Irish ME/CFS Associationš§µ
May is Myalgic Encephalomyelitis (ME) Awareness Month.
You can help by liking and/or sharing this video. This 2017 TED talk features Jennifer Brea.
#MyalgicE #mecfs @mecfs
#MyalgicEncephalomyelitis
Day #1
YouTube
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May is Myalgic Encephalomyelitis (ME) Awareness Month.
You can help by sharing and/or liking this video. It is 3 minutes 5 seconds long.
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This film will give you an introduction to PEM (Post Exertional Malaise).
ME and PEM
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May is #MyalgicEncephalomyelitis (ME) Awareness Month.
You can help by reposting this video
(9 minutes) This is ME (2020) "A short film exploring 'Spoon Theory' told through the eyes of a young woman struggling with ME/#ChronicFatigueSyndrome" https://vimeo.com/338532785 "The best thing Iāve ever done: Filmmaker with ME wants to raise awareness of hidden illness" https://www.swlondoner.co.uk/this-is-me-filmmaker-josh-pickup/
This is ME (2020)
A short film exploring 'Spoon Theory' told through the eyes of a young woman struggling with ME/Chronic Fatigue Syndrome ** Follow Pickup_Films on Twitterā¦
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(2 minutes)
"What is ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)?"
https://www.youtube.com/watch?v=X6f4zCe2ZtA
You can help by reposting this short video
#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
Day #4
@mecfs
What is ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)
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May is Myalgic Encephalomyelitis (ME) Awareness Month.
You can help by re-tooting this 102-second video. "What is ME/CFS?" (excerpt from LEFT OUT, reproduced with kind permission from UpNorth
Film, Norway)
#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
What is ME/CFS? (excerpt from LEFT OUT, reproduced with kind permission from UpNorth Film, Norway)
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by reposting and/or liking this video. It's a preview of a documentary, formerly called "Blue Ribbon" (now called The Forgotten Plague)
(3 minutes 5 seconds)
Day #6
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS
#MyalgicE #PwME #CFSME
@mecfs
The Blue Ribbon: Sneak Peek
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May is #MyalgicEncephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this video. It's been approved for continuing medical education in the US
https://youtu.be/RC9TjgE_PlU?si=wQzPnbfDibMzj7Oa
Diagnosis and Management of Myalgic Encephalomyelitis and Chronic Fatigue Syndrome
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May is #MyalgicEncephalomyelitis (M.E.) Awareness Month. You can help
by sharing +/or liking this video.
It was made by a woman, Laurel,
with severe ME Living with Severe ME (5 minutes 13 seconds)
https://youtu.be/LvweCk44WHs
Day #8
Living with Severe ME: Laurel's CFSAC Testimony (2009)
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this documentary, "Mom Needs to Lie Down".
It's a short Canadian film made in 2014. (11 minutes 25 seconds)
https://www.youtube.com/watch?v=EvrU-ciEFcM&feature=youtu.be
Mom Needs To Lie Down: The years and lives slept away by ME/CFS
May is #MyalgicEncephalomyelitis (M.E.) Awareness Month.
You can help by sharing this documentary, "Invisible". It's a 60-minute documentary made in 2009 (but is timeless) [Skip forward to 14:50 to go to the start of "Invisible" proper]
http://cctv.org/watch-tv/programs/invisible-vermont
INVISIBLE in Vermont
INVISIBLE in Vermont is the title of this panel discussion, hosted by Vermont CFIDS (Chronic Fatigue Immune Dysfunction Syndrome). Thousands of Vermonters are homebound, disabled, misdiagnosed, and misunderstood while living with the realities of Fibromyalgia, Chemical Multiple Sensitivity, Lyme Disease, Gulf War Syndrome and Chronic Fatigue Immune Dysfunction Syndrome. Panelists include: Kenneth J. Friedman PhD., Rik Carlson, both CFIDS Board Members, along with 2 members Julia Bond and Terence Naumann, MD. More information available at: www.vtcfids.org
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#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day
&
May is #MECFSawarenessmonth
Please help by reposting and/or liking this 12-minute documentary which features Whitney Dafoe & others
https://www.youtube.com/watch?v=9_HwOUiImvw
#PwME #SevereME #SevereMECFS
#mecfs #VerySevereME
@mecfs @severeme
Invisible Illness - Stories of Chronic Fatigue Syndrome
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May 12 is International Myalgic Encephalomyelitis (ME) Day (and May is ME Awareness Month) You can help by sharing and/or liking this (well-made) video.
(3 minutes)
https://www.youtube.com/watch?v=IOflARSgNnE
Day #12
#MyalgicE #MyalgicEncephalomyelitis #May12 #May12th #WorldMEDay2023
#WorldMEday #MEAwarenessDay
@mecfs
C.F.S/M.E - The Torturous Disease
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This is a short (78-second) video about postexertional malaise in ME/CFS.
It uses the battery analogy, but also highlights the effects of payback i.e. the unusual results of exertion in ME. There is no sound.
May is #MEAwarenessMonth.
You can help raise awareness and understanding by reposting and/or liking this video
https://www.youtube.com/watch?v=THlRW_YGZmE
Day 13
@mecfs
PEM - post exertional malaise
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(2 minutes)
"How does it feel to live with ME/CFS? Patients describe what it's like"
May is ME Awareness Month.
You can help raise awareness and understanding by retooting this video
How does it feel to live with ME/CFS? Patients describe what it's like
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this 7-minute video, "What is ME? (Myalgic Encephalomyelitis aka Chronic Fatigue Syndrome CFS)".
https://www.youtube.com/watch?v=VKPdgz612nU
Day #15
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May is #MEcfs awareness month.
Please help by sharing +/or liking this
Golden Girls episode on #CFS
https://youtu.be/vVyLZTKDy2E
#Day 16
The Golden Girls: Dorothyās Struggle With CFS/ME ā Awareness Video
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May is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome (#MECFS) Awareness Month.
Please help by sharing +/or liking this 6-minute Paper Stop-motion Animation About ME/CFS https://www.youtube.com/watch?v=dUrPFqGONM8
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #MyE #MEeps
@mecfs
An Existence Project | Paper Stop-motion Animation About ME/CFS
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May is #MyalgicEncephalomyelitis (ME) Awareness Month.
You can help to raise awareness and understanding by retweeting and/orāØliking this 7 minute 8 second-video made on a young UK woman with severeāØME https://www.youtube.com/watch?v=cPH3kKkEYAI
Day 18
āØ#SevereME #SevereCFS
@mecfs #mecfs @severeme
Documentary on life with severe ME/Chronic Fatigue Syndrome on BBC1
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by re-posting and/or liking this video. "A wonderfully illustrated comic to explain M.E also known as Chronic Fatigue Syndrome (CFS) to other people" (2 minutes)
Comic: But........ you did it before by Mahli Quinn
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May is M.E. Awareness Month.
You can help by retooting this video, a 1993 documentary, Living Hell.
14:00-1:10:16 (i.e. 56 minutes). There are also 2 interviews from Tom
Hennessy.
https://www.youtube.com/watch?v=SyB49g_l9Sg
Day 20
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME
@mecfs
Tom Hennessy on MacNeil Lehrer, Living Hell, Larry King - 1992
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May is ME/CFS Awareness Month.
You can help raise awareness and
understanding by sharing and/or liking this 30-second video from the
US Disease Control and Prevention (CDC)
Day #21
CFS/ME CDC "Missing My Life"
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Educate others about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome during ME/CFS Awareness month (May) by sharing and/or liking this 3-minute video
If Only
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Educate others about Myalgic Encephalomyelitis / Chronic Fatigue Syndrome during ME/CFS Awareness month (May) by sharing and/or liking this 9-minute video
Day #23
#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PwME #MyE
@mecfs
M.E. / Chronic Fatigue Syndrome - Sleepydust Video
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May is #MyalgicEncephalomyelitis Awareness Month
You can help by retooting this video, "Reduced Function"
Vera Kindlon & @tomkindlon from the Assoc are among the interviewees* in this, at some points, very moving 20-minute video
https://www.dialogues-mecfs.co.uk/films/patients-experiences/
*Interviewees:
Dr Ben Marsh
Dr Nina Muirhead
"R"
Grace
Lydia
Linda
Graham McPhee
Naomi Whittingham
John Peters
Anna
Tom & Vera Kindlon
Joan McParland
@mecfs #MEcfs #CFS #PwME
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Learn more about Myalgic Encephalomyelitis for ME Awareness month (May) with this 4-minute video https://youtu.be/ZgAa-l-N1Eg Giles Meehan Joan Mcparland
#MyalgicE #MyalgicEncephalomyelitis #MEcfs
Day 25 @mecfs
This is ME - Myalgic Encephalomyelitis
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3-minute Action For M.E. #ME video. Uses survey data to list symptoms & for examples of effects on life https://youtu.be/3aBfoGeUXUg
Day 26
#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #meawareness #mecfsawareness
@mecfs
Do You Care About M.E.?
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May is M.E. Awareness Month. You can help by sharing and/or liking this 15-minute video on #SevereME & #VerySevereME: "Severe & Very Severe ME / CFS #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome" Includes comments from professionals (incl. Drs Muirhead/Weir/Speight/Shepherd/Nacul & Caroline Kingdon (nurse), patients & carers (incl. the Assocās chair )
Discusses various distressing topics
http://www.dialogues-mecfs.co.uk/films/severeme/ #Day27
@mecfs #mecfs #pwme #cfs
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May is ME Awareness month
You can help by retooting this video.
Teenager Ashleigh Lovett made a short (3 minute 28 second) film explaining M.E. Another teenager wore weights on legs and arms to partly experience M.E. symptoms
News
Two years after she was diagnosed with ME, a Fixer from Essex is helping others to understand the condition that can leave her bed-bound. Seventeen-year-old Ashleigh Lovett, who lives in Harwich, is concerned that ME, also known as chronic fatigue syndrome, is often mistaken for laziness. With Fixers, sheās created a film to shatter that myth and reveal the challenges faced by those living with the symptoms which include extreme physical and mental tiredness. āI wanted to raise awareness of the condition to better inform people about what it actually is,ā says Ashleigh. āBy doing this I hope to help those with ME, as people around them will be able to understand. āBefore I was diagnosed, I had no clue what it was.ā In her film Ashleigh enlists the help of fellow Fixer, Abbie Elwood, to demonstrate how it feels to have ME. Abbie wears weights on her arms and legs to simulate the feeling of heavy limbs before being challenged to complete everyday tasks like shopping and getting ready. She admits finding the activities a struggle. āI hadnāt really heard of ME before,ā Abbie says. āI would've assumed it was just being tired now and again. āOnce I put the weights on and started to do what Ashleigh would do day-to-day, it really started to show how hard it is for her to do the simplest things.ā Ashleigh, whose story was featured on ITV News Anglia in October 2013, hopes to show her film to school pupils. āI plan to share it with local schools, as one of the main causes of absence at school is ME,ā she adds. āI would also like to promote it on social media so it can reach a wide range of people. āI think my Fixers film is amazing and really gets the message across. āI hope that people will learn to recognise ME and will understand what a sufferer is feeling so they know how they can help.ā You can watch the film āM.E. and Meā at the top of this page. For more information and help visit the NHS, ME Association and the Association of Young People with ME websites.
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May is #MyalgicEncephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this video.
Fixer Ashleigh & Jodie Cleary discuss their experiences of M.E. (3 minutes 38 seconds).
Also includes Jane Colby of the @tymestrust. ITV News Anglia (local UK news programme)
https://www.fixers.org.uk/news/7611-11208/me-and-me-story-on-itv-anglia.php
Day 29
@mecfs #mecfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
News
A Fixer from Harwich in Essex wants to raise awareness of the medical condition Myalgic Encephalomyelitis (ME) to stop people mistaking it for laziness. Her story was shown on ITV News Anglia on Thursday 3rd October. Fixer Ashleigh Lovett (17) was diagnosed with ME, or chronic fatigue syndrome, two years ago. Her symptoms include heavy limbs and painful legs, and some days it is so bad that she is unable to get out of bed. āPeople didnāt believe I was ill at first,ā says Ashleigh. āThere is no physical sign of ME, so people used to say I was spoilt and lazy. It hurt a lot.ā With the help of Fixers, Ashleigh wants to create a weighted suit for people to wear so they can understand what it is like to live with ME. āI did feel very isolated from everyone else because I didnāt know anyone who had it,ā Ashleigh explains. 'I didnāt know where to turn to talk about it, because I didnāt think anyone else would understand.ā In the broadcast piece, Ashleigh meets 19-year-old Jodie Cleary, who found out she had ME eight years ago. āNo one believed me until I was diagnosed,ā says Jodie. āThen to get better I needed support. I needed people to say āItās OK, I had it, but guess what, Iām married now and Iāve had kidsā. I needed other people to tell me I could get out of this hole.ā According to Jane Colby from the Tymes Trust, who appears in the broadcast, ME is the most common cause of long-term sickness absence from school among both pupils and teachers. With her Fix Ashleigh hopes to reach out to those affected by the condition, saying: āI want to raise awareness of ME so other people donāt have to go through the same thing I went through.ā For more information and help, visit the Action for M.E. website.
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
Daughter tries to raise awareness and understanding of M.E., which her mother suffers from, with a film she made, "Sleeping Beauty". Piece from a UK local TV station
https://www.itv.com/news/meridian/update/2014-08-07/trying-to-understand-me-a-daughters-story Day #30
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@mecfs
30 part b/
Here's the full video, "Sleeping Beauty", that a daughter of a woman with ME made to increase awareness and understanding of the illness (4 minutes 32 seconds)
Day 30
@mecfs
News
Becoming aware of the struggles faced by people living with ME when her mum received her diagnosis, Hollie Ransley is using a famous fairy tale to banish myths surrounding the condition. The 25-year-old from Gosport wants to encourage support for those with myalgic encephalomyelitis, also known as chronic fatigue syndrome, by making sure that it isnāt mistaken for laziness. āI want to teach people about it to prevent ignorance and lack of knowledge,ā Hollie explains. āThis would create a better understanding and empathy towards sufferers. 'My mum was diagnosed with ME, as well as fibromyalgia. āIāve witnessed her lose her independence and itās clear to see that she is restricted when it comes to everyday tasks. āThe pain and hidden symptoms experienced by someone with the condition arenāt always obvious.ā With Fixers, Hollie has created a film based on the tale of Sleeping Beauty. It tells the story of a bed-bound princess under the ācruel spellā of ME. In the video sheās approached by a number of potential suitors, finding love with the only prince who understands her situation and is willing to support her through it. Watch Hollieās film āSleeping Beautyā at the top of this page. āI think the film will attract a young audience to help raise awareness,ā she says. āIt isnāt too serious or overcomplicated and it highlights the key symptoms and the issues involved. āUsing a well-known story should get peopleās attention straight away.ā Hollie hopes her Fixers film will be used in schools to help younger generations recognise when someone has chronic fatigue syndrome. āStarting with young people is a step towards changing opinions and knowledge of ME in the future. āThe film would also be beneficial as an advert in medical surgeries. āIt would reach people who many not get a chance to learn about the condition if they arenāt experiencing it themselves or donāt know someone who has it. āI hope to provide information for people wanting to find out more about the illness.ā Help Fix It - Share this story! Essex Fixer Ashleigh knows what itās like to live with ME. See what happens when her friend wears weights on her arms and legs to simulate her symptoms.
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May is #MyalgicEncephalomyelitis /Chronic Fatigue Syndrome Awareness Month.
You can help by sharing and/or liking this video.
"Unbroken" (and "Seabiscuit") author, Laura Hillenbrand opens up about
her own personal struggle with ME/CFS
"Unbroken" author opens up about her own personal struggle
Hisses with Geese š±I didn't realize I had PEM six or so years ago. Iād work on a farm project, then send the next 7-10 days exhausted on the couch. Thought I was lazy or out-of-shape. PEM is most known to the ME/CFS communities, but it can also come about with other auto-immune issues and illnesses. Wishing us ALL a chance to rest and rejuvenate.