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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this 15-minute video on #SevereME & #VerySevereME: "Severe & Very Severe ME / CFS Myalgic Encephalomyelitis / Chronic Fatigue Syndrome"
Includes comments from professionals (incl. Drs Muirhead/Weir/Speight/Shepherd/Nacul & Caroline Kingdon (nurse), patients & carers (incl. Association chairperson) Discusses various distressing topics http://www.dialogues-mecfs.co.uk/films/severeme/
Artikel:
Es gibt kein spezialisiertes Pflegeangebot für #VerySevereME !
🧵
Hospital Care Plan for Severe-Very Severe ME/CFS and long COVID (and associated conditions, e.g.: dysautonomia)
Would be great if hospital staff took these recommendations on board.
#MEcfs @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#SevereME #VerySevereME #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
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(UK)
#ThereForME co-founder Karen Hargrave writes about applying for Continuing Healthcare funding
https://www.thereforme.uk/p/why-is-continuing-healthcare-funding
Screenshot from latest Science for ME weekly update
#SevereME #SevereMECFS
#SevereCFS #VerySevereME
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
@tomkindlon
Stonebird books on severe ME and caring now available to download for free
#MyalgicEncephalomyelitis #SevereME #SevereMECFS
#SevereCFS #VerySevereME #PwME
Stonebird books on severe ME and caring now available to download for free
Screenshot from Stonebird Facebook page (of Greg & Linda Crowhurst)
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
#SevereME #SevereMECFS
#SevereCFS #VerySevereME #PwME
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"The human body and mind were not designed to be encased in darkness, yet, for so many of us, this is our enforced mode of existence."
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“These results indicate that it may be beneficial for severely and very severely affected ME/CFS patients to be cared for in an environment where they are met with respect, understanding with the aim to reduce PEM as much as possible.”
Care instructions for how to take care of people with severe ME.
Google translation:
https://drive.google.com/file/d/1phdngalXgINYG-4eiySeyE1VumaZg7aN/view
Screenshot from latest Science for ME weekly update
#SevereME #MEcfs #CFS #PwME #VerySevereME
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome
Irish ME/CFS Association
Violet
Tom Kindlon
BenNevis
Fatigatio e.V.