May is Myalgic Encephalomyelitis (ME) Awareness Month.
You can help by liking and/or retooting this video. This 2017 TED talk features @jenbrea.
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #MEeps #CFSME #CFIDS #SEID #NeuroME @mecfs @cfs
Day #1
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May is Myalgic Encephalomyelitis (ME) Awareness Month.
You can help by sharing and/or liking this video. It is 3 minutes 5 seconds long.
https://www.youtube.com/watch?v=TGIo1v7KVJQ
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This film will give you an introduction to PEM (Post Exertional Malaise).
Once you've understood what PEM is about, you'll know a lot more about the debilitating chronic disease ME (Myalgic Encephalomyelitis).
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Day #2
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #MEeps #CFSME @mecfs @cfs
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May is #MyalgicEncephalomyelitis (ME) Awareness Month.
You can help by retooting this video
(9 minutes) This is ME (2020) "A short film exploring 'Spoon Theory' told through the eyes of a young woman struggling with ME/#ChronicFatigueSyndrome" https://vimeo.com/338532785 "The best thing I’ve ever done: Filmmaker with ME wants to raise awareness of hidden illness" https://www.swlondoner.co.uk/this-is-me-filmmaker-josh-pickup/
#MEcfs #CFS #MyalgicE #Spoonies #Spoonie #SpoonTheory #PwME #MEeps #CFSME #CFIDS @spoonies @mecfs @cfs
A short film exploring 'Spoon Theory' told through the eyes of a young woman struggling with ME/Chronic Fatigue Syndrome ** Follow Pickup_Films on Twitter…
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(2 minutes)
"What is ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)?"
https://www.youtube.com/watch?v=X6f4zCe2ZtA
You can help by re-tooting this short video
#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
Day #4
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May is Myalgic Encephalomyelitis (ME) Awareness Month.
You can help by re-tooting this 102-second video. "What is ME/CFS?" (excerpt from LEFT OUT, reproduced with kind permission from UpNorth Film, Norway)
#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs @cfs
Day #5
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by retooting this video. It's a preview of a documentary, formerly called "Blue Ribbon" (now called The Forgotten Plague)
(3 minutes 5 seconds)
Day #6
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #CFSME @mecfs @cfs
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by retooting this video.
It's been approved for continuing medical education in the US
Day #7
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #CFSME @mecfs @cfs
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this video. It was made by a woman, Laurel, with severe ME
Living with Severe ME
(5 minutes 13 seconds)
https://youtu.be/LvweCk44WHs
Day #8
#SevereME #SevereCFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #CFSME @mecfs @cfs
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by retooting this documentary, "Mom Needs to Lie Down".
It's a short Canadian film made in 2014. (11 minutes 25 seconds)
https://www.youtube.com/watch?v=EvrU-ciEFcM&feature=youtu.be
Day #9
@mecfs @cfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #CFSME
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by retweeting and/or liking this documentary, "Invisible".
It's a 60-minute documentary made in 2009 (but is timeless) [Skip forward to 14:50 to go to the start of "Invisible" proper]
http://cctv.org/watch-tv/programs/invisible-vermont
Day #10
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME
INVISIBLE in Vermont is the title of this panel discussion, hosted by Vermont CFIDS (Chronic Fatigue Immune Dysfunction Syndrome). Thousands of Vermonters are homebound, disabled, misdiagnosed, and misunderstood while living with the realities of Fibromyalgia, Chemical Multiple Sensitivity, Lyme Disease, Gulf War Syndrome and Chronic Fatigue Immune Dysfunction Syndrome. Panelists include: Kenneth J. Friedman PhD., Rik Carlson, both CFIDS Board Members, along with 2 members Julia Bond and Terence Naumann, MD. More information available at: www.vtcfids.org
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#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day
&
May is #MECFSawarenessmonth
Please help by retooting this 12-minute documentary which features Whitney Dafoe & others
https://youtube.com/watch?v=9_HwOUiImvw
#PwME @mecfs @cfs #SevereME #SevereMECFS
#SevereCFS #VerySevereME @SevereME
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May 12 is International Myalgic Encephalomyelitis (ME) Day (and May is ME Awareness Month) You can help by retooting this (well-made) video.
(3 minutes)
https://www.youtube.com/watch?v=IOflARSgNnE
Day #12
#MyalgicE #MyalgicEncephalomyelitis #May12 #May12th #WorldMEDay2023 #WorldMEday #MEAwarenessDay
@mecfs @cfs
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This is a short (78-second) video about postexertional malaise in ME/CFS.
It uses the battery analogy, but also highlights the effects of payback i.e. the unusual results of exertion in ME. There is no sound.
May is #MEAwarenessMonth.
You can help raise awareness and understanding by retweeting and/or liking this video
https://www.youtube.com/watch?v=THlRW_YGZmE
Day 13
@mecfs @cfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #CFSME #MEeps
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(2 minutes)
"How does it feel to live with ME/CFS? Patients describe what it's like"
May is ME Awareness Month.
You can help raise awareness and understanding by retooting this video
https://www.youtube.com/watch?v=1kEBGfQ1DhM
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month. You can help by retooting this 7-minute @abrokenbattery
video, "What is ME? (#MyalgicEncephalomyelitis aka #ChronicFatigueSyndrome #CFS)".
https://www.youtube.com/watch?v=VKPdgz612nU
Day 15
@mecfs @cfs #meawareness #mecfs #cfs
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May is #MEcfs awareness month.
Please help by retooting this extract from a Golden Girls episode on #CFS
https://www.youtube.com/watch?v=963WCmb2_h4
(part 1 of 2)
Day 16
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs @cfs
16b/
May is #MEcfs awareness month.
Please help by retooting this Golden Girls episode on #CFS
https://youtu.be/vVyLZTKDy2E
(part 2 of 2)
Day 16
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome
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May is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome (#MECFS) Awareness Month
Please help by retooting this 6-minute Paper Stop-motion Animation About ME/CFS
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May is #MyalgicEncephalomyelitis (ME) Awareness Month.
You can help to raise awareness and understanding by retweeting and/or
liking this 7 minute 8 second-video made on young UK woman with severe
ME
Day 18
#SevereME #SevereCFS
www.youtube.com/watch?v=cPH3kKkEYAI&feature=youtu.be
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by retooting this @MEAssociation video.
"A wonderfully illustrated comic to explain M.E also known as #ChronicFatigueSyndrome (#CFS) to other people" (2 minutes)
https://youtu.be/G4Rijt8jtZg
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May is M.E. Awareness Month.
You can help by retooting this video, a 1993 documentary, Living Hell. 14:00-1:10:16 (i.e. 56 minutes). There are also 2 interviews from Tom Hennessy.
https://www.youtube.com/watch?v=SyB49g_l9Sg
Day 20
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME
@mecfs @cfs
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May is ME/CFS Awareness Month.
You can help raise awareness and understanding by retooting this 30-second video from the US Disease Control and Prevention (CDC)
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Educate others about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome during ME/CFS Awareness month (May) by retooling this 3-minute video
Day 22
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Educate others about Myalgic Encephalomyelitis / Chronic Fatigue Syndrome during ME/CFS Awareness month (May) by retooting this 9-minute video
https://youtu.be/r0w9-eQ_fKQ
Day 23
#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis
#ChronicFatigueSyndrome #PwME #MyE
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May is #MyalgicEncephalomyelitis Awareness Month
You can help by retooting this video, "Reduced Function"
Tom & Vera Kindlon from the Association are among the interviewees* in this, at some points, very moving 20-minute video describing how ME/#CFS has led to reduced functioning.
https://www.dialogues-mecfs.co.uk/films/patients-experiences/
*Interviewees:
Dr Ben Marsh
Dr Nina Muirhead
"R"
Grace
Lydia
Linda
Graham McPhee
Naomi Whittingham
John Peters
Anna
Tom & Vera Kindlon
Joan McParland
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Learn more about Myalgic Encephalomyelitis for ME Awareness month (May) with this 4-minute video
https://youtu.be/ZgAa-l-N1Eg
Day 25
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3-minute @actionforme ME video.
Uses survey data to list symptoms
& for examples of effects on life
Day 26
#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by retooting this 15-minute video on
#SevereME & #VerySevereME: "Severe & Very Severe ME / CFS #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome"
Includes comments from professionals (incl. Drs
Muirhead/Weir/Speight/Shepherd/Nacul), patients & carers (incl. Association chair)
Discusses various distressing topics
http://www.dialogues-mecfs.co.uk/films/severeme/
#MedEd #Day27 #mecfs #cfs
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May is ME Awareness month
You can help by retooting this video.
Teenager Ashleigh Lovett made a short (3 minute 28 second) film explaining M.E. Another teenager wore weights on legs and arms to partly experience M.E. symptoms
http://www.fixers.org.uk/news/9097-11208/living-with-me.php
Day #28
@mecfs @cfs #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
Two years after she was diagnosed with ME, a Fixer from Essex is helping others to understand the condition that can leave her bed-bound. Seventeen-year-old Ashleigh Lovett, who lives in Harwich, is concerned that ME, also known as chronic fatigue syndrome, is often mistaken for laziness. With Fixers, she’s created a film to shatter that myth and reveal the challenges faced by those living with the symptoms which include extreme physical and mental tiredness. ‘I wanted to raise awareness of the condition to better inform people about what it actually is,’ says Ashleigh. ‘By doing this I hope to help those with ME, as people around them will be able to understand. ‘Before I was diagnosed, I had no clue what it was.’ In her film Ashleigh enlists the help of fellow Fixer, Abbie Elwood, to demonstrate how it feels to have ME. Abbie wears weights on her arms and legs to simulate the feeling of heavy limbs before being challenged to complete everyday tasks like shopping and getting ready. She admits finding the activities a struggle. ‘I hadn’t really heard of ME before,’ Abbie says. ‘I would've assumed it was just being tired now and again. ‘Once I put the weights on and started to do what Ashleigh would do day-to-day, it really started to show how hard it is for her to do the simplest things.’ Ashleigh, whose story was featured on ITV News Anglia in October 2013, hopes to show her film to school pupils. ‘I plan to share it with local schools, as one of the main causes of absence at school is ME,’ she adds. ‘I would also like to promote it on social media so it can reach a wide range of people. ‘I think my Fixers film is amazing and really gets the message across. ‘I hope that people will learn to recognise ME and will understand what a sufferer is feeling so they know how they can help.’ You can watch the film ‘M.E. and Me’ at the top of this page. For more information and help visit the NHS, ME Association and the Association of Young People with ME websites.
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May is #MyalgicEncephalomyelitis (M.E.) Awareness Month.
You can help by retooting this video.
Fixer Ashleigh & Jodie Cleary discuss their experiences of M.E. (3 minutes 38 seconds).
Also includes Jane Colby of the @tymestrust. ITV News Anglia (local UK news programme)
https://www.fixers.org.uk/news/7611-11208/me-and-me-story-on-itv-anglia.php
Day 29
#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs @cfs
A Fixer from Harwich in Essex wants to raise awareness of the medical condition Myalgic Encephalomyelitis (ME) to stop people mistaking it for laziness. Her story was shown on ITV News Anglia on Thursday 3rd October. Fixer Ashleigh Lovett (17) was diagnosed with ME, or chronic fatigue syndrome, two years ago. Her symptoms include heavy limbs and painful legs, and some days it is so bad that she is unable to get out of bed. ‘People didn’t believe I was ill at first,’ says Ashleigh. ‘There is no physical sign of ME, so people used to say I was spoilt and lazy. It hurt a lot.’ With the help of Fixers, Ashleigh wants to create a weighted suit for people to wear so they can understand what it is like to live with ME. ‘I did feel very isolated from everyone else because I didn’t know anyone who had it,’ Ashleigh explains. 'I didn’t know where to turn to talk about it, because I didn’t think anyone else would understand.’ In the broadcast piece, Ashleigh meets 19-year-old Jodie Cleary, who found out she had ME eight years ago. ‘No one believed me until I was diagnosed,’ says Jodie. ‘Then to get better I needed support. I needed people to say “It’s OK, I had it, but guess what, I’m married now and I’ve had kids”. I needed other people to tell me I could get out of this hole.’ According to Jane Colby from the Tymes Trust, who appears in the broadcast, ME is the most common cause of long-term sickness absence from school among both pupils and teachers. With her Fix Ashleigh hopes to reach out to those affected by the condition, saying: ‘I want to raise awareness of ME so other people don’t have to go through the same thing I went through.’ For more information and help, visit the Action for M.E. website.
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by retooting this video.
Daughter tries to raise awareness and understanding of M.E., which her mother suffers from, with a film she made, "Sleeping Beauty". Piece from a UK local TV station
https://www.itv.com/news/meridian/update/2014-08-07/trying-to-understand-me-a-daughters-story
@mecfs @cfs #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
30b/
Here's the full video, "Sleeping Beauty", that a daughter of a woman with ME made to increase awareness and understanding of the illness
(4 minutes 32 seconds)
#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs @cfs
Becoming aware of the struggles faced by people living with ME when her mum received her diagnosis, Hollie Ransley is using a famous fairy tale to banish myths surrounding the condition. The 25-year-old from Gosport wants to encourage support for those with myalgic encephalomyelitis, also known as chronic fatigue syndrome, by making sure that it isn’t mistaken for laziness. ‘I want to teach people about it to prevent ignorance and lack of knowledge,’ Hollie explains. ‘This would create a better understanding and empathy towards sufferers. 'My mum was diagnosed with ME, as well as fibromyalgia. ‘I’ve witnessed her lose her independence and it’s clear to see that she is restricted when it comes to everyday tasks. ‘The pain and hidden symptoms experienced by someone with the condition aren’t always obvious.’ With Fixers, Hollie has created a film based on the tale of Sleeping Beauty. It tells the story of a bed-bound princess under the ‘cruel spell’ of ME. In the video she’s approached by a number of potential suitors, finding love with the only prince who understands her situation and is willing to support her through it. Watch Hollie’s film ‘Sleeping Beauty’ at the top of this page. ‘I think the film will attract a young audience to help raise awareness,’ she says. ‘It isn’t too serious or overcomplicated and it highlights the key symptoms and the issues involved. ‘Using a well-known story should get people’s attention straight away.’ Hollie hopes her Fixers film will be used in schools to help younger generations recognise when someone has chronic fatigue syndrome. ‘Starting with young people is a step towards changing opinions and knowledge of ME in the future. ‘The film would also be beneficial as an advert in medical surgeries. ‘It would reach people who many not get a chance to learn about the condition if they aren’t experiencing it themselves or don’t know someone who has it. ‘I hope to provide information for people wanting to find out more about the illness.’ Help Fix It - Share this story! Essex Fixer Ashleigh knows what it’s like to live with ME. See what happens when her friend wears weights on her arms and legs to simulate her symptoms.
This just made me cry. I feel sooo seen. And at the same time, it's been decades... 😢🥴😭
Irish ME/CFS Association
Getting Some Rest