Mastodawn

def paying for yesterday, it's hitting me hard today, completely knackered.
something new though: my eyes started hurting. like, my eyeballs, as if they were strained? no idea what the heck that's about, since I barely looked at a screen. today still really uncomfy, even with eyes closed.
not happy about this development, nor the sometimes blurry vision. /grumbles

#MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #ChronicIllness #PostExertionMalaise #PostExertionalMalaise #TheConsesOfMyQuences

kit lecter 🦇👹23h ago

one of the (many) downsides of having a chronic illness and in particular experiencing post-exertion malaise, is that you need to decide which activities are worth it or not.
I'd purposefully kept myself on mostly bed rest the last few days, to avoid a potential flare-up since I was having somewhat not good days, in preparation of going out to see my friend today.
now, my pain and fatigue levels are approaching critical, and I feel like shite, and I expect to be paying for it for at least the next week.
but mental health wise, it was so fucking worth it. I had a great time.
but fuck if I don't hate the conses of my quences.

#MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #ChronicIllness #PostExertionMalaise #PostExertionalMalaise #TheConsesOfMyQuences

Tom Kindlon Apr 9

Free webinar today in just over 2 hours wherever you are in the world.

I have been impressed by Amy Mooney in the past and have no reason to believe she will be anything but good in this webinar.

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC
#PostExertionalMalaise

Ahimsa Apr 7

Bateman Horne Center is hosting another session of "Coffee" with a Clinician tomorrow

April 8, 10 am Mountain Time

Topic: Post-Exertional Malaise (PEM) Part 2

Learn how PEM is identified and what tools help measure function.

What questions help identify post-exertional malaise (PEM)?

Details:

https://batemanhornecenter.org/event/coffee-with-a-clinician-4/

Registration:

https://batemanhornecenter.zoom.us/meeting/register/Rn-ETqlIT6qCQwjKR5S_3A#/registration

#MEcfs #LongCovid #PEM #PostExertionalMalaise #BatemanHorne

Coffee with a Clinician

Join expert medical providers to learn how BHC manages care for individuals with ME/CFS, Long COVID, and co-existing conditions.

Bateman Horne Center

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Till-o-mat Apr 5

3/4

I regret having been so active the past two days. I pay the price for that now, and the price is high and it hurts. Yes, I enjoyed myself, but I wonder whether I should have paced myself better.
My wonderful husband warned me, but I wouldn’t listen. #pacing
#PostExertionalMalaise

I can’t overemphasise how frustrating and exasperating it is to have Long Covid. My life is just a few shards of the one I had before #Covid.

Tom Kindlon Apr 4

🧵
Thoughtful blog post by somebody with long Covid and ME/CFS. Initially focuses on describing the post-exertional malaise effects of working 3 days in a row before discussing how the whole illness(es) and the effect it is having on his life is making him feel emotionally

https://centerleftstack.substack.com/p/the-debt-came-due

#MEcfs #PwME #ME #MyalgicE
@mecfs
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome
#PostExertionalMalaise #PEM

Tom Kindlon Mar 17

This image from ME/CFS South Australia refers to this useful webpage on Post-Exertional Malaise (PEM) on the ME/CFS Australia site:
https://mecfs.org.au/resources/post-exertional-malaise-pem
(the URL redirects here)

#MEcfs #PEM #PostExertionalMalaise #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs

Tom Kindlon Mar 7

Long article on the 'mysterious' illness of NBA star Kristaps Porzingis'

https://www.espn.com/nba/story/_/id/48102994/kristaps-porzingis-mysterious-illness-warriors-uncertain-future

One person has collated just the parts on his health struggles here:
https://www.s4me.info/threads/well-known-famous-people-with-me-cfs-public-thread.31768/post-678954

Viral onset plus all these symptoms suggest ME/CFS as a strong possibility. Best for his long term health I think to take an extended break

#PostExertionalMalaise #PEM #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
#POTS @pots

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silt Feb 24

worked 3 hrs today my body needs immediate care. pain is at a 8.5 but i feel it expanding to more parts of my body. heres what hurts atm: my entire cervical spine and the top section of my thoracic spine; all the muscles surrounding the cervical spine and thoracic spine, my gums and jaw and head are throbbing so hard i can visualize the rhythm of the throb, my right big toe and toe ball mound, right arch of foot, right ankle and right knee ache

#chronicallyill #longcovid #postexertionalmalaise

Tom Kindlon Feb 5

Extract from:
"Physical Therapy (= physiotherapy) Must Catch Up: Teaching ME/CFS is No Longer Optional"

https://batemanhornecenter.org/physical_therapy_must_catch_up/

Related article:
Clinical Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome as a Curriculum Thread to Meet Accreditation Standards in Physical Therapy Education
https://nsuworks.nova.edu/ijahsp/vol24/iss1/1/

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PostExertionalMalaise #PEM @mecfs