Critically urgent PF & Aspergillosis care.

Terminally ill patient with complex pulmonary/genetic conditions faces systemic barriers. Any physician able to provide life-saving evaluation, please respond. #LifeSavingCare #PulmonaryFibrosis #Bronchiectasis #CFTRRD #TerminalIllness

https://celestiaquixs.com/urgent-pulmonary-fibrosis-care/?utm_source=mastodon&utm_medium=jetpack_social

First #bronchiectasis exacerbation for ages. First time I've had to resort to postural drainage on top of huffing and other breathing techniques. Mask wearing has kept my lungs clear, but family time over Xmas couldn't be fixed with a HEPA filter running. Considering paying for percussive massage as I find it too grim to do with a partner. #Alpha1AntiTryptsinDeficiency

I made to GP this morning. Chest still clear though I’m coughing up stuff & clearly struggling to speak without coughing/breathlessness. GP was nice though.
Nothing else they can do. I didn’t expect anything tbf but I’d rather be checked on than not.
#wife is wiped out from yesterday & can barely move. 😖.
We’re a broken household 😞. It just sucks.

I really want to go back to being healthy & being able to DO things. Being bored doesn’t help but I’m in no state to go out & engage my brain as my brain fog is ridiculous. 😶‍🌫️

My current goals are very small. Breathe easily.
Get some washing done.
Cook a healthy meal.
Go out for a walk.

I’m currently back in bed.

#fibromyalgia #chronicillness #asthma #bronchiectasis #spoonie #AuADHD

#Introduction Hoping to communicate high quality information about lung health and respiratory medicine.
#COPD
#Asthma
#Lung
#ILD
#IPF
#RespIsBest
#Bronchiectasis
#COVID
Ok #introduction given I've moved instances to FediScience - I'm currently associate professor of health psychology at University of Leeds. I typically lead #behaviourchange intervention development workpackages on NIHR programme grants for applied research, usually doing a bit of #knowledgemobilization and #coproduction - currently working on antipsychotic switching, TB & depression, distal upper limb pain and aphasia. Trail runner when not injured. Self-manage #bronchiectasis