Beautifully written, and deeply resonating.
The long middle of a chronically terminal illness is a rough one to endure, traverse, witness, accept, and talk about.

https://www.theguardian.com/society/2026/mar/22/i-have-stage-four-cancer-there-will-be-no-cure-but-death-isnt-necessarily-imminent-this-is-how-it-feels-to-live-in-the-long-middle

#SystemicSclerosis #ILD and #KidneyDisease is my long middle, on top of #BreastCancer survivor-ness, with scanxiety every few months - blood & kidney tests, CT scans, digestion tract monitoring. I'm not yet at dialysis, but know it's not too far away.

I have stage four cancer – there will be no cure, but death isn’t necessarily imminent: this is how it feels to live in the long middle

When you are cured, the world cheers; when you are dying, it mourns. But when you are simply maintaining, the world is at a loss

The Guardian
Aviation weather for Lleida-Alguaire airport (Spain) is “LEDA 231200Z 20007KT 160V280 9999 FEW030 15/08 Q1017” : See what it means on https://www.bigorre.org/aero/meteo/leda/en #lleidaalguaireairport #airport #lleida #spain #leda #ild #metar #aviation #aviationweather #avgeek vl
Lleida-Alguaire airport (Spain) aviation weather and informations LEDA ILD

Aviation weather with TAF and METAR, Maps, hotels and aeronautical information for Lleida-Alguaire airport (Spain)

Bigorre.org

Living with Sarcoidosis is sitting in your car at the store and watching the incline thinking is it even worth it to go make a purchase?

#Sarcoidosis #ChronicIllness #ILD

Wort der Woche 37: Digitalisierung

Am 8. Sept. ist der Weltalphabetisierungstag. In diesem Jahr steht der Internationale Tag der Alphabetisierung unter dem Motto „Förderung der Alphabetisierung im digitalen Zeitalter“. Über das Lesen und Schreiben auf Papier hinaus ermöglicht Alphabetisierung im digitalen Zeitalter den Menschen, sicher und angemessen auf digitale Inhalte zuzugreifen, diese zu verstehen, zu bewerten, zu erstellen, zu kommunizieren und sich damit auseinanderzusetzen. Alphabetisierung ist auch von zentraler Bedeutung für die Förderung des kritischen Denkens, die Unterscheidung glaubwürdiger Informationen und die Navigation in komplexen Informationsumgebungen.

https://www.politik-lexikon.at/digitalisierung/

Linktipp Nr. 1: https://www.politik-lernen.at/dce_2025 Europäisches Jahr der Digital Citizenship Education 2025
Linktipp Nr. 2: https://www.politik-lernen.at/folge26_richtigundfalsch Richtig & Falsch Folge 26: Handyverbot oder Medienkompetenz?

#politiklexikon #wortderwoche #PolitischeBildung #dcey2025 #digitalisierung #alphabeth #ild #ild25

Beautiful weather for takeoff from Lleida-Alguaire airport (Spain) “LEDA 080830Z 18005KT 140V270 CAVOK 20/11 Q1018” : See what it means on https://www.bigorre.org/aero/meteo/leda/en #lleida #spain #lleidaalguaireairport #leda #ild #metar #aviation #aviationweather #avgeek #airport vl
Lleida-Alguaire airport (Spain) aviation weather and informations LEDA ILD

Aviation weather with TAF and METAR, Maps, hotels and aeronautical information for Lleida-Alguaire airport (Spain)

Bigorre.org
Happy International lolita day (it's always on the first Saturday in June and December). We went out for breakfast and scones and then got caught in a storm.
#ild #internationalLolitaDay #lolitaFashion #eglcommunity
Coord for summer #ILD
I’ll keep reminding everyone wearing #egl fashion we have a private pixelfed server to share our coords: egl-fashion.com 💕
#eglcommunity #lolitafashion

I am... not entirely sure what an 8 back would feel like but I suspect that I am going to need to heap the cushions on.

... hm. okay. The #Sabai rep said that the seat cushions on the 86" are 1.8 lbs/cubic inch density and 28 firmness. If I'm understanding this correctly, the 28 is the foam's #ILD rating. The foam I bought from Joann for replacement cushioning has an ILD score of 36, so it's somewhat firmer.

*drums fingers on table*
6/7