Still a little wonky. Been having dizzy episodes and minor leg weakness, which scares me. Back in 2023 I was completely bed ridden from leg weakness and muscle weakness. For a whole year. That was my worst flare. I had canes more mobility aid back then, but when we ended up on the street I lost them all to theft. I don't want to be back to that, this time without mobility aids or even the funds to get any.
#ChronicIllness #elhersdanlossyndrome #disabilityaids

If I'm going to enter my goth era at 46, as disabled guy I needed new compression socks, of course!🤪💀

#disabled #gothlife #gothic #skulls #disability #compressionsocks #disabilityaids #disabledlife

“Disability at home”

“This website documents the ingenuity and creativity that caregivers & disabled people, including those with chronic illnesses, use every day to make home accessible.” (repeat)

https://www.disabilityathome.org/

#disability #chronicillness #disabilityaids #disabled #caring #caregiving #spoonie #spoonies

Disability At Home

Disability At Home

I’m really unwell. Please 🔄SHARE my pinned crowdfund &💸 GIVE if you can. Share on all social media platforms you’re on. I can’t get to many.l 😞

It’s not looking great. Doctor confirmed I’m slowly dying in this environment. I don’t even get regular food.
I need to escape ASAP. PLEASE HELP 🙏

https://www.chuffed.org/project/161937-help-anna-escape

From Crowdfund:

🚨EMERGENCY🚨

Anna, an #Australian woman battling severe #MyalgicEncephalomyelitis (#ME) for over 20 years, is trapped in a toxic home with #abusive family members. She has multiple chronic illnesses too

#Bedbound & forced to stay in a dark room, she is very vulnerable and that is taken advantage of. She is not allowed to access #disabilityaids or supportworkers & needs approval for all mailed items including food, which may be binned or sold regardless. She faces deliberate exposure to sensory overload, days without food, constant yelling, gaslighting, called every insult, stolen belongings - the list is endless.

She has been infected with #COVID 3 times in 15 months due to unmasked family members, who have ignored the pleas of her doctor to be Covid conscious. She now has #LongCovid as well.

This is compounded by #endometriosis, #hypothyroidism, #POTS, #chronicpain, & more. She was forced to decline surgery to remove endometriosis after her family denied her after care & would not allow support workers to assist. One of many examples where medical care was denied by #CoersiveControl

As a result of all this her health is deteriorating rapidly. She is living in "survival mode” but can’t for much longer.

There are no steady rules, just excuses for her #abuse.

** Her doctor fears staying in this environment will kill her.**

Australia's #healthcare, #disability, & #domesticviolence systems have failed her catastrophically, This systemic #neglect has created a #lifethreatening crisis – & for Anna, it's already too late to wait.

**Anna's Critical Needs***

- **Safe #Housing ASAP:** Anna desperately needs a quiet #room in a COVID-conscious (masking) home in #Melbourne. She can pay rent $250 per week,funded meals & limited care hours; long-term help may qualify for Carer's Allowance. You’re not required to be a carer but can choose to.

- **Secure Relocation:** Ambulance transport to reduce infection risks & reduce further stress & worsening of symptoms.

- **Expert Advocacy:** A #disabilityadvocate for complex cases to navigate the system with her. She can’t do this alone.

- **Communication Help (#Australia, preferably #Victoria):** Someone to handle phone tasks – all info provided. She can’t use the #phone due to the severity of her illness.

Read more about Anna's story:

"Australia’s state & services are trapping a woman living with #severeME in #domesticabuse

And they keep passing the buck"

https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/

Please donate, share, or offer direct help now!

If you can provide housing, advocacy, or calls, contact immediately - Halcionandon at gmail dot com

Thanks. ❣️

#MutualAid #FediAid

### Urgent Appeal: Help Anna Escape Abuse – Time is Running Out!

🚨EMERGENCY: Anna's Life Hangs in the Balance – Act NOW to Rescue Her from Abuse and Neglect! 

Chuffed

@Hex hell yeah for revolutionary home ec.

Hearing heavy resonances with this episode of #DeathPanel “The Wheelchair-to-Warfare Pipeline" w/ Liz Jackson and Rua Williams (04/11/24), for anyone who hasn’t had the pleasure:

“Beatrice speaks with Liz Jackson and Rua Williams about the history and ongoing practice of design objects ostensibly created for accessibility being repurposed into tools of war.

Transcript:
https://www.deathpanel.net/transcripts/wheelchair-to-warfare

Read their article in the New Republic, “How Disabled People Get Exploited to Build the Technology of War,” here:
https://newrepublic.com/article/179391/wheelchair-warfare-pipeline-disability-technology

https://soundcloud.com/deathpanel/the-wheelchair-to-warfare-pipeline-w-liz-jackson-and-rua-williams-041124

https://pca.st/episode/29f1049c-b5d4-40e9-8c56-fcc054072e2d

#disability #disabilityAids

"The Wheelchair-to-Warfare Pipeline" w/ Liz Jackson and Rua Williams (04/11/24) | Death Panel Podcast

Death Panel podcast host Beatrice Adler-Bolton speaks with Liz Jackson and Rua Williams about the history and ongoing practice of design objects ostensibly created for accessibility being repurposed into tools of war.

Death Panel Podcast

Already received my compression #gloves 24-hour delivery darn good for free postage. Felt the difference as soon as I put them on, clearly less #pain. One of the few I found that covers all the joints, many fingerless leave the top one of the middle fingers and I felt them a lot after all the pencil use. The palm side is entirely covered in grippy dots, so no mug slipping, etc. Brand called #Pro11.

#DisabilityAids

Hands ached for hours. I’ve ordered a cheap pair of fingerless compression #gloves and a fancy heated full-length pair, plus some fingerless for my mum. We’ll be very gloved-up soon.

#DisabilityAids

3/
A number of people in the comments on my FB page have mentioned using a collapsible (lightweight) stool

#MyalgicEncephalomyelitis #spoonies @mecfs
@longcovid @pots @spoonies @disability #disability #disabilityaid #disabilityaids #spoonies #spoonie #mecfs #LongCovid

#MutualAid #glasses #disability #DisabilityAids #migraines

https://ko-fi.com/systemerror

Please don't ignore me! Im so close to achieving my goal, when i have the full amount i will be able to make an appointment and i will post proof of cost etc once i have the glasses. I suspect the price will be a little more than what im asking for but I'll cover the rest, i just don't have the bulk of the cost due to being in abject poverty.
If you cant contribute, please boost, i need to update my glasses in hopes it will help stop these constant migraines I've been getting. Thank you for reading and sharing!

this camel desperately needed a pair of shoes. a local cobbler came to his rescue: https://www.cbc.ca/radio/asithappens/camel-shoes-timujin-1.7334670 #DisabilityAids #BritishUpperClass
This camel desperately needed a pair of shoes. A cobbler came to his rescue | CBC Radio

It’s far from typical for a camel to sport shoes around the yard, but then again, it’s far from typical for a camel to be trotting around the United Kingdom. So when cobbler Stuart Moss got a call from a woman named Lady Chichester about making a shoe for a camel, he thought it was a prank.

CBC