More and more patients are writing about their experience of living with illness. We have the possibility to know much more about patient’s inner lives, what it means to live with illness, and how patients manage their bodies and emotions than we have ever done before.
But how many of these accounts are read by doctors? Are they part of their curriculum?
I’m asking because I’m curious…
#chronicillness #patientadvocacy #medicalmastadon #medicaleducation #mecfs #LongCovid #fibromyalgia
"Medicine's bad philosophy threatens your health"
https://iai.tv/articles/medicines-bad-philosophy-threatens-your-health-auid-2225
"In recent years medicine has increasingly recognized a connection between mind and body and how the interaction between the two can affect our health. But in its effort to avoid a problematic separation between mind and body, medicine has been led astray. Due to misunderstanding what in philosophy is called mind-body dualism, trained medical doctors end up over-diagnosing conditions as psychosomatic, automatically construing medically unexplained symptoms as psychiatric problems. This is a philosophical error that ends up putting the health of patients at risk, argues Diane O’Leary."
#NEISvoid @chronicillness
#MECFS #pwME #longCOVID #EDS #POTS #MCAS #MedMastodon
In recent years medicine has increasingly recognized a connection between mind and body and how the interaction between the two can affect our health. But in its effort to avoid a problematic separation between mind and body, medicine has been led astray. Due to misunderstanding what in philosophy is called mind-body dualism, trained medical doctors end up over-diagnosing conditions as psychosomatic, automatically construing medically unexplained symptoms as psychiatric problems. This is a philosophical error that ends up putting the health of patients at risk, argues Diane O’Leary.
Sontag writes that ‘psychologising seems to provide control over the experiences and events—like grave illnesses—over which people have in fact little or no control’.
Psychologising gives the ‘other’ a false sense of certainty and a false sense of control — ‘I am not like this, I will never become ill’. One has already triumphed over the illness.
Perhaps modern day’s psychologising of diseases like ME and Long Covid stems from a deep seated fear of death and decay.
Now that I can edit this post, to more accurate info: please
avoid using a LOT of hashtags in the body of your posts. (Not just for users of screenreaders but also for ND folks who have trouble with visually busy text. )
Do be sure to CamelCase your hashtags for screenreaders.
Here's a great discussion on the topic: https://legal.social/@krisnelson/109351256065488083
Also some screenreaders (and a lot of ND brains) can skip a block of hashtags at the bottom:
#VisuallyImpaired #blind #accessibility
As someone who regularly uses screen readers and works with blind colleagues who rely on screen readers to access the internet, please let me assure you that using #hashtags within the body of a post is not a problem. You don’t need to move them to the end! It is helpful to use #CamelCase to avoid gibberish for many word combos, but the extra # is so minimal as to disappear given how much else screen readers say & how fast they speak to experienced users.
Historically (and presently), researchers and clinicians have been more likely to see emotional or social problems as the cause of women's symptoms. With men, on the other hand, they have been more likely to see biological factors as the cause.
This gender stereotypical view of women has had a significant impact on the way women's symptoms and diseases have been (mis)understood, (mis)treated and (under)researched. #mecfs #fibromyalgia #endometriosis #womenshealth #chronicpain #LongCovid
Ok, any other people with #myalgicE #MECFS #myalgicencephalomyelitis or #LongCovid or other stigmatised #chronicillness on here that wants to connect?
Hi everyone! Welcome! In case you missed it, I recently wrote an opinion piece about the importance of patient participation in the development of health policies, and how #MyalgicE patients have not been heard here in Denmark.
Google translation of the piece is here: https://www-information-dk.translate.goog/debat/2022/10/andre-lande-involveres-me-patienter-behandling-danmark-lytter-ingen?lst_tag&_x_tr_sl=da&_x_tr_tl=en&_x_tr_hl=en-US&_x_tr_pto=wapp
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