Irish ME/CFS Association🧵
May is Myalgic Encephalomyelitis (ME) Awareness Month.
You can help by liking and/or sharing this video. This 2017 TED talk features Jennifer Brea
#MEcfs #MyalgicEncephalomyelitis @mecfs
Day #1
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YouTube
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‪May is Myalgic Encephalomyelitis (ME) Awareness Month. ‬
‪You can help by sharing and/or liking this video. It is 3 minutes 5 seconds long. ‬
‪https://www.youtube.com/watch?v=TGIo1v7KVJQ ‬
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‪This film will give you an introduction to PEM (Post Exertional Malaise).‬
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‪Day 2 #MEcfs #CFS ‬
@mecfs
ME and PEM
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May is #MyalgicEncephalomyelitis (ME) Awareness Month
You can help by liking +/or sharing this video
(9 minutes)This is ME (2020) "A short film exploring 'Spoon Theory' told through the eyes of a young woman struggling with ME/CFS"
https://vimeo.com/338532785
Day 3
#mecfs #PwME
@mecfs
This is ME (2020)
A short film exploring 'Spoon Theory' told through the eyes of a young woman struggling with ME/Chronic Fatigue Syndrome ** Follow Pickup_Films on Twitter…
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(2 minutes)
"What is ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)?" By @brokenbattery
https://www.youtube.com/watch?v=X6f4zCe2ZtA
You can help by liking and/or reposting this short video
What is ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)
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May is Myalgic Encephalomyelitis (ME) Awareness Month.
You can help by sharing and/or liking this 102-second video. "What is ME/CFS?" (excerpt from LEFT OUT, reproduced with kind permission from UpNorth Film, Norway)
#MEcfs #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
Day 5
What is ME/CFS? (excerpt from LEFT OUT, reproduced with kind permission from UpNorth Film, Norway)
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‪May is #MyalgicEncephalomyelitis (ME) Awareness Month.‬
‪You can help by reposting +/or liking this video. It's a preview of a documentary, formerly called "Blue Ribbon" (now called The Forgotten Plague) (3 mins 5 secs)‬
The Blue Ribbon: Sneak Peek
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May is #MyalgicEncephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this video. It's been approved for continuing medical education in the US
https://youtu.be/RC9TjgE_PlU?si=wQzPnbfDibMzj7Oa
Diagnosis and Management of Myalgic Encephalomyelitis and Chronic Fatigue Syndrome
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May is #MyalgicEncephalomyelitis (M.E.) Awareness Month. You can help by sharing +/or liking this video.
It was made by a woman, Laurel, with severe ME Living with Severe ME (5 minutes 13 seconds)
https://youtu.be/LvweCk44WHs
Day 8
Living with Severe ME: Laurel's CFSAC Testimony (2009)
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this documentary, "Mom Needs to Lie Down".
It's a short Canadian film made in 2014. (11 minutes 25 seconds)
https://www.youtube.com/watch?v=EvrU-ciEFcM&feature=youtu.be
Mom Needs To Lie Down: The years and lives slept away by ME/CFS
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May is #MyalgicEncephalomyelitis (M.E.) Awareness Month.
You can help by sharing this documentary, "Invisible". It's a 60-minute documentary made in 2009 (but is timeless) [Skip forward to 14:50 to go to the start of "Invisible" proper]
http://cctv.org/watch-tv/programs/invisible-vermont
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#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day
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May is #MECFSawarenessmonth
Please help by reposting and/or liking this 12-minute documentary which features Whitney Dafoe & others
Invisible Illness - Stories of Chronic Fatigue Syndrome
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May 12 is International #MyalgicEncephalomyelitis (ME) Day (and May is ME Awareness Month) You can help by sharing and/or liking this
(well-made) video.
(3 minutes)
https://www.youtube.com/watch?v=IOflARSgNnE
Day 12
#MyalgicE #May12 #May12th #WorldMEDay2023
#WorldMEday #MEAwarenessDay
C.F.S/M.E - The Torturous Disease
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This is a short (78-second) video about postexertional malaise in ME/CFS.
It uses the battery analogy, but also highlights the effects of payback. There is no sound.
May is #MEAwarenessMonth.
You can help by reposting and/or liking this video
https://www.youtube.com/watch?v=THlRW_YGZmE
Day 13
PEM - post exertional malaise
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(2 minutes)
"How does it feel to live with ME/CFS? Patients describe what it's like"
May is ME Awareness Month.
You can help raise awareness and understanding by sharing and/or liking this video
How does it feel to live with ME/CFS? Patients describe what it's like
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this 7-minute video, "What is ME? (Myalgic Encephalomyelitis aka Chronic Fatigue Syndrome CFS)" by Broken Battery
https://www.youtube.com/watch?v=VKPdgz612nU
Day 15
What is ME/CFS? (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)
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May is #MEcfs awareness month.
Please help by sharing +/or liking this Golden Girls episode on #CFS
https://youtu.be/vVyLZTKDy2E
#Day 16
The Golden Girls: Dorothy’s Struggle With CFS/ME – Awareness Video
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May is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome (#MECFS) Awareness Month.
Please help by sharing +/or liking this 6-minute Paper Stop-motion Animation About ME/CFS https://www.youtube.com/watch?v=dUrPFqGONM8
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #MyalgicE #PwME #MyE #MEeps
@mecfs
An Existence Project | Paper Stop-motion Animation About ME/CFS
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May is #MyalgicEncephalomyelitis (ME) Awareness Month.
You can help to raise awareness and understanding by retweeting and/or
liking this 7 minute 8 second-video made on a young UK woman with severe ME
https://www.youtube.com/watch?v=cPH3kKkEYAI
Day 18

#SevereME #SevereCFS #mecfs #severemecfs @severeme
@mecfs
Documentary on life with severe ME/Chronic Fatigue Syndrome on BBC1
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month
You can help by re-posting +/or liking this video. "A wonderfully illustrated comic to explain M.E also known as Chronic Fatigue Syndrome (CFS) to other people" (2 minutes)
Day 19
Comic: But........ you did it before by Mahli Quinn
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May is M.E. Awareness Month.
You can help by sharing and/or liking this video, a 1993 documentary, Living Hell. 14:00-1:10:16 (i.e. 56 minutes). There are also 2 interviews from Tom Hennessy.
https://www.youtube.com/watch?v=SyB49g_l9Sg
Day 20
Tom Hennessy on MacNeil Lehrer, Living Hell, Larry King - 1992
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May is ME/CFS Awareness Month.
You can help raise awareness and understanding by sharing and/or liking this 30-second video from the US Disease Control and Prevention (CDC)
CFS/ME CDC "Missing My Life"
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Day 22
Educate others about Myalgic Encephalomyelitis / Chronic Fatigue Syndrome during ME/CFS Awareness month (May) by sharing and/or liking this 3-minute video by @MEAssociation
https://www.youtube.com/watch?v=PKfdFzvrzRE&feature=youtu.be
If Only
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Educate others about Myalgic Encephalomyelitis / Chronic Fatigue Syndrome during ME/CFS Awareness month (May) by sharing and/or liking this 9-minute video
Day 23
#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PwME #MyE
M.E. / Chronic Fatigue Syndrome - Sleepydust Video
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month. You can help by sharing and/or liking this video, "Reduced Function". Association trustees Tom & Vera Kindlon (15:24-16:56) are among the interviewees* in this, at some points, very moving 20-minute video describing how ME/CFS has led to reduced functioning. However we would encourage people to watch the whole video, if possible, as different people describe different losses & impairments https://www.dialogues-mecfs.co.uk/films/patients-experiences/
@mecfs #mecfs
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Learn more about Myalgic Encephalomyelitis for ME Awareness month (May) with this 4-minute video https://youtu.be/ZgAa-l-N1Eg
This is ME - Myalgic Encephalomyelitis
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3-minute Action For M.E. #ME video. Uses survey data to list symptoms & for examples of effects on life https://youtu.be/3aBfoGeUXUg Day 26
#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
Do You Care About M.E.?
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this 15-minute video on #SevereME & #VerySevereME: "Severe & Very Severe ME / CFS Myalgic Encephalomyelitis / Chronic Fatigue Syndrome"
Includes comments from professionals (incl. Drs Muirhead/Weir/Speight/Shepherd/Nacul & Caroline Kingdon (nurse), patients & carers (incl. Association chairperson) Discusses various distressing topics http://www.dialogues-mecfs.co.uk/films/severeme/ Day 27
alicedrawing4fun@IrishMECFSAssociation @mecfs Dr. Kaufman is brilliant and I wish I’d seen this when I was first diagnosed! Also wish this would be shown in med school, or during residency.