(UK)
#ThereForME co-founder Karen Hargrave writes about applying for Continuing Healthcare funding

https://www.thereforme.uk/p/why-is-continuing-healthcare-funding

Screenshot from latest Science for ME weekly update

#SevereME #SevereMECFS
#SevereCFS #VerySevereME
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs

‪@tomkindlon

Stonebird books on severe ME and caring now available to download for free

https://stonebird.co.uk/

#MyalgicEncephalomyelitis #SevereME #SevereMECFS
#SevereCFS #VerySevereME #PwME

Stonebird books on severe ME and caring now available to download for free

Screenshot from Stonebird Facebook page (of Greg & Linda Crowhurst)

https://stonebird.co.uk/

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
#SevereME #SevereMECFS
#SevereCFS #VerySevereME #PwME

2/
Abstract for:
Contested and neglected: Social and medical marginalization in severe Chronic Fatigue Syndrome

Free fulltext:
https://www.sciencedirect.com/science/article/pii/S0277953625010974

#SevereMECFS #SevereCFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs

4/
"The human body and mind were not designed to be encased in darkness, yet, for so many of us, this is our enforced mode of existence."

#SevereMECFS #SevereCFS #VerySevereME
@mecfs

18/

May is #MyalgicEncephalomyelitis (ME) Awareness Month.

You can help to raise awareness and understanding by retweeting and/or
liking this 7 minute 8 second-video made on a young UK woman with severe ME
https://www.youtube.com/watch?v=cPH3kKkEYAI

Day 18
#SevereME #SevereCFS #mecfs #severemecfs @severeme
@mecfs

Documentary on life with severe ME/Chronic Fatigue Syndrome on BBC1

YouTube

8/
May is #MyalgicEncephalomyelitis (M.E.) Awareness Month. You can help by sharing +/or liking this video.

It was made by a woman, Laurel, with severe ME Living with Severe ME (5 minutes 13 seconds)
https://youtu.be/LvweCk44WHs

Day 8

#SevereME #SevereCFS #mecfs
@mecfs

Living with Severe ME: Laurel's CFSAC Testimony (2009)

YouTube

A Quiet Storm: An online art gallery showcasing the artwork of people living with severe ME/CFS

https://www.aquietstorm.me/

@severeme
#SevereME #SevereMECFS
#SevereCFS
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

a quiet storm - an online gallery

An online art gallery showcasing the artwork of people living with severe ME/CFS

a quiet storm - an online gallery

Bateman Horne Center:

We’re excited to share the Caregiving Resource Guide — a collection of practical tips from experts and caregivers who spoke at the Severe #MECFS Caregiving Webinar Series. Many suggestions can also empower those who don’t have a dedicated caregiver.

https://bit.ly/3Yvek6W

@severeme
#SevereME #SevereMECFS
#SevereCFS #VerySevereME
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

4/

“During the inquest into Maeve's death, the coroner Deborah Archer said it became clear to her that there were no specialist hospital or hospices, beds, wards or other health care provision in England for patients with severe ME”

#SevereME #SevereCFS #SevereMECFS
@mecfs #mecfs