Mastodawn

Jeder der mag und kann schreibt 3 Ärzt*innen oder für sich relevante Personen(-gruppen) an, um auf die #MEcfs Fortbildungsmöglichkeit durch Teilnahme an der Internationalen ME/CFS Konferenz 2026 am 07. + 08.05.2026 hinzuweisen.

https://events.mecfs-research.org/de/events/conference_2026

#CMEPunkte
#Fortbildung

Auch medizinischer Dienst, die Ergo- und Physiotherapie, Behörden und Schulträger sollten sich diese Fortbildung antun.

Schulträger, weil es allein in Dtl. 90 - 120.000 Kinder mit #MEcfs gibt. Viele davon können nicht in die Schule gehen. #Homeschooling Andere sind nach kurzer Zeit Schule kognitiv und körperlich ausgelaugt und benötigen evtl. eine andere Lernmöglichkeit.

ME/CFS Research Foundation

ME/CFS Research Foundation is a non-profit organization dedicated to advancing research and understanding of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome.

Stray Fish/ 野良魚 10h ago

#artists , I know this is a long shot, but instead of complaining forever I will just ask:
Are there any artists here with #MEcfs #longcovid #fibro or energy limiting illness, or those who are aware what this is like, that know how to practice mark making when essentially almost bedbound?
Because obviously i can't have the "objectively" good posture and do the whole drawing from the arm thing when half lying propped up on pillows, in bed, with my tablet in my lap.
If anyone else has any ideas I welcome them.
My lines (and generally, fundamentals) are shit and I want to change that.
Not sure what to tag, #neisvoid ? #artlearning ?

Tom Kindlon 18h ago

PRIME Research Project Workshop The Similarities and Distinctions between Long Covid & ME/CFS

https://www.actionforme.org.uk/prime-workshop-2/

https://us02web.zoom.us/webinar/register/WN_qs_AubvvQzGxXcxiezFBag#/registration

Screenshot from latest Science for ME weekly update

#MEcfs #LongCovid
@longcovid @mecfs

Wonderdog 🏳️‍🌈19h ago

Morning, Toots! Whoops, Day 2 of #PEM (Post Exertional Malaise, it's a thing with #MECFS) so I'm aching in muscles and joints that haven't hurt in a long time. Was it worth losing two days to help out at a cleaning bee? Yes. Next time I'll be a little bit more careful with myself, but yes.

I need to make cakes for Friday for drawing class - I need it to be gluten free, and if possible dairy free. I was going to make the fabulous Lemon, Almond, and Coconut cake from Recipe Tin Eats for the gluten free, but that's got soooo much delicious butter.

So maybe I'll do a Chocolate Olive Oil cake as well. Although I guess if I bought GF flour for that, it would do for both. Decisions.

Better check the pantry before shopping day, anyway.
The rest of today is going to be very slow, I think. Maybe a bit of drawing practice. Some reading and planning.

And you? What are you up to today?

Tom Kindlon 19h ago

UK NHS England releases e-learning module “Supporting people with severe ME/CFS”

https://learninghub.nhs.uk/Resource/79376/Item

Screenshot from latest Science for ME weekly update

#SevereME #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs

Show thread

Tom Kindlon 22h ago

15/
More from a series of comic strips about life as a person with ME/CFS.

"George and His ME/CFS"

🎨Rick Menard

This is the last one.

#MEcfs #SevereME @mecfs

The Tiller 🌈1d ago

Now, there is no expectation for me to die of my #LongCovid . Even so, this article by a long-term cancer survivor (with the cancer persisting) really struck a chord with me. She reflects on how very different life looks and feels with such an illness.

It triggers thoughts about the massive changes in my own life since my diagnosis. The bulk of the life I used to have is gone, likely for good. But here I am, still frequently having happy moments, [...]
1/2
#mecfs #pwLC

https://www.theguardian.com/society/2026/mar/22/i-have-stage-four-cancer-there-will-be-no-cure-but-death-isnt-necessarily-imminent-this-is-how-it-feels-to-live-in-the-long-middle?CMP=share_btn_url

I have stage four cancer – there will be no cure, but death isn’t necessarily imminent: this is how it feels to live in the long middle

When you are cured, the world cheers; when you are dying, it mourns. But when you are simply maintaining, the world is at a loss

The Guardian

Cara Sutra 1d ago

From FitBit to Visible: Learning to Live with M.E.

https://carasutra.com/2026/01/living-with-me-daily-life/

#ChronicIllness #MECFS #Disability #Spoonie
https://carasutra.com/2026/01/living-with-me-daily-life/

From FitBit to Visible: Learning to Live with M.E.

Living with M.E.: a personal story of chronic illness, pacing, grief and healing, from sudden crash to learning how to live differently.

Cara Sutra

hellebelle 1d ago

Sjældent har jeg været så meget i tvivl om, hvor jeg skal sætte mit kryds i morgen. Især fordi jeg ikke har fundet en lokal kandidat med fokus på det, der fylder mest for mig. Nemlig forholdene for #MEcfs patienter.
Men så må jeg jo fokusere på noget andet og måske stemme som en pletvinge.

#dkpol #natur #fv26 #dknatur

https://naturmonitor.dk/nyheder/debat/article19138836.ece

Kommentar: Hvad ville jeg stemme, hvis jeg var en pletvinge, eremit, bakkegøgelilje eller engryle?

Hvis man er en truet art i Danmark, klæber håbet om en bedre fremtid sig til, at mennesket vil reservere plads til vild natur, skriver dagens debattør. Derfor er Folketingsvalget så vigtigt.