True!
Quote from a 2022 paper:
"SARS-CoV-2 is not unique in its ability to cause post-acute sequelae; certain acute infections have long been associated with an unexplained chronic disability in a minority of patients."
This paper uses the term Post-Acute Infection Syndrome (PAIS). Another umbrella term I've heard is Infection Associated Chronic Conditions (IACC).
Link:
https://www.nature.com/articles/s41591-022-01810-6
#LongCovid #MEcfs #PASC #PAIS #IACC #ChronicIllness #Disability
Well worth reading this article, especially if you've experienced medical gaslighting, minimizing, dismissal, or abuse. And if you haven't, still worth reading -- the chronic illness and disability communities are two that any person can join at any time, without warning.
https://drzedzha.substack.com/p/the-patient-with-the-splinter
#LongCovid #ComplexChronicIllness #MECFS #undiagnosedillness #IACC #InfectionAssociatedChronicConditions #PostViralIllness #spoonie #disability #medicalgaslighting
On October 31, at the University of Michigan’s Ross School of Business in Ann Arbor, top graduate students will compete to develop innovative business solutions for the IACC community. This event, which will be open to the public, will include testimonials from people with Long COVID and an expert panel, as well as the competition itself, which will offer $10,000 in prizes.
By @RTHM_Health
"A new study suggests that exercise doesn’t clear microclots in people with Long COVID—it just fragments them into smaller ones. These smaller clots are linked to increased inflammation and impaired oxygen transport, which may help explain post-exertional malaise (PEM) and post-exertional symptom exacerbation (PESE)—a worsening of symptoms after even mild physical or mental effort."
"Researchers observed these microclot and inflammatory changes even after submaximal exertion, highlighting the need for caution when recommending exercise-based therapies."
Want more research breakdowns like this? Sign up for our email list at https://linktr.ee/rthm_health
🔗 DOI: https://doi.org/10.21203/rs.3.rs-6717727/v1
#LongCOVID #ChronicFatigue #pwLC #PostCOVID #rthm_health #LongCOVIDResearch #PESE #PEM #IACC #COVID19 #Microclots @auscovid19
Doctors as Patients
(subtitled)
In this film, five medical doctors open up about living with #PAIS / #IACC conditions like ME, #longCOVID, and chronic #Lyme. [...] They speak candidly about their experiences with illness, what they were taught (or not taught) in medical school, and how that shaped their own treatment decisions—sometimes even leading to harm. They reflect on how becoming patients themselves radically changed their views on medicine, science, and what needs to change in healthcare. It’s raw, honest, and incredibly insightful—for medical professionals, researchers, politicians, and patients alike.
(YT)
https://www.youtube.com/watch?v=J0ywwLIfH_w
(Shared by @venite : who is right about many things, but especially this documentary)
A new film from @anilvanderzee. Made in The Netherlands and with English subtitles.
"In this film, five medical doctors open up about living with #PAIS / #IACC conditions like ME, #longCOVID, and chronic #Lyme.”
"They speak candidly about their experiences with illness, what they were taught (or not taught) in medical school, and how that shaped their own treatment decisions—sometimes even leading to harm. They reflect on how becoming patients themselves radically changed their views on medicine, science, and what needs to change in healthcare. It’s raw, honest, and incredibly insightful—for medical professionals, researchers, politicians, and patients alike.”
It's already had over 6000 views in less than a day, which should inform decision makers of the urgent demand required of #medicine to take conditions like #MECFS seriously, professionally and ethically.
LongCovid and MECFS - WEBINAR WILL DR. DAVID PUTRINO
#IACC #LongCOVID #LongCOVIDResearch #MECFS #POTS #MCAS #COVID19 #COVIDisNotOver #rthm_health #LongCOVIDTreatments #ChronicIllnessCare
#Clinician's Roundtable with Tania Dempsey, MD on March 14th
Dr. Dempsey will give a 45-minute lecture on #vector-borne illnesses often seen as co-infections in #MECFS and #LongCovid, followed by a 15-minute Q&A .
Register now at https://us06web.zoom.us/webinar/register/2117347281730/WN_qDphjDHhQa-OXwLpvxgEAw#/registration
#iacc #chronic #illness #infectious #MD #clinician #medX #patientled #millionsmissing #nesvoid #pwME
Dr. Dempsey's will give a 45-minute lecture on vector-borne illnesses often seen as co-infections in ME/CFS & Long Covid, followed by a 15-minute Q&A . Dr. Dempsey is the founder of the AIM Center for Personalized Medicine - Internal and Integrative Medicine. She is a world renowned expert in chronic disease, autoimmune disorders, and mast cell activation syndrome, and is sought after internationally for her knowledge of chronic immune dysregulation. Dr. Dempsey’s extensive knowledge and experience in Mast Cell Activation Syndrome, mold, and Lyme Disease, has propelled her to the forefront of the functional medical community as a recognized and trusted speaker, researcher, advocate, and physician. "Never let anyone, especially a medical professional, tell you that your symptoms are not real or they don’t fit a specific disease. You know your body better than anyone else, so listen to it and keep searching for answers if you haven’t found them yet. And remember that you only get one body, so treat it well." - Tania Dempsey, MD. Dr. Dempsey's podcast: Mast Cell Matters https://drtaniadempsey.com/podcast/ Dr. Dempsey appearances: https://drtaniadempsey.com/press-media/ Dr. Dempsey: main website https://drtaniadempsey.com
The threat to #publichealth has never been greater. Your support helps push back against rising obstacles, sustain progress, & ensure the #LongCOVID & #IACC communities are seen, supported, & empowered. Please stand w/ us as we #FightforOurFuture!
The Threat to Public Health Has Never Been Greater. Now More Than Ever, We Need Your Support to Advance Long COVID Education and Resources to Ensure a Better Future for People with Long COVID and Infection-Associated Chronic Conditions.
ahimsa
gypsyvegan
Jeweljam
Denis - The COVID info guy -
Christophe Veltsos
Leonieke
David Davies-Payne
MEActNOW
KimK ... one day at a time
Longhauler Advocacy Project