Mastodawn

Noch bis morgen: Wer sich neu für meinen kostenlosen Newsletter einträgt, nimmt an der Verlosung meines nächste Woche erscheinenden Buches #AnnaUndDasBiest über #LongCovid #MECFS teil: https://www.martin-ruecker.com/newsletter

David Davies-Payne 8h ago

RE: https://mastodon.online/@hildabast/116807843917755801

#MECFS
#CochraneCollab #EvidenceBasedMedicine

"Meanwhile, this out-of-date Cochrane review continues to mislead readers by stating that exercise is a treatment for this condition, recommended by treatment guidelines which in fact, do not recommend it. That could be resolved quickly and simply. If you need a poster child to show why the model of uncontestable authority of a single person and their support network at a journal is outmoded and extraordinarily risky, this is a good one."

Tom Kindlon 9h ago

Australian 🇦🇺 research

Disrupted Glymphatic Function and Its Relationship with Sleep and Cognitive Impairment in ME/CFS Assessed via DTI-ALPS

https://www.frontiersin.org/journals/neuroscience/articles/10.3389/fnins.2026.1875420/full

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #ME #MyalgicE
@mecfs

Tom Kindlon 10h ago

New UK research funded by ME Research UK

Higher-order brain processes, rather than early processing, underlie sensory problems in ME/CFS: evidence from ERPs

https://www.frontiersin.org/journals/medicine/articles/10.3389/fmed.2026.1842841/full

Screenshot from latest Science for ME @s4me weekly update

#MEcfs #PwME #ME #MyalgicE
@mecfs

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Tom Kindlon 11h ago

“That means denials are extremely common for complex chronic illnesses and should not be interpreted as personal insult. A denial does not mean Social Security believes you are lying, exaggerating, or mentally unstable. In most cases, appeals are simply expected.”

#disability #mecfs #longcovid
@pots @mecfs @longcovid

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Tom Kindlon 13h ago

“Social Security then looks at the actual demands of the work you used to do. This includes physical stamina, cognitive load, reliability, and the ability to sustain attention and attendance consistently.

Barbara describes how many people with long COVID can sometimes perform isolated tasks, but cannot reliably function at the level required for full-time employment.”

#LongCovid #mecfs #cfs
@pots @mecfs @longcovid

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Tom Kindlon 13h ago

“Social Security evaluates whether your condition limits activities like sitting, standing, concentrating, lifting, walking, or sustaining cognitive effort throughout a workday.”

Barbara points out most physicians don’t document these limitations unless patients actively describe them. (contd)”

#mecfs #longcovid #pots
@pots @mecfs @longcovid

Eva 13h ago

Heute habe ich im Büro einen Flyer von #CSNordlicht gesehen, einer Kompetenzstelle für #MECFS, die gerade in #Wien aufgebaut wird. Beratung, Pflege, Betreuung und spezielle Wohnformen für schwer Betroffene - hoffentlich wird das was! ✊🏻✊🏻

https://www.cs.at/angebote/nordlicht