Reisen mit SBB: Umgang mit unsichtbaren Behinderungen im ÖV und mehr Verständnis durch kleine Zeichen – Verband Angiodysplasie Schweiz

PNH And AHUS Market Growth, Drivers Report 2026 To 2035 Sample

The global PNH And AHUS market size is expected to reach $8.42 by 2030 at 7.1%, driven by rising prevalence of rare diseases.

Tackling rare diseases - Publications Office of the EU

There are around 36 million patients suffering from rare diseases in the EU. This in-depth analysis gives an overview of European actions for rare diseases to date and identifies opportunities and gaps for further EU level actions to improve diagnosis, care, and treatment for rare diseases. This document was provided by the Policy Department for Economic, Scientific and Quality of Life Policies at the request of the Committee on Public Health (SANT).

Q&A: Families shouldn’t have to coordinate Sweden’s rare disease care

A Q&A with Zozan Sewger Kvist, CEO of rare disease competence center Ågrenska, on stalled reform, uneven access to care in Europe and the limits of regulation.

Rare sun disorder kept Saskatoon man indoors for decades until a clinical trial changed everything | CBC News

Kris Kinar lived 30 years with EPP, spending most of his time indoors. After a tough diagnosis in his mid-30s, he thought he would live with it for the rest of his life. In early 2025, he began a clinical trial after meeting a doctor who understood the science.