@RavynWitch
🫂 I hate when those days just show up out of nowhere. Hope you have good pain days in the very near future!

#NEISvoid #hypermobility #ChronicPain

I actually had no idea I was hypermobile until my partner (a former sports scientist) started pointing out that my range of motion is abnormal and I bend in ways I shouldn't.

Then we started noticing other things, like the fact that I am not losing any flexibility with age, my ankles are pronated, my joints click and crunch like crazy, I don't like standing for long periods of time (hurts!) but I can walk FOREVER, I bruise easily, I get dizzy when I stand up and tire quickly despite being quite fit, my knees are AWFUL, I have very long fingers and toes, I've had digestive issues my whole life, I have like no face wrinkles but my hands look like a 60yrold's...

And then I realised that the weird horrible feeling I get in my hips and shoulder joints sometimes, like they're out-of-joint and unstable, is because THEY ARE. They're subluxating.

And now I suspect my migraines are partially caused by joint instability. Specifically, my neck. I have an orthopaedic pillow and a cervical traction device and those help a lot.

Not a huge surprise. #ADHD and #hypermobility are co-morbid. However, I haven't been officially diagnosed. Crucially, I don't have a positive Beighton score: my hypermobility is primarily in my arms and legs. So I don't know if I'd be taken seriously. I also wouldn't consider it disabling. Annoying, maybe. I clearly got a milder case. I know a lot of folks with #EDS who really suffer!

So maybe I'll get properly checked one day? For now I'm just working on strengthening my muscles to support my shitty joints. And also on trying to pop my left collarbone back into place, because it's sticking out right now for no good goddamned reason...