From Germany 🇩🇪
Evaluation of an Integrated Multidisciplinary Care Model for [ME/CFS]: A Prospective, Open-label, ...study
https://papers.ssrn.com/sol3/papers.cfm?abstract_id=6989698
"Post-rehabilitation Bell Disability Scale scores decreased [i.e. worsened] In 42/94 (45%) and increased in only 13/94 (14%) patients"
"What Medicine Misses When You Feel Ill"
https://www.medscape.com/viewarticle/what-medicine-misses-when-you-feel-ill-2026a1000l1r?ecd=a2a
CFS is listed in this as an illness rather than a disease but I think once the biology is better understood, ME/CFS will be classified as a disease.
"Individuals may find themselves in the paradoxical position of feeling seriously unwell while lacking the forms of evidence that society has come to associate with legitimate illness."
#MEcfs #CFS #PwME #ME #MyalgicE
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome
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Latest in the series of ME podcasts designed for health professionals
https://mecfs.buzzsprout.com/1717775/episodes/19382849-episode-13-learn-about-me-and-multi-morbidities
I haven't listened in this one so far but overall they seem to have generated positive feedback
Australian 🇦🇺 research
Disrupted Glymphatic Function and Its Relationship with Sleep and Cognitive Impairment in ME/CFS Assessed via DTI-ALPS
https://www.frontiersin.org/journals/neuroscience/articles/10.3389/fnins.2026.1875420/full
Screenshot from latest Science for ME weekly update
New UK research funded by ME Research UK
Higher-order brain processes, rather than early processing, underlie sensory problems in ME/CFS: evidence from ERPs
https://www.frontiersin.org/journals/medicine/articles/10.3389/fmed.2026.1842841/full
Screenshot from latest Science for ME @s4me weekly update
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"How to Apply For—and Receive—Your SSDI: Long COVID makes it tricky. Know the rules"
https://longcovidmd.substack.com/p/you-may-qualify-for-ssdi
Blog with linked video recording.
Most of the advice is specific to SSDI rather than more generally useful internationally
Also useful for other spoonies
#LongCovid #MEcfs #Spoonies
#Spoonie #POTS @pots #PwME #ME #MyalgicE
@mecfs
@longcovid
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The first videos of talks from the 2026 Berlin conference are now online on the website of the ME/CFS Research Foundation
https://events.mecfs-research.org/en/events/conference_2026/videos
Screenshot from latest Science for ME weekly update
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A collection of tweets on the paper "Monitoring treatment harm in #MyalgicE / #CFS: A freedom-of-information study of NHS specialist centres in England" from
@mecfsskeptic
#MEcfs #MyalgicEncephalomyelitis #PwME
https://threadreaderapp.com/thread/1144264687917424642.html
@mecfs
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I searched but couldn't find a legal copy online of "Monitoring treatment harm in #MyalgicE/#ChronicFatigueSyndrome ..."
that others can access so I uploaded here https://www.researchgate.net/publication/334005289_Monitoring_treatment_harm_in_myalgic_encephalomyelitischronic_fatigue_syndrome_A_freedom-of-information_study_of_National_Health_Service_specialist_centres_in_England
what we submitted to the journal which is something we own the copyright on.
🧵
It's 7th anniversary of our paper "Monitoring treatment harm in #MyalgicEncephalomyelitis / #CFS: A freedom-of-information study of NHS specialist centres in England"
https://journals.sagepub.com/doi/10.1177/1359105319854532
Hopefully it will influence, among other things, #LongCovid clinics
1/n
Tom Kindlon