Mastodawn

My colon is subluxing my ribs. Wonderful. Well, at least it isn't stuck between rib and hip anymore.

That #Americans aren't r1oting & setting shit on f1r3 over #ChronicallyIll people dying from having meds/treatments withheld tells everything I need to know about #America. If it were beautiful, able-bodied young white women starving to death, you all would have sacked the White House by now.

🩷 Beeble 🩷1d ago

I have all the markers for it, so it made sense. I was referred to a rheumatologist, who I told about all of my symptoms, including the extreme pain that I experienced whenever the weather shifted. She then told me that "Chronic illness doesn't care about the weather" and to "Come back when there was actually wrong with you". She gave me useless pain meds and sent me on her way. I went back to my doctor, who sent me to a pain clinic (yay).
#chronicallyill

🦇Jenna🦇Mar 10

I’ve been “swaying” (feeling like I’m in a boat) for about 24 hours with a vestibular migraine and SATAN PLEASE LET ME OFF THIS RIDE! #chronicallyill #onaboat #ugh

Tom Kindlon Mar 10

News Release 9-Mar-2026

Telemedicine remains popular, but who uses it varies widely

https://www.eurekalert.org/news-releases/1119321

“Telemedicine is no longer just a pandemic workaround—it has become a routine part of care delivery,”

#chronicillness #Spoonie #ChronicallyIll #ChronicIllnesses #Spoonies

Sky Mar 7

False Spring. A cardiology circus. Transit chaos.
Another week surviving in a haunted meat suit with Luna the service dog enforcing naps. 🐕‍🦺🥄

#ChronicIllness #Disability
#ChronicallyIll #ServiceDog
link.tree/skylanarissa

https://dreamingofdragonscom.wordpress.com/2026/03/07/false-spring-red-tape-and-a-cardiology-circus/

False Spring, Red Tape, and a Cardiology Circus

False Spring has arrived in Illinois, which means the weather is confused, my joints are staging a protest, and the healthcare system decided to throw its own chaos into the mix. This week’s Saturd…

The Crippled Cryptid.

Tom Kindlon Mar 7

Years of scapegoating rhetoric has led to ‘envy & resentment’ of those with blue badges, research finds

Note: blue badge = UK name for disabled parking permit

https://www.disabilitynewsservice.com/years-of-scapegoating-rhetoric-has-led-to-envy-and-resentment-of-those-with-blue-badges-research-finds/

Screenshot from AMMES March 2026 Newsletter

#Disabled #Disability #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots

Bowie Mar 2

Chronic illness be like...

#chronicillness #chronicillnesses #chronicallyill #disability #disabled #chronicillnesshumor

Show thread

Tom Kindlon Mar 2

3/
From: "The Quiet Art of Extending a Life: Notes on Assistive Tools, Capacity, and the Dignity of Support"

https://onelifelivedwell.substack.com/p/the-quiet-art-of-extending-a-life

#Spoonies #ChronicallyIll #Disabled #Disability
#Chronicillnessblogger #Chronicillnessquotes
@mecfs @longcovid @pots

Show thread

Tom Kindlon Feb 28

2/
"assistive devices, adaptive equipment, whatever term you prefer, they’re not evidence of decline. They’re evidence of a body trying, and of a person choosing to keep living on their own terms."

#Spoonies #ChronicallyIll #Disabled #Disability
#Chronicillnessblogger #Chronicillnessquotes
@mecfs @longcovid @pots