Mastodawn

This is my favourite podcast on complex chronic conditions so far:

🎙️Make Visible: Chronic Illness Explored

Homepage:
https://madevisible.podbean.com/

Themes included:

ME/CFS
Long Covid
Ehlers Danlos ( #EDS )
#Fibromyalgia
#POTS
Mast Cell Activation Syndrome ( #MCAS )
Chronic Lyme
Infection Associated Chronic Conditions ( #IACC ) and more.

#mecfs
#postcovid
#LongCovid
#postvac
#podcast
#makevisible

Make Visible: Chronic Illness Explored | Visible with Emily Kate Stephens

Shining a light on invisible illness.<br /><br />Emily Kate Stephens, journalist and Long Covid sufferer, discusses the latest research and insights with the world’s leading experts, scientists and healthcare professionals. Including ME/CFS, Long Covid, E...

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ahimsa Dec 21, 2023

Thanks for tagging me @adminkirsty

Hi @jilleduffy 👋

One topic that's of interest to me is the new Visible tracker app (and device?) for folks with chronic illness, specifically ME/CFS and Long Covid, but also other illnesses.

https://www.makevisible.com/

I'm not using it myself but I've seen a couple folks post about it on Mastodon - check #Visible & #MakeVisible

Visible - Activity tracking for illness, not fitness.

Visible provides the tools you need to understand your energy-limiting condition. Use data to pace your activity, manage your symptoms, and help move science forward.

Nick Jeffreys Nov 26, 2022

Everyone on here will be way ahead on this, but just to say my daughter (27, 2 years #LongCOVID ) just started using the new #visible app from #makevisible.com and is finding it really helpful making her aware of what things do and don't exacerbate crashes