"Do no harm: supporting people with ME/CFS"
https://www.csp.org.uk/frontline/article/do-no-harm-supporting-people-mecfs
"How can physiotherapists provide effective therapies while ensuring patients with this debilitating condition feel safe and supported? Physios for ME offer their thoughts"
If you learn nothing else from my thread today, please remember this:
🚨 Exercise is NOT recommended for people with ME/CFS!
Any exertion, mental or physical, is not good for people who have post-exertional malaise (PEM), sometimes called post-exertional symptom exacerbation (PESE)
This includes a significant portion of people with Long Covid.
Video with more info:
https://www.youtube.com/watch?v=wxSwYUennBA
4/n
#MEcfs #LongCovid #MillionsMissing #MEAwarenessDay #WorldMEDay #PEM #PESE
El 78,9% de los españoles ven posible una guerra nuclear (pero pese a todo son optimistas)
El 78,9% de los españoles ven posible una guerra nuclear... #el #78,9% #de #los #españoles #ven #posible #una #guerra #nuclear #(pero #pese #a #todo #son #optimistas) #Actualidad
Crawling around in the loft to find a couple of old boxes. Emptying the ashes box from the fireplace. Cleaning out and disinfecting the cat litter trays. I have a strong suspicion that my 'relaxing' Sunday morning is going return to bite me with a vengeance later.
2/
He highlights how post-exertional malaise can lead a worsening of the condition which could be permanent.
#LongCovid #MEcfs #PostExertionalMalaise #PEM #CFS #PEM #PESE
2025-8-30 Post-Exertional Symptom Exacerbation & MCAS Environmental Illness
https://www.illmarks.com/2025-8-30-post-exertional-symptom-exacerbation-mcas-environmental-illness/
#allergy #art #bodyHorror #bodyMapping #bodymapping #buildingbiology #cfs #chronicIllness #ChronicFatigueSyndrome #chronicIllness #environmentalillness #envrionmentalIllness #healthcare #healthcarereform #healthinsurance #longCovid #longcovid #mastCell #mastCellActivationSyndrome #mastCellDisease #mastcell #mastcellactivationsyndrome #mastcelldisease #mcas #me #mecfs #medicalArt #medicalactivism #medicalart #medicalblog #medicalreform #MillionsMissing #MyalgicEncephalomyelitis #pem #pese #pwLC #pwme #SciArt #scienceart #usahealthcare #ushealthcare
By @RTHM_Health
"A new study suggests that exercise doesn’t clear microclots in people with Long COVID—it just fragments them into smaller ones. These smaller clots are linked to increased inflammation and impaired oxygen transport, which may help explain post-exertional malaise (PEM) and post-exertional symptom exacerbation (PESE)—a worsening of symptoms after even mild physical or mental effort."
"Researchers observed these microclot and inflammatory changes even after submaximal exertion, highlighting the need for caution when recommending exercise-based therapies."
Want more research breakdowns like this? Sign up for our email list at https://linktr.ee/rthm_health
🔗 DOI: https://doi.org/10.21203/rs.3.rs-6717727/v1
#LongCOVID #ChronicFatigue #pwLC #PostCOVID #rthm_health #LongCOVIDResearch #PESE #PEM #IACC #COVID19 #Microclots @auscovid19
2025_6_13 I(carus) scheduled two phone calls on the same day
https://www.illmarks.com/2025_6_13-icarus-scheduled-two-phone-calls-on-the-same-day/
#bodyHorror #cfw #chronicIllness #ChronicFatigueSyndrome #longcovid #me #meCfs #mecfs #MillionsMissing #MyalgicEncephalomyelitis #pem #pese #postExertional #postexertionalmalaise #postexertionalsymptomexacerbation #pwLC #pwme
Me, to Spouse: Can you please get the...oh, what's the word? The stuff for where we sleep.
Spouse: Where is it?
Me: In the place between the stuff and the things.
Surprisingly, this was enough information for Spouse to find and fetch the freshly laundered bedding.
Ahimsa
Lon
Jon Hancock
Tom Kindlon
illmarks
Denis - The COVID info guy -
El: spoons? What spoons?