Belle (she/her)
Having a bit of an existential crisis today about my disability, because of how varied my day to day experience can be. Asking for this was hard. The fact that it didn’t surprise my doctor and he thought it was a good idea was somehow…harder?
#ChronicPain #NEISvoid #hypermobility
Apr 16 at 11:44pmWeb
Show threadcwicseolforApr 16

@RavynWitch Loss of any perceived sense of how you exist is a fucking lot.

That goes double if it's triggered by a loss of function, but it doesn't have to be.

Show threadBelle (she/her)Apr 16
@cwicseolfor and having a dynamic disability that has been slowly deteriorating over time is just…loss over and over again.
Show threadB's wild, wild world 🌱🐛🎼Apr 17
@RavynWitch @cwicseolfor 🫂 hey there spoonie sis.🫂
I'm sorry to say it doesn't get easier, but I'm learning to adapt faster when the next thing fails, so maybe there's that? 🫂 Eds blows
Show threadDavid CroyleApr 16
@RavynWitch Sorry you had to go through that, mentally, on top of physically.... But there's no shame in that, especially when you need it and your doctor agrees! I've thought about asking my doctor for one, but have also resisted thus far.
Show threadsungoApr 16
@RavynWitch did this last summer. it's ... yeah. a thing.
Show threadBrian VastagApr 17
@RavynWitch I didn't ask for a placard until about 5 years after I needed one. And yes some days I needed it more than others. Mine expired recently and I haven't asked for a new one yet. But it made a big difference for me. I was definitely self conscious about it at first.
Show threadNapalousaApr 17
@RavynWitch 
Show threadL, generically a letterApr 17
@RavynWitch I've been struggling with this myself. I don't need one most of the time, but when I do need it I think that I should just bite the bullet and get one, but I never ask my doctor. I understand how difficult this can be, and I'm proud of you.
Show threadBelle (she/her)Apr 17
@ldottxt thank you 💜 I think the fact that it’s a hang tag and I can keep it in my glovebox most of the time helps, but I also can already tell that I’m going to struggle to decide to use it on tough days.
Show threadStoneBear Apr 17
@RavynWitch Go you for asking and getting! Here's to doing what you need to do to make life better.
Show threadJJ 🐶🇺🇦Apr 17
@RavynWitch I have one. You did a good thing for yourself.