Observatory?
Radio dome?
Pine cone?
Truffle?

🍄‍🟫
#FungiFriday #Mushrooms #Fungi #Mushroom #Mushtodon #Forest #Wildlife #Outdoors #Nature #Fungus #Fungiverse #MushroomMonday #Scleroderma #TextureTuesday #Pilze

If you have had an iron infusion … what should I expect afterwards?

Got hematology finally booked for end October through a special booking website for the whole of Germany with a ‘vermittlungscode’ (priority code) from the GP as the iron anaemia is not resolving with ingested rust (years now… is a sclerosis thing). The folate anaemia came good with tablets.

The site booked the same place that said they can’t take new patients at the start of the year (didn’t have a special code back then). Hah. This amuses me.

#SystemicSclerosis #Scleroderma #Spoonies #ChronicIllness

Gut feeling was on the money - from self experimentation with ACC dissolvable tablets - acetylcysteine seems to help long term with lung issues in systemic sclerosis. Personally, it helps stop the coughing fits and makes it easier to swallow. I’ll double check with the rheumy next I see her, but happy to find this study.

https://pubmed.ncbi.nlm.nih.gov/21978705/

#SystemicSclerosis #Scleroderma #rheumatology #RareDiseases #spoonies

Patients with #scleroderma who met ASTIS or SCOT inclusion criteria but were managed without autologous stem cell transplant show similar event-free survival to those transplanted in original trials.

Does this reflect confounders or standard of care improving over time?

In Arthritis & Rheumatology
https://loom.ly/q3uzwLg