Irish ME/CFS Association🧵
May is Myalgic Encephalomyelitis (ME) Awareness Month.
You can help by liking and/or sharing this video. This 2017 TED talk features Jennifer Brea.
#MyalgicE #mecfs @mecfs
#MyalgicEncephalomyelitis
Day #1
YouTube
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May is Myalgic Encephalomyelitis (ME) Awareness Month.
You can help by sharing and/or liking this video. It is 3 minutes 5 seconds long.
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This film will give you an introduction to PEM (Post Exertional Malaise).
ME and PEM
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May is #MyalgicEncephalomyelitis (ME) Awareness Month.
You can help by reposting this video
(9 minutes) This is ME (2020) "A short film exploring 'Spoon Theory' told through the eyes of a young woman struggling with ME/#ChronicFatigueSyndrome" https://vimeo.com/338532785 "The best thing I’ve ever done: Filmmaker with ME wants to raise awareness of hidden illness" https://www.swlondoner.co.uk/this-is-me-filmmaker-josh-pickup/
This is ME (2020)
A short film exploring 'Spoon Theory' told through the eyes of a young woman struggling with ME/Chronic Fatigue Syndrome ** Follow Pickup_Films on Twitter…
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(2 minutes)
"What is ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)?"
https://www.youtube.com/watch?v=X6f4zCe2ZtA
You can help by reposting this short video
#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
Day #4
@mecfs
What is ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)
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May is Myalgic Encephalomyelitis (ME) Awareness Month.
You can help by re-tooting this 102-second video. "What is ME/CFS?" (excerpt from LEFT OUT, reproduced with kind permission from UpNorth
Film, Norway)
#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
What is ME/CFS? (excerpt from LEFT OUT, reproduced with kind permission from UpNorth Film, Norway)
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by reposting and/or liking this video. It's a preview of a documentary, formerly called "Blue Ribbon" (now called The Forgotten Plague)
(3 minutes 5 seconds)
Day #6
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS
#MyalgicE #PwME #CFSME
@mecfs
The Blue Ribbon: Sneak Peek
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May is #MyalgicEncephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this video. It's been approved for continuing medical education in the US
https://youtu.be/RC9TjgE_PlU?si=wQzPnbfDibMzj7Oa
Diagnosis and Management of Myalgic Encephalomyelitis and Chronic Fatigue Syndrome
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May is #MyalgicEncephalomyelitis (M.E.) Awareness Month. You can help
by sharing +/or liking this video.
It was made by a woman, Laurel,
with severe ME Living with Severe ME (5 minutes 13 seconds)
https://youtu.be/LvweCk44WHs
Day #8
Living with Severe ME: Laurel's CFSAC Testimony (2009)
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this documentary, "Mom Needs to Lie Down".
It's a short Canadian film made in 2014. (11 minutes 25 seconds)
https://www.youtube.com/watch?v=EvrU-ciEFcM&feature=youtu.be
Mom Needs To Lie Down: The years and lives slept away by ME/CFS
May is #MyalgicEncephalomyelitis (M.E.) Awareness Month.
You can help by sharing this documentary, "Invisible". It's a 60-minute documentary made in 2009 (but is timeless) [Skip forward to 14:50 to go to the start of "Invisible" proper]
http://cctv.org/watch-tv/programs/invisible-vermont
INVISIBLE in Vermont
INVISIBLE in Vermont is the title of this panel discussion, hosted by Vermont CFIDS (Chronic Fatigue Immune Dysfunction Syndrome). Thousands of Vermonters are homebound, disabled, misdiagnosed, and misunderstood while living with the realities of Fibromyalgia, Chemical Multiple Sensitivity, Lyme Disease, Gulf War Syndrome and Chronic Fatigue Immune Dysfunction Syndrome. Panelists include: Kenneth J. Friedman PhD., Rik Carlson, both CFIDS Board Members, along with 2 members Julia Bond and Terence Naumann, MD. More information available at: www.vtcfids.org
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#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day
&
May is #MECFSawarenessmonth
Please help by reposting and/or liking this 12-minute documentary which features Whitney Dafoe & others
https://www.youtube.com/watch?v=9_HwOUiImvw
#PwME #SevereME #SevereMECFS
#mecfs #VerySevereME
@mecfs @severeme
Invisible Illness - Stories of Chronic Fatigue Syndrome
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May 12 is International Myalgic Encephalomyelitis (ME) Day (and May is ME Awareness Month) You can help by sharing and/or liking this (well-made) video.
(3 minutes)
https://www.youtube.com/watch?v=IOflARSgNnE
Day #12
#MyalgicE #MyalgicEncephalomyelitis #May12 #May12th #WorldMEDay2023
#WorldMEday #MEAwarenessDay
@mecfs
C.F.S/M.E - The Torturous Disease
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This is a short (78-second) video about postexertional malaise in ME/CFS.
It uses the battery analogy, but also highlights the effects of payback i.e. the unusual results of exertion in ME. There is no sound.
May is #MEAwarenessMonth.
You can help raise awareness and understanding by reposting and/or liking this video
https://www.youtube.com/watch?v=THlRW_YGZmE
Day 13
@mecfs
PEM - post exertional malaise
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(2 minutes)
"How does it feel to live with ME/CFS? Patients describe what it's like"
May is ME Awareness Month.
You can help raise awareness and understanding by retooting this video
How does it feel to live with ME/CFS? Patients describe what it's like
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this 7-minute video, "What is ME? (Myalgic Encephalomyelitis aka Chronic Fatigue Syndrome CFS)".
https://www.youtube.com/watch?v=VKPdgz612nU
Day #15
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May is #MEcfs awareness month.
Please help by sharing +/or liking this
Golden Girls episode on #CFS
https://youtu.be/vVyLZTKDy2E
#Day 16
The Golden Girls: Dorothy’s Struggle With CFS/ME – Awareness Video
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May is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome (#MECFS) Awareness Month.
Please help by sharing +/or liking this 6-minute Paper Stop-motion Animation About ME/CFS https://www.youtube.com/watch?v=dUrPFqGONM8
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #MyE #MEeps
@mecfs
An Existence Project | Paper Stop-motion Animation About ME/CFS
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May is #MyalgicEncephalomyelitis (ME) Awareness Month.
You can help to raise awareness and understanding by retweeting and/or
liking this 7 minute 8 second-video made on a young UK woman with severe
ME https://www.youtube.com/watch?v=cPH3kKkEYAI
Day 18

#SevereME #SevereCFS
@mecfs #mecfs @severeme
Documentary on life with severe ME/Chronic Fatigue Syndrome on BBC1
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by re-posting and/or liking this video. "A wonderfully illustrated comic to explain M.E also known as Chronic Fatigue Syndrome (CFS) to other people" (2 minutes)
Comic: But........ you did it before by Mahli Quinn
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May is M.E. Awareness Month.
You can help by retooting this video, a 1993 documentary, Living Hell.
14:00-1:10:16 (i.e. 56 minutes). There are also 2 interviews from Tom
Hennessy.
https://www.youtube.com/watch?v=SyB49g_l9Sg
Day 20
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME
@mecfs
Tom Hennessy on MacNeil Lehrer, Living Hell, Larry King - 1992
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May is ME/CFS Awareness Month.
You can help raise awareness and
understanding by sharing and/or liking this 30-second video from the
US Disease Control and Prevention (CDC)
Day #21
CFS/ME CDC "Missing My Life"
Hisses with Geese 🌱I didn't realize I had PEM six or so years ago. I’d work on a farm project, then send the next 7-10 days exhausted on the couch. Thought I was lazy or out-of-shape. PEM is most known to the ME/CFS communities, but it can also come about with other auto-immune issues and illnesses. Wishing us ALL a chance to rest and rejuvenate.