(7 minutes)
10-minute NASA lean: passive standing test demonstration

https://www.youtube.com/watch?v=96GCnYWX8D4

Screenshot from AMMES June 2026 newsletter

#LongCovid #MEcfs #PwME #dysautonomia #POTS #OrthostaticIntolerance @longcovid @mecfs @pots

Hat jemand Erfahrung mit Lithium bei #MECFS gegen Brainfog?

Menschen mit Long-/Post-Covid/MECFS aus dem erweiterten CCC-Umfeld haben eine kleine Selbsthilfegruppe auf Signal. Falls da jemand dazukommen möchte, meldet euch gern bei mir.

 

#CCC #LongCovid #LongCCCovid #PostCovid #MeCFS @longcovid #mecfs_de

Fragebogen | Seite 1

New from Serbia:

Long-Term Follow-Up of Women with Myalgic
Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): A 16-Year Longitudinal Study

https://www.mdpi.com/1648-9144/62/6/1114

#MEcfs #PwME #ME #MyalgicE
@mecfs

(USA)
#MEAction "We’re furious: Last-minute changes to defining medical frailty"

https://www.meaction.net/post/we-re-furious-last-minute-changes-to-defining-medical-frailty

Screenshot from AMMES June 2026 newsletter

#MEcfs #PwME #ME #MyalgicE
@mecfs

Angesichts der neuerlichen gehäuften Todesmeldungen von #MEcfs Betroffenen möchte ich meinen Thread von X aus dem letzten Jahr hier ins Fediverse übertragen.

Die darin enthaltenen Accountnamen stammen von X.
Der damalige Thread hat nichts an Gültigkeit verloren. Er beginnt im nächsten Post. ⬇️🧵
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4/

Inga has now added this in one of the comments on my Facebook page: “thank you for your interest in our study, the study’s ethical approval allows travel to perform the study at home for participants with mobility restrictions, but in practice this means within 30 min cycling time from JR hospital in Oxford due to the fragility of the samples.”

#mecfs #longcovid

@mecfs @longcovid

It would be wonderful if similar facilities were available in other countries

Specialised care for severely affected ME/CFS patients

https://www.tandfonline.com/doi/full/10.1080/21641846.2025.2565101

Screenshot from AMMES June 2026 newsletter

#SevereME #MEcfs #PwME #VerySevereME #ME #MyalgicE
@mecfs

From New Zealand

Precision Medicine Study of Post-Exertional Malaise Epigenetic Changes in Myalgic Encephalomyelitis/Chronic Fatigue Patients During Exercise

https://www.mdpi.com/1422-0067/26/17/8563

Screenshot from AMMES June 2026 newsletter

#MEcfs #PwME #ME #MyalgicE
@mecfs