Tom KindlonME Research UK:
A team of researchers have published a study investigating lived experiences of people with ME/CFS using data from posts made on social media.
Read more: https://tinyurl.com/mj2p8c24
BBC Wales covers ME/CFS with text and radio pieces
https://www.bbc.com/news/articles/cpv8e71p3evo
https://www.youtube.com/watch?v=r1S2NMf8-uY
Screenshot from latest Science for ME weekly update
(UK)
#ThereForME co-founder Karen Hargrave writes about applying for Continuing Healthcare funding
https://www.thereforme.uk/p/why-is-continuing-healthcare-funding
Screenshot from latest Science for ME weekly update
#SevereME #SevereMECFS
#SevereCFS #VerySevereME
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
BenNevis@tomkindlon
Stonebird books on severe ME and caring now available to download for free
#MyalgicEncephalomyelitis #SevereME #SevereMECFS
#SevereCFS #VerySevereME #PwME
Stonebird books on severe ME and caring now available to download for free
Screenshot from Stonebird Facebook page (of Greg & Linda Crowhurst)
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
#SevereME #SevereMECFS
#SevereCFS #VerySevereME #PwME
A source for soundproofing material. From a report on a carers' group meeting.
Links:
https://www.audimute.com/?srsltid=AfmBOoroq-oztCCyDsWYuOfTj0brxVBYOTicWgLq0x0-AfSMtfxwM4Wa
https://www.amazon.com/stores/Audimute/page/A4D2379B-B4AD-4700-A085-096A2AF15C1F
COI: I have no financial or other interest in these companies
#SoundSensitivity #NoiseSensitivity #LongCovid #MEcfs #CFS #PwME #SevereME #SevereMECFS @longcovid @mecfs
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Extract from new paper:
An Overview of Severe Myalgic Encephalomyelitis
Free fulltext:
https://www.mdpi.com/2077-0383/15/2/805
#SevereMECFS #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @severeme
Great to have this new review for a relatively neglected area in the research literature
An Overview of Severe Myalgic Encephalomyelitis
Free fulltext:
https://www.mdpi.com/2077-0383/15/2/805
#MyalgicEncephalomyelitis #SevereME #MEcfs #CFS #PwME #ChronicFatigueSyndrome #SevereMECFS @severeme
2/
Abstract for:
Contested and neglected: Social and medical marginalization in severe Chronic Fatigue Syndrome
Free fulltext:
https://www.sciencedirect.com/science/article/pii/S0277953625010974
#SevereMECFS #SevereCFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs
