It's 9-year anniversary of this paper of mine. It could be useful if somebody feels coerced into doing graded activity or exercise programmes; also to counter claims that the #PACEtrial showed graded activity programs are safe.
https://journals.sagepub.com/doi/full/10.1177/1359105317697323
#MEcfs #CFS #MyalgicE #CBT #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
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Longer message regarding the €3000 core funding grant that we were delighted to receive this week from the Hospital Saturday Fund
#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PwME #MyE
@tomkindlon @mecfs
Delighted to receive a €3000 core funding grant from the Hospital Saturday Fund this week.
Will be very useful as there has been relatively little fundraising for us in recent times
In photo: Vera Kindlon & @tomkindlon
Longer message in next post
#MEcfs #CFS #MyalgicE #PwME @mecfs
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Remembering ME activist (& my friend) Robert "Bob" Courtney, who passed away on March 7, 2018
This is from the @MEAssociation magazine
One can read about some of the specifics of Bob's work here: http://me-pedia.org/wiki/Robert_Courtney
#MyalgicEncephalomyelitis #MEcfs #CFS #MyalgicE #PwME #ME @mecfs
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“When the people in your life don’t understand PEM [post-exertional malaise], they’re not just failing to understand a symptom. They’re failing to understand the central mechanism that governs your entire existence. They’re missing why you can’t just meet them for a meal, why you can’t work full-time, why you can’t be the person you used to be”
@mecfs @longcovid #longcovid #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME
From: "Assessment of Post-Exertional Malaise (PEM) in Patients with ME and CFS: A Patient-Driven Survey" (2019) by a Leonard A. Jason team pmc.ncbi.nlm.nih.gov/articles/PMC...
#MyalgicE #PwME #MEeps #CFSME #CFIDS #PwLC
#PostCovidSyndrome #postcovid
https://pmc.ncbi.nlm.nih.gov/articles/PMC6468435/pdf/diagnostics-09-00026.pdf
pmc.ncbi.nlm.nih.gov
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From: "Assessment of Post-Exertional Malaise (PEM) in Patients with ME and CFS: A Patient-Driven Survey" (2019) by a Leonard A. Jason team https://pmc.ncbi.nlm.nih.gov/articles/PMC6468435/pdf/diagnostics-09-00026.pdf
#MyalgicE #PwME #MEeps #CFSME #CFIDS #SEID #PwLC
#PostCovidSyndrome #postcovid
@mecfs
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Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath
#MyalgicE #MEeps #CFSME #LongCovid #NeuroME
@mecfs @longcovid
Tom Kindlon
Irish ME/CFS Association
Innie (insomniac)🐱🏳️🌈🅥♿️🌍🌡️🥵
BenNevis