Autistic Self Advocacy Network [Unofficial]IACC must do better for autistic people
April IACC Comments – 2026
JuliaThis is my favourite podcast on complex chronic conditions so far:
🎙️Make Visible: Chronic Illness Explored
Homepage:
https://madevisible.podbean.com/
Themes included:
ME/CFS
Long Covid
Ehlers Danlos ( #EDS )
#Fibromyalgia
#POTS
Mast Cell Activation Syndrome ( #MCAS )
Chronic Lyme
Infection Associated Chronic Conditions ( #IACC ) and more.
Make Visible: Chronic Illness Explored | Visible with Emily Kate Stephens
Shining a light on invisible illness.<br /><br />Emily Kate Stephens, journalist and Long Covid sufferer, discusses the latest research and insights with the world’s leading experts, scientists and healthcare professionals. Including ME/CFS, Long Covid, E...
AhimsaTrue!
Quote from a 2022 paper:
"SARS-CoV-2 is not unique in its ability to cause post-acute sequelae; certain acute infections have long been associated with an unexplained chronic disability in a minority of patients."
This paper uses the term Post-Acute Infection Syndrome (PAIS). Another umbrella term I've heard is Infection Associated Chronic Conditions (IACC).
Link:
https://www.nature.com/articles/s41591-022-01810-6
#LongCovid #MEcfs #PASC #PAIS #IACC #ChronicIllness #Disability
gypsyveganWell worth reading this article, especially if you've experienced medical gaslighting, minimizing, dismissal, or abuse. And if you haven't, still worth reading -- the chronic illness and disability communities are two that any person can join at any time, without warning.
https://drzedzha.substack.com/p/the-patient-with-the-splinter
#LongCovid #ComplexChronicIllness #MECFS #undiagnosedillness #IACC #InfectionAssociatedChronicConditions #PostViralIllness #spoonie #disability #medicalgaslighting
JeweljamCan’t wait to attend this virtually! #IACC #CovidIsNotOver #COVIDisAirborne #N95sSaveLives #CleanAirNow #LongCovid #LongCovidKids #WeNotMe #TogetherWeCan #ShareTheCare https://thesicktimes.org/2025/10/03/long-covid-inspired-me-to-start-an-iacc-case-competition-at-my-business-school-heres-how-you-can-get-involved/
Long COVID inspired me to start an IACC case competition at my business school. Here’s how you can get involved. - The Sick Times
On October 31, at the University of Michigan’s Ross School of Business in Ann Arbor, top graduate students will compete to develop innovative business solutions for the IACC community. This event, which will be open to the public, will include testimonials from people with Long COVID and an expert panel, as well as the competition itself, which will offer $10,000 in prizes.
Denis - The COVID info guy -By @RTHM_Health
"A new study suggests that exercise doesn’t clear microclots in people with Long COVID—it just fragments them into smaller ones. These smaller clots are linked to increased inflammation and impaired oxygen transport, which may help explain post-exertional malaise (PEM) and post-exertional symptom exacerbation (PESE)—a worsening of symptoms after even mild physical or mental effort."
"Researchers observed these microclot and inflammatory changes even after submaximal exertion, highlighting the need for caution when recommending exercise-based therapies."
Want more research breakdowns like this? Sign up for our email list at https://linktr.ee/rthm_health
🔗 DOI: https://doi.org/10.21203/rs.3.rs-6717727/v1
#LongCOVID #ChronicFatigue #pwLC #PostCOVID #rthm_health #LongCOVIDResearch #PESE #PEM #IACC #COVID19 #Microclots @auscovid19
Christophe VeltsosDavid Putrino's 🎯 🧵 below connects a lot of dots and many top researchers/scientists in this space👇
threadreaderapp.com/thread/19334...
🙏 @putrinolab.bsky.social
#LongCOVID, #MECFS, #Lyme, #IACI, #IACC
LeoniekeDoctors as Patients
(subtitled)
In this film, five medical doctors open up about living with #PAIS / #IACC conditions like ME, #longCOVID, and chronic #Lyme. [...] They speak candidly about their experiences with illness, what they were taught (or not taught) in medical school, and how that shaped their own treatment decisions—sometimes even leading to harm. They reflect on how becoming patients themselves radically changed their views on medicine, science, and what needs to change in healthcare. It’s raw, honest, and incredibly insightful—for medical professionals, researchers, politicians, and patients alike.
(YT)
https://www.youtube.com/watch?v=J0ywwLIfH_w
(Shared by @venite : who is right about many things, but especially this documentary)
Doctors as Patients (with subtitles)
David Davies-PayneA new film from @anilvanderzee. Made in The Netherlands and with English subtitles.
"In this film, five medical doctors open up about living with #PAIS / #IACC conditions like ME, #longCOVID, and chronic #Lyme.”
"They speak candidly about their experiences with illness, what they were taught (or not taught) in medical school, and how that shaped their own treatment decisions—sometimes even leading to harm. They reflect on how becoming patients themselves radically changed their views on medicine, science, and what needs to change in healthcare. It’s raw, honest, and incredibly insightful—for medical professionals, researchers, politicians, and patients alike.”
It's already had over 6000 views in less than a day, which should inform decision makers of the urgent demand required of #medicine to take conditions like #MECFS seriously, professionally and ethically.
