May is Myalgic Encephalomyelitis (ME) Awareness Month.

You can help by liking and/or retooting this video. This 2017 TED talk features @jenbrea.

https://youtu.be/Fb3yp4uJhq0

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #MEeps #CFSME #CFIDS #SEID #NeuroME @mecfs @cfs

Day #1

What happens when you have a disease doctors can't diagnose | Jennifer Brea

YouTube

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May is Myalgic Encephalomyelitis (ME) Awareness Month.
You can help by sharing and/or liking this video. It is 3 minutes 5 seconds long.
https://www.youtube.com/watch?v=TGIo1v7KVJQ
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This film will give you an introduction to PEM (Post Exertional Malaise).
Once you've understood what PEM is about, you'll know a lot more about the debilitating chronic disease ME (Myalgic Encephalomyelitis).

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Day #2
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #MEeps #CFSME @mecfs @cfs

ME and PEM

YouTube

3/

May is #MyalgicEncephalomyelitis (ME) Awareness Month.

You can help by retooting this video

(9 minutes) This is ME (2020) "A short film exploring 'Spoon Theory' told through the eyes of a young woman struggling with ME/#ChronicFatigueSyndrome" https://vimeo.com/338532785 "The best thing I’ve ever done: Filmmaker with ME wants to raise awareness of hidden illness" https://www.swlondoner.co.uk/this-is-me-filmmaker-josh-pickup/

#MEcfs #CFS #MyalgicE #Spoonies #Spoonie #SpoonTheory #PwME #MEeps #CFSME #CFIDS @spoonies @mecfs @cfs

This is ME (2020)

A short film exploring 'Spoon Theory' told through the eyes of a young woman struggling with ME/Chronic Fatigue Syndrome ** Follow Pickup_Films on Twitter…

Vimeo

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(2 minutes)
"What is ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)?"

https://www.youtube.com/watch?v=X6f4zCe2ZtA

You can help by re-tooting this short video

#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
Day #4

@mecfs @cfs

What is ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)

YouTube

5/
May is Myalgic Encephalomyelitis (ME) Awareness Month.

You can help by re-tooting this 102-second video. "What is ME/CFS?" (excerpt from LEFT OUT, reproduced with kind permission from UpNorth Film, Norway)

https://youtu.be/bXAdsrk0FZw

#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs @cfs

Day #5

What is ME/CFS? (excerpt from LEFT OUT, reproduced with kind permission from UpNorth Film, Norway)

YouTube

6/

May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by retooting this video. It's a preview of a documentary, formerly called "Blue Ribbon" (now called The Forgotten Plague)

(3 minutes 5 seconds)

https://youtu.be/y69PqwZoUws

Day #6
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #CFSME @mecfs @cfs

The Blue Ribbon: Sneak Peek

YouTube

7/

May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by retooting this video.

It's been approved for continuing medical education in the US

https://youtu.be/RC9TjgE_PlU

Day #7

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #CFSME @mecfs @cfs

Diagnosis and Management of Myalgic Encephalomyelitis and Chronic Fatigue Syndrome

YouTube

8/

May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by sharing and/or liking this video. It was made by a woman, Laurel, with severe ME

Living with Severe ME
(5 minutes 13 seconds)
https://youtu.be/LvweCk44WHs

Day #8

#SevereME #SevereCFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #CFSME @mecfs @cfs

Living with Severe ME: Laurel's CFSAC Testimony (2009)

YouTube

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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by retooting this documentary, "Mom Needs to Lie Down".

It's a short Canadian film made in 2014. (11 minutes 25 seconds)

https://www.youtube.com/watch?v=EvrU-ciEFcM&feature=youtu.be

Day #9

@mecfs @cfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #CFSME

Mom Needs To Lie Down: The years and lives slept away by ME/CFS

YouTube

10/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by retweeting and/or liking this documentary, "Invisible".

It's a 60-minute documentary made in 2009 (but is timeless) [Skip forward to 14:50 to go to the start of "Invisible" proper]

http://cctv.org/watch-tv/programs/invisible-vermont

Day #10
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME

@mecfs @cfs

INVISIBLE in Vermont

INVISIBLE in Vermont is the title of this panel discussion, hosted by Vermont CFIDS (Chronic Fatigue Immune Dysfunction Syndrome).  Thousands of Vermonters are homebound, disabled, misdiagnosed, and misunderstood while living with the realities of Fibromyalgia, Chemical Multiple Sensitivity, Lyme Disease, Gulf War Syndrome and Chronic Fatigue Immune Dysfunction Syndrome.  Panelists include: Kenneth J. Friedman PhD., Rik Carlson, both CFIDS Board Members, along with 2 members Julia Bond and Terence Naumann, MD. More information available at:  www.vtcfids.org   

CCTV Center for Media and Democracy

11/

#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day

&

May is #MECFSawarenessmonth

Please help by retooting this 12-minute documentary which features Whitney Dafoe & others
https://youtube.com/watch?v=9_HwOUiImvw

#Day11

#PwME @mecfs @cfs #SevereME #SevereMECFS
#SevereCFS #VerySevereME @SevereME

Invisible Illness - Stories of Chronic Fatigue Syndrome

YouTube

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May 12 is International Myalgic Encephalomyelitis (ME) Day (and May is ME Awareness Month) You can help by retooting this (well-made) video.

(3 minutes)
https://www.youtube.com/watch?v=IOflARSgNnE

Day #12
#MyalgicE #MyalgicEncephalomyelitis #May12 #May12th #WorldMEDay2023 #WorldMEday #MEAwarenessDay
@mecfs @cfs

C.F.S/M.E - The Torturous Disease

YouTube

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This is a short (78-second) video about postexertional malaise in ME/CFS.

It uses the battery analogy, but also highlights the effects of payback i.e. the unusual results of exertion in ME. There is no sound.

May is #MEAwarenessMonth.

You can help raise awareness and understanding by retweeting and/or liking this video
https://www.youtube.com/watch?v=THlRW_YGZmE

Day 13

@mecfs @cfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #CFSME #MEeps

PEM - post exertional malaise

YouTube

14/

(2 minutes)
"How does it feel to live with ME/CFS? Patients describe what it's like"

May is ME Awareness Month.
You can help raise awareness and understanding by retooting this video

https://www.youtube.com/watch?v=1kEBGfQ1DhM

Day 14
#MyalgicE #MyalgicEncephalomyelitis

@mecfs @cfs

How does it feel to live with ME/CFS? Patients describe what it's like

YouTube

15/

May is Myalgic Encephalomyelitis (M.E.) Awareness Month. You can help by retooting this 7-minute @abrokenbattery
video, "What is ME? (#MyalgicEncephalomyelitis aka #ChronicFatigueSyndrome #CFS)".

https://www.youtube.com/watch?v=VKPdgz612nU

Day 15
@mecfs @cfs #meawareness #mecfs #cfs

What is ME/CFS? (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)

YouTube

16/

May is #MEcfs awareness month.

Please help by retooting this extract from a Golden Girls episode on #CFS
https://www.youtube.com/watch?v=963WCmb2_h4

(part 1 of 2)

Day 16
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs @cfs

Golden Girls Chronic Fatigue Syndrome Dorothy Confronts Dr. Budd

YouTube

16b/
May is #MEcfs awareness month.

Please help by retooting this Golden Girls episode on #CFS
https://youtu.be/vVyLZTKDy2E

(part 2 of 2)
Day 16
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome

@mecfs @cfs

The Golden Girls: Dorothy’s Struggle With CFS/ME – Awareness Video

YouTube

17/

May is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome (#MECFS) Awareness Month

Please help by retooting this 6-minute Paper Stop-motion Animation About ME/CFS

https://www.youtube.com/watch?v=dUrPFqGONM8

@mecfs @cfs #pwme

An Existence Project | Paper Stop-motion Animation About ME/CFS

YouTube

18/

May is #MyalgicEncephalomyelitis (ME) Awareness Month.

You can help to raise awareness and understanding by retweeting and/or
liking this 7 minute 8 second-video made on young UK woman with severe
ME

Day 18
#SevereME #SevereCFS
www.youtube.com/watch?v=cPH3kKkEYAI&feature=youtu.be

@mecfs @cfs @severeme

19/

May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by retooting this @MEAssociation video.

"A wonderfully illustrated comic to explain M.E also known as #ChronicFatigueSyndrome (#CFS) to other people" (2 minutes)
https://youtu.be/G4Rijt8jtZg

Day 19
#PwME #MEcfs

@mecfs @cfs

20/

May is M.E. Awareness Month.

You can help by retooting this video, a 1993 documentary, Living Hell. 14:00-1:10:16 (i.e. 56 minutes). There are also 2 interviews from Tom Hennessy.

https://www.youtube.com/watch?v=SyB49g_l9Sg

Day 20

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME
@mecfs @cfs

Tom Hennessy on MacNeil Lehrer, Living Hell, Larry King - 1992

YouTube

@IrishMECFSAssociation

This just made me cry. I feel sooo seen. And at the same time, it's been decades... 😢🥴😭

@IrishMECFSAssociation

Good TED talk by Jennifer Brea, director of the film Unrest

Description of image included in the previous post: A screen shot of the video that shows Jennifer Brea sitting cross-legged in a wheelchair. TED in large red letters is on the stage behind her. At the bottom is the title of the talk, "What happens when you have a disease doctors can't diagnose"

#Alt4You

#MEcfs #CFS #MyalgicE #PwME #TEDTalk