Mastodawn

#PwME #LongCovid #mecfs
@mecfs @longcovid

2/‬
‪“When their ‘battery’ gets low, their symptoms get worse & their ability to function & move their bodies declines. If they keep pushing even though their battery has drained, they will ‘crash’. This is the ‘red zone’ known as PEM, when complete rest is the only safe activity”‬

#CFS #LongCovid
#mecfs @mecfs @longcovid

“People with ME/CFS or long COVID are not able to do all of the activities they used to be able to do. They can experience an increase in symptoms after simple activities, which would not have been a problem before ME/CFS came into their lives.”

#ChronicFatigueSyndrome #PostCovid #mecfs #LongCovid @mecfs @longcovid

“Remember – your friend’s battery is different from when they were healthy. What they can do in a day will be less than before. Every day is different and having friends who understand and are flexible makes an enormous difference.”

@mecfs @longcovid #longcovid #mecfs #spoonie @spoonies @chronicillness #chronicillness

Tom Kindlon

5/
“People living with ME/CFS or long COVID can become isolated because they need to rest, avoid loud and stimulating environments, and limit the time they are using energy to socialise. Some people can find this difficult to understand, which leaves the person who has ME/CFS or long COVID with fewer social connections.”

#chronicillness #spoonie #spoonielife #chroniclife
#mecfs #longcovid
@mecfs @longcovid @spoonies @chronicillness

“It will mean a lot to your friend if you can be adaptable and creative about how you connect with them, stay in touch and provide support.”

“Altering plans may allow your friend to be included. However, ME/CFS and long COVID are unpredictable, and sometimes even when you change plans to try to include them, on the day, they may be feeling worse than they anticipated and need to cancel at late notice.”

#MEcfs #PwLC #LongCovid #PwMEs
@mecfs @longcovid

“Talk to your friend about their energy limitations & how to help reduce the PEM they may experience. Remember, every person who lives with ME/CFS or #longCOVID will have different limitations that can change, depending on the severity of their illness or how charged their battery is”

#MEcfs #CFS
@mecfs @longcovid

#spoonie #mecfs #longcovid
@mecfs @longcovid @chronicillness @spoonies

“You may also like to ask your friend how long they can socialise before needing to rest. Remember, this may change each time you connect.”

#MEcfs #LongCovid
@mecfs @longcovid @chronicillness @spoonies

10/
Tips to support your friend living with ME/CFS or long COVID

#PwME #LongCovid #mecfs
@mecfs @longcovid @chronicillness @spoonies

11/
Tips to support your friend living with ME/CFS or long COVID

#SevereME #LongCovid #SevereMECFS
#mecfs @mecfs @longcovid

12/

Some people with ME/CFS or long COVID are extremely unwell and bedbound. Maintaining connections can make an enormous difference but can also be difficult because they are limited in what they can do. (continued in image)

#MEcfs #LongCovid
@mecfs @longcovid

Tom Kindlon Apr 27

13/
“Important facts to remember

If you have a friend who is living with ME/CFS or long COVID” (see image)