@mimiimim @Sheril Naltrexone is (or was) used as a treatment for alcoholism. It’s a really old medication that comes from China so there’s not a bunch of money to be made here in America from it, so I’m not sure they use it anymore.

It’s supposed to cut down on the cravings, I think it also makes you sick if you drink on it but I’m not real sure.

I take low dose naltrexone (0.5 mg) for MECFS & I am currently kind of freaking out about it because the compounding pharmacies buy the powder from China. I already pay $70 for 90 days worth, I have to call and order a refill this morning and I’m scared. I’m actually more worried about it be becoming completely unavailable than becoming super expensive.

So if anyone reading this is considering trying it for alcoholism, ask your doctor. It’s possible the dose for that is the 50 mg tablets that pharmaceutical companies make because they are profitable so people can probably still get it if that’s the right dose.

#naltrexone #LDN

I should have left the link

https://www.reddit.com/r/covidlonghaulers/comments/1k87log/it_was_nice_while_it_lasted_but_now_im_back_in/

I read the comments and in case anyone from here reads them I just wanted to say a couple things.

I don’t think people have withdrawals from stopping #LDN. I certainly haven’t, but since I also take oxycodone every day I am an unusual case.

But there’s no reason that I know of to believe stopping LDN would cause withdrawals at all.

Also someone in the comments told OP that they would still have it in their system after three days I don’t think that’s true at all.

It might be dose dependent, but I know for a fact that the 0.5 mg that I take has a half life of like four hours at the most. I usually don’t even wait more than two hours after taking it before I take my first oxycodone of the day and there’s no interaction.

I’m not an expert, I’ve only been taking this medication since 2020, but it improved my situation so much I thought I was in remission. I got excited and I picked up more hours at work and after a month I crashed so hard I thought I had Covid. I didn’t, but I was not able to get back to that level of functional.

@alessandro @brewsterkahle oh yeah, I’m totally screwed. The only medication in 13 years that has worked for my #MECFS is low-dose naltrexone (#LDN ).

I’m not sure if the only place to order the powder from is China or if that’s just where all the Compounding pharmacies buy it because it’s affordable, but it’s not something I can stock up on. It goes bad really fast.

If I have to go back to being mostly bedbound trust and believe I’m not just going to quietly fall by the wayside. My mother went out quietly, I will not.

@CrimethInc Sounds like they’re never letting naltrexone powder in again and if they do so far the tariff is 125% I think. FML

#LDN is the only “treatment” I have for #MECFS and we have been getting it from China for 40+ years. We’re not going to start making it now.