(UK)
#ThereForME co-founder Karen Hargrave writes about applying for Continuing Healthcare funding
https://www.thereforme.uk/p/why-is-continuing-healthcare-funding
Screenshot from latest Science for ME weekly update
#SevereME #SevereMECFS
#SevereCFS #VerySevereME
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
@tomkindlon
Stonebird books on severe ME and caring now available to download for free
#MyalgicEncephalomyelitis #SevereME #SevereMECFS
#SevereCFS #VerySevereME #PwME
Stonebird books on severe ME and caring now available to download for free
Screenshot from Stonebird Facebook page (of Greg & Linda Crowhurst)
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
#SevereME #SevereMECFS
#SevereCFS #VerySevereME #PwME
A source for soundproofing material. From a report on a carers' group meeting.
Links:
https://www.audimute.com/?srsltid=AfmBOoroq-oztCCyDsWYuOfTj0brxVBYOTicWgLq0x0-AfSMtfxwM4Wa
https://www.amazon.com/stores/Audimute/page/A4D2379B-B4AD-4700-A085-096A2AF15C1F
COI: I have no financial or other interest in these companies
#SoundSensitivity #NoiseSensitivity #LongCovid #MEcfs #CFS #PwME #SevereME #SevereMECFS @longcovid @mecfs
2/
Extract from new paper:
An Overview of Severe Myalgic Encephalomyelitis
Free fulltext:
https://www.mdpi.com/2077-0383/15/2/805
#SevereMECFS #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @severeme
Great to have this new review for a relatively neglected area in the research literature
An Overview of Severe Myalgic Encephalomyelitis
Free fulltext:
https://www.mdpi.com/2077-0383/15/2/805
#MyalgicEncephalomyelitis #SevereME #MEcfs #CFS #PwME #ChronicFatigueSyndrome #SevereMECFS @severeme
2/
Abstract for:
Contested and neglected: Social and medical marginalization in severe Chronic Fatigue Syndrome
Free fulltext:
https://www.sciencedirect.com/science/article/pii/S0277953625010974
#SevereMECFS #SevereCFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs
4/
"The human body and mind were not designed to be encased in darkness, yet, for so many of us, this is our enforced mode of existence."
Telehealth as a Care Solution for Homebound People: Systematic Review and Meta-Analysis of Healthcare Utilization, Quality of Life, & Well-Being Outcomes
https://onlinelibrary.wiley.com/doi/full/10.1155/hsc/7224151
"telehealth emerges as a viable alternative to conventional care, significantly reducing healthcare utilization & enhancing both HRQOL and well-being for #homebound people"
#chronicillness #Spoonies #Spoonie #SevereME #SevereMECFS @mecfs
#MyalgicEncephalomyelitis #MEcfs #CFS #PwME @longcovid
#LongCovid #PASC #PwLC
Tom Kindlon
BenNevis