#runnersofmastodon #running #runninggrannies #alienrunners #paresthesia #neuropathy #CIDP #polyradiculopathy #raredisease
Hello my dear peeps, I have the verdict. I have a rare chronic auto-immune disease attacking my nerves: CIDP or chronic polyneuropathy. This dark cloud has a tiny silver lining: there is treatment possible. Fingers crossed now I will react positive on it.
Waiting for the hospital to call me when I can start the immunoglobulin treatment.
#runnersofmastodon #running #runninggrannies #alienrunners #paresthesia #neuropathy
Hello my dear peeps, since last month I lost the feeling in my little and ring finger and have difficulty writing. Good thing we’re using computers in this age. I walk with nordic walking sticks to avoid falling. Working with the physiotherapist on balance and coordination. Tomorrow I have an appointment with the neurologist to hear the diagnosis. I’m a bit nervous. Cross your fingers for me they can treat me.

🧠 Numbness. Tingling. Burning pain. Neuropathy is a hidden burden for many living with multiple myeloma.

Our new post explores how cancer and its treatments damage nerves, why symptoms vary, and what management strategies, from medications to self‑care—can ease the impact. Raising awareness means better support for patients and caregivers.

👉 https://blog.banishcancer.org/multiple-myeloma-and-neuropathy-symptoms-causes-management/

#MultipleMyeloma #Neuropathy #Oncology #CancerAwareness #PatientSupport #BanishCancer

I have #peripheral #neuropathy in both feet. Cannot feel anything on the front half of either foot (1/10 on Ipswich a few years ago).
An hour or so ago I sat down to catch up on online stuff. Stood up a few minutes ago and there are large bloodstains on the carpet. Again, deep cut - from where?? - in a toe. Can't feel a thing, hard to clean.

Yes, I know the answer is #slippers but No, Just No. I'm not THAT old yet.