27/

May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by sharing and/or liking this 15-minute video on #SevereME & #VerySevereME: "Severe & Very Severe ME / CFS Myalgic Encephalomyelitis / Chronic Fatigue Syndrome"

Includes comments from professionals (incl. Drs Muirhead/Weir/Speight/Shepherd/Nacul & Caroline Kingdon (nurse), patients & carers (incl. Association chairperson) Discusses various distressing topics http://www.dialogues-mecfs.co.uk/films/severeme/

@mecfs #mecfs

NZ Media Awards: 2026 Winners & Finalists

Zoe Madden-Smith (Re: News / TVNZ) wins Video Journalist of the Year for "ME/Chronic fatigue syndrome: The mysterious illness trapping people in their bodies."

https://npa.co.nz/nz-media-awards/2026-winners/

https://youtu.be/DsOAq6cs564

#MEcfs #SevereME #CFS @mecfs

2026 Winners - NPA | News Publishers' Association

Voyager Media Awards 2020 Winners were anounced tonight, the NZ Herald and nzherald.co.nz scooped several major awards

NPA | News Publishers' Association

18/

May is #MyalgicEncephalomyelitis (ME) Awareness Month.

You can help to raise awareness and understanding by retweeting and/or
liking this 7 minute 8 second-video made on a young UK woman with
severe ME
https://www.youtube.com/watch?v=cPH3kKkEYAI

Day 18
#SevereME #SevereCFS #SevereMECFS #MEcfs #PwME
@mecfs

Documentary on life with severe ME/Chronic Fatigue Syndrome on BBC1

YouTube

What does #MillionsMissing mean?

Even mild cases of ME/CFS cause significant loss. So people with ME/CFS are "missing" from work, socializing, exercise, etc.

Moderate cases cause more loss so that people can rarely leave the house.

People with severe cases are in bed, rarely able to intereact with anyone.

As ME/CFS gets worse a person's life shrinks more and more.

The attached comic is by Kornelia Paulsen.

8/n

@mecfs @longcovid

#MEcfs #LongCovid #SevereME #MEAwarenessDay #WorldMEDay

Symptom severity ranges from mild to very severe. But even so-called "mild" ME/CFS has an enormous impact what a person can do.

With severe ME/CFS the person is mostly housebound or completely bedbound.

Anil van der Zee, a former professional dancer who now has severe ME, made this video:

https://www.youtube.com/watch?v=XhrAhGkrGuQ

Read the YouTube summary for more details

5/n

@mecfs @longcovid

#MEcfs #PwME #SevereME #MEAwarenessDay #WorldMEDay #MyalgicEncephalomyelitis

Buried Alive with M.E. (with subtitles)

YouTube

Managed a post on #MEAwarenessDay.
Must nap now!

Help me escape #abusers & have a chance at life. Dying of abuse/neglect - running out of time.
$250wk negotiable for rent, room, land for caravan/cabin- anywhere safe & accessible. On #DSP can’t afford much. #Community help needed. Can you spare a room? Land? Time? Know someone who can?

Info & help with costs:
(I either write too much or not enough depending on who you ask so further info in fund & Canary article link)

💸Fund: https://www.chuffed.org/project/161937-help-anna-escape
☕️BMaC: https://www.buymeacoffee.com/Halcionandon
🎁AmazonAU: https://www.amazon.com.au/hz/wishlist/ls/1B9A74NSROTQZ
ᯓ➤Beem: Halcionandon
🗞️Article: “Nearly a year on and severe ME patient Anna is still trapped in life-threatening domestic abuse”https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/

#mutualaid
#MECFS #PWME #SevereME #MyalgicEncephalomyelitis
#MEAwarenessweek

@mecfs
@mutualaid
@DisabilityJustice
@[email protected]

No fancy post for #MEAwarenessDay

Help me escape #abusers & have a chance at life. Dying of abuse- running out of time.
$250wk negotiable for rent, room, land for caravan/cabin- anywhere safe & accessible. On #DSP can’t afford much. #Community help needed. Info & help with costs:

💸Fund: https://www.chuffed.org/project/161937-help-anna-escape
☕️BMaC: https://www.buymeacoffee.com/Halcionandon
🎁AmazonAU: https://www.amazon.com.au/hz/wishlist/ls/1B9A74NSROTQZ
ᯓ➤Beem: Halcionandon

#mutualaid
#MECFS #PWME #SevereME #MyalgicEncephalomyelitis
#MEAwarenessweek

@mecfs
@mutualaid

11/

#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day
&
May is #MECFSawarenessmonth

Please help by reposting and/or liking this 12-minute documentary
which features Whitney Dafoe & others

https://www.youtube.com/watch?v=9_HwOUiImvw

Day11

#PwME #SevereME
#mecfs

@mecfs

Invisible Illness - Stories of Chronic Fatigue Syndrome

YouTube

Freedom is not free - a poem by Nevra

(Click on this post or the link to read it)

Please donate/share to help Nevra access lifesaving medical care and rental housing.
🩵

http://gofundme.com/f/save-nevra

#SaveLizNevra
#MECFS
#pwME
#ChronicIllness
#severeME
#disability
#donesticviolence

Donate to Help Nevra Secure Surgery, Care, and Safety, organized by Adrian Bamforth

Nevra is a 28 year old young woman in Karachi, Pakistan, who has been suff… Adrian Bamforth needs your support for Help Nevra Secure Surgery, Care, and Safety

gofundme.com

"Walk On By"

A poem by R.M. Carlson, shared in honor of Millions Missing. Carlson has lived with moderately severe ME/CFS for 3 years.

@mecfs

#MEcfs #PwME #SevereME #MillionsMissing #FrailAndFurious #Poetry #Disability