I cannot preach the wonders of low dose naltrexone enough. I asked to have it prescribed after i was diagnosed with mecfs and it does help a little, but where it really helps is with PTSD and i wish people were screaming that from the mountain tops.

I have chronic CPTSD and before I started taking it I hadn't had a restful night's sleep since i was in my early teens. LDN was night and day in terms of difference. It took a couple of weeks to kick in but when i did, my sleep was transformative.

I went from my usual bare wires on waking to feeling like i'd actually had some restorative sleep and that hasn't gone away as long as I've kept taking it.

It has minimal side effects and very few, if any, counter-indications and I honestly don't know why this isn't the first thing they do with someone who has a ptsd diagnosis. It could save lives.

#ptsd #lowDoseNaltrexone #mecfs #longCovid #LDN #CPTSD

Dr Jarred Younger discusses
Low Dose Naltrexone for the Treatment of Long-COVID -

https://youtu.be/Tco6wHEOnE4?si=7iiwb9xiyDPC2jp3

#LongCovid #treatment #LDN #LowDoseNaltrexone

I finally took a picture of my hand after washing in warm water. The turning-red thing has been going on for a couple of years and it was much worse when it first started - but I could never remember to take a picture back then. I get a bit more brain-foggy than usual when it happens. I think it's erythromelalgia. It used to burn and hurt, but not much, if at all, these days. My feet used to do it, too - either triggered by taking a hot shower or when working in the heat outdoors. That doesn't happen anymore. Maybe the low dose naltrexone helped, or maybe it was just time.

I got the LDN Rx online after reading this case report. The patient had worse symptoms than me (1). I asked for the LDN based on other chronic pain and eczema, since I had diagnoses for those and they are recognized indications for LDN.

I noticed her 2nd and 3rd toes are a bit fused, like mine. Not quite syndactyly. There's another case report on a baby boy with an SCN9A/Nav1.7 mutation who had 2nd and 3rd toe syndactyly along with pain insensitivity. His mother also had the mutation and
2nd and 3rd toe syndactyly, but she had pain hypersensitivity. I have wondered about the difference in phenotype being due to sex differences.

Under 'Treatment' in the 2nd case report, naloxone is discussed as a possibility, but no information is given as to whether the patient was given naloxone or his response.

1 - https://doi.org/10.25251/skin.4.3.15

2 - CW: there are disturbing pictures in this article of injuries to the baby boy's hands caused by him chewing on them.
https://pubmed.ncbi.nlm.nih.gov/30834170/

#erythromelalgia #pain #LowDoseNaltrexone #SCN9A #nociception #SodiumChannels

#LowDoseNaltrexone use for the management of post-acute sequelae of #COVID19

https://shorturl.at/bpzOX

“a retrospective review of a clinical cohort of 59 patients…use of #LDN was associated with a fewer number of symptoms, improved clinical symptoms (fatigue, post-exertional malaise, unrefreshing sleep, & abnormal sleep pattern), & a better functional status…warrants testing in rigorous, randomized, placebo-controlled clinical trials”

@longcovid
#LongCovid #PwLC #LC #postcovid

Well, I'm coming up on two weeks of taking low dose naltrexone and was told not to expect much for a month or three, BUT what I will say is that as a person who also suffers from chronic PTSD, these little pills have changed my dreams in a good way.

I don't have a ton of regular PTSD symptoms these days, they tend to rear up from time to time, but dreaming has always been another thing. I think I literally got used to just having regular nightmares and have learned to live with them.

I haven't had one since I started this, and I remember my dreams far more vividly. They are definitely weird, mental processing dreams, but it entirely feels like the dreaming is actually beneficial. I haven't felt like this for many, many years. Maybe not since I was a teenager?

I think that even if this has no real effect on the mecfs, it might at least be worthwhile for my PTSD. This is pretty amazing.

#LDN #PTSD #lowDoseNaltrexone #mecfs #fibromyalgia #longCovid