Broadwaybabyto

Part Two in my Three Part Series on MCAS is out now!

MCAS is a beast of a chronic illness. It is devastating to your quality of life to live under the constant threat of anaphylaxis. It's also poorly recognized and therefore hard to find a doctor to diagnose and properly treat.

The good news is there are many things you can do on your own - outside of the medical system - to decrease symptoms and reduce the number of reactions you have.

This guide focuses on diet - but also the myriad of other things that can be triggers (and how to mitigate them).

There's a steep learning curve when dealing with this illness - but the more we share what works and what doesn't - the easier it'll be for those who come after.

https://www.disabledginger.com/p/mcas-and-histamine-diet-isnt-the

#CovidIsAirborne #CovidCautious #CovidIsNotOver #CleanAir #WearaMask #Disability #LongCovid #Ableism #Denial #CleanAir #Pandemic #PublicHealth #InfectionControl #Eugenics #SafeHealthcare #N95 #Respirators #MasksWork #MaskUp #Spoonie #Discrimination #Dysautonomia #mecfs #pots #mcas #communitycare #wearamask #chronicillness #keepmasksinhealthcare #mastcells

MCAS and Histamine - Diet isn't the ONLY Answer

Mast Cell Activation Syndrome is a beast of a condition that can impact every part of your life. The good news is there are many things you can do on your own to improve symptoms and reduce flares.

The Disabled Ginger
Oct 5, 2024 at 2:53amWeb
Show threadBroadwaybabytoOct 5, 2024

If you missed Part One - it was a primer about MCAS. A gentle introduction to the condition with a few easy tips and tricks

https://www.disabledginger.com/p/when-youre-allergic-to-everything

When You're Allergic to Everything and Nothing... That's MCAS

An intro guide to Mast Cell Activation Syndrome and how it has fundamentally changed my life. Living under the constant threat of anaphylaxis is hard - but there are ways to make it easier.

The Disabled Ginger
Show threadMedea Vanamonde🏳️‍⚧️ ♀Oct 5, 2024
@broadwaybabyto I started taking Dong Quai (a stample of Chinese medicine) about two weeks ago to try and get a handle on my once a week migraines .
It had an impact on those quickly now 11 days since last full migraine . Have had 3 25 minute aura event earlier this week that did not become migraines .
And it’s having an impact on my MCAS . I’m not spontaneously triggering just “sitting here” it requires a full trigger.
I plan to keep you in the loop on this as of us MCAS girls on here you may have it the hardest of us …
I wasn’t expecting an MCAS effect . But it’s still too early to cut back on my H1 blocker like I want to : I’m not taking an otc dose of Fexofenadine daily . Not by a long shot .
Very trigger specific. I was in the cheese section at Grocery Outlet seeing what they had for plant based cheese and all the other cheese set me off .
I’d been feeling woozy walking down the aisle to the cheese case and felt profoundly nauseous. Ran to canned goods and felt better . This is new
Show threadMedea Vanamonde🏳️‍⚧️ ♀Oct 5, 2024
@broadwaybabyto fairly close to what I did over the last 25 years with diet as the remission I had at adult hood began its slow defeat .
I thinking I’m getting around some of the worst of the digestive parts but with an H2 blocker every 12 hours .
Alcohol is a tricky one for use masties . I had been reduced to just Vodka…as it’s as close to pure alcohol a human. Now…if I drink more then two vodka cocktails during one evening there is enough alcohol in my small intestines to cause a major die off of bacteria and their chemicals death cries do…guess what …set off my mast cells .
Any food with active cultures do even worse . I keep looking and not finding Soda Breads as bakers yeast is the fermenter of agony
Show threadBroadwaybabytoOct 5, 2024

@MishaVanMollusq I can’t even drink kombucha anymore - I’m sooooo sensitive to alcohol!

I wish I never got on a daily H2 regimen because I swear it’s causing more issues than it’s worth but so hard to get off. I got off them once before by going raw vegan for a few months - but my diet is really restricted now and it might not be possible.

I have had success with dong quai in the past though! I used to put it in elixirs.

Show threadMedea Vanamonde🏳️‍⚧️ ♀Oct 5, 2024
@broadwaybabyto those of us using it for migraine are taking 1000 mg/day.
H2 blockers were as life changing as Fexofenadine for me.