME #MyE @longcovid @mecfs #PostCovid #LongCovid #pwlc #PostCovid19 #postcovidsyndrome #fatigue #fatigued #chronicfatigue #spoonie @spoonie
7/
"Pacing is the single most important strategy that a lot of the people I’ve talked to have taken up, and that is a way of carefully sensing how much energy you actually have and keeping your activity levels below that threshold that might lead to a debilitating PEM [post-exertional malaise] crash."
@longcovid @mecfs #longcovid #postcovid #PostCovid19 #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
#PwME #MyE
Tom Kindlon
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