One of the nice things about Mastodon is being able to filter things out from specific areas.

Things like GoFundMe are allowed in many instances; however, I don't really care to see them, so I filtered them out. The reality is I have enough problems with my family and #veds, and me with #longcovid. My financial resources are with my family first and foremost, as we have no idea where tomorrow will go with our health and lives.

https://marfan.org/conference/

I am not there this year, as I am at home with the kids instead of us all going to this year's #Marfan conference in Atlanta. It's been a busy summer!

Probably a long shot here, but is anyone out in the Fediverse in Atlanta, GA (US) for it? #veds #marfan #lds #marfanconf #vedsmovement

Please don't hesitate to private message me. My spouse is there, and they do an astonishing job sharing their skills in #mentalhealth and supporting the community. I am happy to help connect people with support there on the virtual front.

Likewise, if you're not there but need someone to talk to, I am open myself as well. Also happy to help connect you with this growing and mighty community for support!

Risk of Aorta Damage With Vascular EDS May Be Due Mostly Aging |...

As vascular Ehlers-Danlos syndrome (EDS) patients age, the risk of aorta damage rises, with aging possibly more crucial than mutation type.

Ehlers-Danlos News