Now, there is no expectation for me to die of my #LongCovid . Even so, this article by a long-term cancer survivor (with the cancer persisting) really struck a chord with me. She reflects on how very different life looks and feels with such an illness.

It triggers thoughts about the massive changes in my own life since my diagnosis. The bulk of the life I used to have is gone, likely for good. But here I am, still frequently having happy moments, [...]
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#mecfs #pwLC

https://www.theguardian.com/society/2026/mar/22/i-have-stage-four-cancer-there-will-be-no-cure-but-death-isnt-necessarily-imminent-this-is-how-it-feels-to-live-in-the-long-middle?CMP=share_btn_url

I have stage four cancer – there will be no cure, but death isn’t necessarily imminent: this is how it feels to live in the long middle

When you are cured, the world cheers; when you are dying, it mourns. But when you are simply maintaining, the world is at a loss

The Guardian

Our latest News in Brief summary has headlines and links to further reading for ME/CFS, Long Covid, and related news for the week of Mar. 16 - 22:

Topics:
News, advocacy and articles
Coming events
Research news and commentary
Published research

https://www.s4me.info/threads/news-in-brief-march-2026.49238/#post-682549

@mecfs @longcovid

#MEcfs #PwME #LongCovid #PwLC

News in Brief - March 2026

This thread has a Science for ME 'News in Brief' post for each week in March 2026 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.

Science for ME

Developing a platform protocol for clinical trials evaluating interventions that target proposed mechanisms of Long COVID: RECOVER-VITAL

https://journals.sagepub.com/doi/abs/10.1177/17407745261422437

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver

For me the light backgrounds are easier to read, but I know that some people with ME/CFS and Long Covid can't read text on a white background.

So here are the same images (from the previous post) with dark backgrounds. (Alt text should be same as previous post)

@mecfs @longcovid

#DarkMode #MEcfs #PwME #LongCovid #PwLC #PostCovid #MedEd #ChronicIllness

Edit: Volunteers must register to get a link to Monday's kickoff session!

Register here:
https://docs.google.com/forms/d/e/1FAIpQLSdR4eWbC6OWn1LAFAJhFg_CFz2xOaLYTPzj6kjSDELhAu0fdg/viewform

🗣️ ME/CFS Advocacy Week starts on Monday, March 23

First Zoom call starts at noon Pacific, 3 pm Eastern (will be recorded)

More details in the participant toolkit, see links below.

Canva version:

https://www.canva.com/design/DAHDA3p0_NY/oTfLyW-lmGZIlbDdQfqmoA/view

PDF version:

https://solvecfs.org/wp-content/uploads/2026/03/Printable-Version-Advocacy-Week-2026-Participant-Toolkit-2.pdf

@mecfs
@longcovid

#USPol #MEcfs #PwME #LongCovid #PwLC #PostCovid #MedEd #ChronicIllness

From the US:

A phase 2a double-blind, placebo-controlled randomized trial of the SARS-CoV-2-specific monoclonal antibody AER002 in people with Long COVID

https://www.medrxiv.org/content/10.64898/2026.03.07.26347857v1

Screenshot from Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

Prevalence of Post-COVID Symptoms Across Variants of Concern and Follow-up Periods: A Systematic Review and Meta-Analysis

https://www.ijidonline.com/article/S1201-9712(26)00157-8/abstract

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver

From Austria 🇦🇹

Clinical relevance of circulating blood microaggregates and reactivation of Epstein Barr Virus in long-term Post-CoVID syndrome patients

https://www.nature.com/articles/s41598-026-42952-8

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers

Open Medicine Foundation (OMF) asks folks to add their own stories to "Voices of ME - Stories of People Living With ME/CFS"

"Your voice matters! By sharing your story, you help raise awareness and deepen understanding of ME/CFS, Long COVID, and related diseases.

Whether you're a patient, caregiver, family member, or friend, your experience is important. Submit your story today"

👉 www.omf.ngo/voices-of-m-e/

@mecfs @longcovid

#MEcfs #PwME #LongCovid #PwLC #ChronicIllness