36 Followers
21 Following
25 Posts
Writing and singing — when #severeME allows — about living with a stigmatised chronic illness #MyalgicE #MECFS, intersectional feminism and disability and patient rights | Words in Politiken and Information
@TheBalance I completely agree! Which is why I think doctors should read patient accounts as part of thier obligatory curriculum.
@skippingmoonrocks good thing you’re looking into a wheelchair, I wish I had gotten mine back when I could still move a bit more. Think about what kind you need (I can see you’re already doing that). I think it depends on which country you live in. In Denmark you contact the local municipality and they assess you and stuff. Not everybody gets a wheelchair unfortunately, even in a welfare state like Denmark. It’s worth fighting for though! Good luck!

More and more patients are writing about their experience of living with illness. We have the possibility to know much more about patient’s inner lives, what it means to live with illness, and how patients manage their bodies and emotions than we have ever done before.

But how many of these accounts are read by doctors? Are they part of their curriculum?

I’m asking because I’m curious…

#chronicillness #patientadvocacy #medicalmastadon #medicaleducation #mecfs #LongCovid #fibromyalgia

"Medicine's bad philosophy threatens your health"

https://iai.tv/articles/medicines-bad-philosophy-threatens-your-health-auid-2225

"In recent years medicine has increasingly recognized a connection between mind and body and how the interaction between the two can affect our health. But in its effort to avoid a problematic separation between mind and body, medicine has been led astray. Due to misunderstanding what in philosophy is called mind-body dualism, trained medical doctors end up over-diagnosing conditions as psychosomatic, automatically construing medically unexplained symptoms as psychiatric problems. This is a philosophical error that ends up putting the health of patients at risk, argues Diane O’Leary."

#NEISvoid @chronicillness
#MECFS #pwME #longCOVID #EDS #POTS #MCAS #MedMastodon

Medicine's bad philosophy threatens your health | Diane O'Leary

In recent years medicine has increasingly recognized a connection between mind and body and how the interaction between the two can affect our health. But in its effort to avoid a problematic separation between mind and body, medicine has been led astray. Due to misunderstanding what in philosophy is called mind-body dualism, trained medical doctors end up over-diagnosing conditions as psychosomatic, automatically construing medically unexplained symptoms as psychiatric problems. This is a philosophical error that ends up putting the health of patients at risk, argues Diane O’Leary.

IAI TV - Changing how the world thinks
@allyann ok thanks 🙌
@nisreen thank you so much for this thread!
@allyann thanks for this! It’s still new to me and with brain fog difficult to figure out how things work. Question: what happens if I tag one of the groups?
@jonaskunst I have meditated since I was 18 hears old. When I got a post viral illness my brain couldn’t handle meditation anymore. My brain hurt trying… it sounds so far out that mindfulness meditation can treat underlying pathology. Science is lazy at times.
@kopperwoman awesome 🙌
@edsuom absolutely!