Without clear clinical guidelines in México, people with Long COVID face gaslighting and erasure
Key points you should know:
-Long COVID may affect millions of Mexicans, but a lack of information prohibits adequate medical care and innovative research.
-Some Mexican doctors are calling on the government to establish a national clinical guideline, which could direct local clinics and medical experts on how best to diagnose and treat the disease.
-Similar to other countries, the government places higher-priority on surveilling and addressing other easier-to-diagnose diseases, like dengue.
-Despite attempts to approve a clinical guideline, the government agency in charge of approvals has yet to review the proposal.
“In Mexico, if there’s no statistics, there’s no patients. If there’s no patients, there’s nothing to treat,” said Cesar Lepe Medina, the 34-year-old founder of the Long Covid Mexico Comunidad Solidaria Facebook group, which is a support and advocacy group with some 6,500 members. “If there’s nothing to treat, there’s no need for public policy or programs to draw attention to it.”
Compare Long COVID to dengue, a disease that is easier to diagnose due to tests and which México tracks publicly. When cases explode as they did in 2023 and 2024 — last year México confirmed more than 124,000 cases and 478 deaths — government officials and the press rushed to respond. For example, the government pushed national campaigns and prevention strategies against dengue, and state health departments implemented strategies to eliminate mosquitos.
In addition to Long COVID, Lepe Medina has contracted dengue twice. He notices the difference in how his country addresses them. While dengue is discussed, Lepe Medina said Long COVID is “taboo.”
“Here in México, they talk more about the flu and dengue than COVID-19,” Lepe Medina said. “We are collateral damage that no one wants to take on because we require a lot more money and resources.” Lepe Medina said his private medical insurance hasn’t paid “a peso” because Long COVID isn’t recognized in Mexico.
Rodríguez Álvarez suspects the government doesn’t want to take on the cost if too many Mexicans have Long COVID; with recognition, the government would be on the hook for consultations, tests, and treatments. If the narrative is up to the government doctors, “they will probably tell you that you don’t have anything,” he said.
Limited resources means México also lags behind other countries when it comes to research. In one 2024 study of global Long COVID prevalence, Mexican researchers noted that “nearly all evidence has been obtained in the U.S., Europe, and Asia.” Per another 2024 study that analyzed international Long COVID clinical studies, the authors suggested the highest number of studies occurred in the U.S., India, and Spain. Meanwhile, México has conducted only four Long COVID studies, according to a search on World Health Organization’s International Clinical Trials Platform.
“In the U.S., Germany, Great Britain, and Spain there’s more advancements overall among scientists who are doing investigations,” said Aristóteles Ramírez, a political science professor at the Universidad Autónoma de Querétaro who developed Long COVID following an infection in fall 2020. When he researched his symptom of dysautonomia, he didn’t find any Mexican studies. Only Spanish ones.
Findings from México’s scientists also aren’t making it into clinics, Ramírez added. But research is needed for new strategies to help manage symptoms. He wants more research focusing on Long COVID care strategies in México. “Don’t tell me there’s no answer,” he said.
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